Muscle Invasive Bladder Cancer

My prayers are with your family. My dad who is 83 is going through something similar he has muscle invasive bladder cancer stage two or three at this point. thank God it didn’t spread. He was supposed to go for a chemo and then bladder removal. He found out he cannot do chemo because of his age and kidney functions. He is scheduled next week to get his bladder removed fingers crossed everything goes well.

@saaron79 Your dad is in my prayers for total and complete healing. Thank you so much for praying for my family. The big thing is it never spread outside the muscle wall and because of that, the cancer will be destroyed with the bladder removal. Always Praying 🙏

Thank you for the prayers and positive vibes.

I was diagnosed in December 2024. /first cystoscopy 12-24-24…I have had 3 cystoscopes w/last one performed on 5-29-2025…..has anyone else had muscle invasive Bladder cancer and if so any info for me. I am doing the BCG treatment and wondering if anyone else has done or is doing this treatment. 3 times in 5 months and it isn’t leaving my bladder? Anyone with advice?

Welcome, @grannykaka. I moved your question to the Bladder Cancer support group here: https://connect.mayoclinic.org/group/bladder-cancer/

In the group, you can use the search to find many discussions about BCG treatment (https://connect.mayoclinic.org/group/bladder-cancer/?search=BCG&index=discussions)

I'm tagging fellow members like @rose1966 @saaron79 @abhhayspandey @jowilliams1 @hmmm @janiem @sepdvm, who have experience with muscle-invasive bladder cancer.

@grannykaka, when will you start BCG treatments?

My dad has muscle invasive cancer. He had his bladder removed moved a few months ago and will start immunotherapy in a couple of weeks.

I was diagnosed in October last year with a form of Stage 3 bladder cancer, being high-grade aggressive squamous cell carcinoma I had 4 tumors of which 1 was muscle invasive. In December, 3 tumors were removed during TURBT surgery and in February I had a RC. I am now doing immunotherapy monthly for a year to help stop any new cell
growth.

Hello! I'm sorry you're going through all of this. I had high grade muscle invasive. My doctors went straight to chemo then a cystoscopy for a resolution. There really wasn't another good choice in my situation. Have they mentioned bladder removal? Is it low or high grade?

My husband just had a Radical Cystectomy on May 29th. He’ll be coming home tomorrow. He had been diagnosed with Stage 2 MIBC. He had 8 hookups for Gem/Cis and a month later the RC. He seems to be doing well. Still has JP drain and gives himself shots to prevent blood clots for a month…also, getting used to the urostomy pouch. He said he needs help getting up , but once he’s up…he can walk and walk. I have soups, Protein Shakes, mashed potato’s, applesauce, pancakes, and 3 Liters of water a day. Now we are waiting for the Pathology Report. The surgeon said he took out all lymph nodes and saw no metastatic cancer.

I meant cystectomy.