Mycophenolate or Myfortic: Do you have GI side effects?

I had terrible issues with Mycophenolate..ended up in Hospital for three weeks.
Lost 4stone in weight, couldn't eat or drink without it coming straight through without being digested. They took me off it and along with Tacrolimis I now take prednisilone (steroid).

@janni1, Thanks for checking in and sharing your update. I have had no problems with Mycophenolate during my 14 years f taking it. Your experience really demonstrates how differently each one of us might respond to our immunosuppressant medications. I am very happy that your doctors have established a solution for you. Have your doctors indicated whether this will suffice for you for the long term? How long ago did you switch medications?
Are you re-gaining any of your weight?

Rosemary,
I have been off the Mycophenolate since July 22
And unfortunately, for me, with the steroids I put on my lost weight and more as my kidneys are failing and I am a little water blob full of fluid. Hopefully once my kidneys are sorted I will get to some normality and things will even out. I can't wait to be honest.

@janni1, For what it's worth - I regained my weight after my transplant, too.
Prednisone does encourage weight gain, and your additional fluid retention with the current kidney failure is a big part of the added weight and discomfort. I am crossing my fingers and my toes that you will gradually experience improvement.
Have you been encouraged to make any dietary/nutritional adjustments at this point?

same meds, same stomach problems. Experiencing severe leg cramps and feel meds is causing hair thinning.

@maize, Hi and Welcome to Connect. As a transplant recipient, I know that our medications are powerful enough to prevent organ rejection and for some patients the side effects are more bothersome than for other patients. As for myself, I have been on the same medications since my liver and kidney transplant in 2009. Occassionally, I have had dosage adjustments as indicated by my routine labs, and other times, I have actually contacted my transplant nurse when I recognize that something is not normal for me. For reference, I take mycophenolate (Cellcept) and tacrolimus. And my labs are always repeated within a couple of weeks after a doseage change.
I do know from experience that hair will get thin after the surgery and with the strong meds, but after a while, the hair does come back! Gentle shampoo is helpful.

I want to invite you to a discussion where members have shared experiences with Weight gain, Hair loss, Headaches and more. I think you will want to take a look at it. And as a member you can join right in and ask anyone a question or share a comment. Hint: If you want to direct your comment or questojn to a particulat individual, be sure to include their @name in your reply.
- Transplant anti-rejection medications. What's your advice?https://connect.mayoclinic.org/discussion/your-anti-rejection-medications/

@maize, How long ago did you receive your transplant? Which organ have you received? Have you spoken to your transplant team about the problems that you are experiencing?

One and a half years post transplant. I made that switch to Myfortic six months ago due to having constant diarrhea. It helped for several months but I have now started with the diarrhea again for about two weeks. I am also taking Pepcid and rolaids now. Metamucil helps some. Will be calling my doc.