Welcome, @grannykaka. I moved your question to the Bladder Cancer support group here: https://connect.mayoclinic.org/group/bladder-cancer/

In the group, you can use the search to find many discussions about BCG treatment (https://connect.mayoclinic.org/group/bladder-cancer/)

I'm tagging fellow members like @rose1966 @saaron79 @abhhayspandey @jowilliams1 @hmmm @janiem @sepdvm, who have experience with muscle-invasive bladder cancer.

@grannykaka, when will you start BCG treatments?

My dad has muscle invasive cancer. He had his bladder removed moved a few months ago and will start immunotherapy in a couple of weeks.

I was diagnosed in October last year with a form of Stage 3 bladder cancer, being high-grade aggressive squamous cell carcinoma I had 4 tumors of which 1 was muscle invasive. In December, 3 tumors were removed during TURBT surgery and in February I had a RC. I am now doing immunotherapy monthly for a year to help stop any new cell
growth.

Hello! I'm sorry you're going through all of this. I had high grade muscle invasive. My doctors went straight to chemo then a cystoscopy for a resolution. There really wasn't another good choice in my situation. Have they mentioned bladder removal? Is it low or high grade?

My husband just had a Radical Cystectomy on May 29th. He’ll be coming home tomorrow. He had been diagnosed with Stage 2 MIBC. He had 8 hookups for Gem/Cis and a month later the RC. He seems to be doing well. Still has JP drain and gives himself shots to prevent blood clots for a month…also, getting used to the urostomy pouch. He said he needs help getting up , but once he’s up…he can walk and walk. I have soups, Protein Shakes, mashed potato’s, applesauce, pancakes, and 3 Liters of water a day. Now we are waiting for the Pathology Report. The surgeon said he took out all lymph nodes and saw no metastatic cancer.

Hello @grannykaka. Welcome to Mayo Connect bladder cancer. Having muscle invasive aggressive urothelial cell carcinoma is a higher risk of recurrence and metastasis. My husband had this diagnosis 5 years ago. He had surgery to remove the mass because it was in a pouch off the side of the bladder, so that pouch and many lymph nodes were removed (a partial cystectomy). He then had chemo and then BCG but new areas in his bladder kept recurring. After a couple years of this pattern with subsequent TURBTS to remove or cauterize the spots, and a trial on Keytruda, an immunotherapy approved for bladder cancer, tumors kept recurring. He had his bladder removed and a neobladder formed instead of an ostomy. Bladder cancer likes to return and I would be asking your medical team about Keytruda or other treatments. If necessary look into a referral for a second opinion, preferably at a large cancer center or referral hospital. Do you have a large cancer center nearby?