Thank you for your kind thoughts. I’m not in the US and it’s not really a case of not having the expertise, but more that cardiac research around the world still has a long way to go.
Why do you believe your condition is rare? What have they said so far about what is happening with your heart?
My heart is sound according to Cleveland Clinic. The palpitations I think are part of the autonomic symptoms that I have. I think I have a neurological condition known as MSA. I have ongoing testing to determine if my fears are correct. It is an ugly to say the least condition and it is fatal. I pray I do not have it. And, in so many health problems like you wrote, we have a long way to go to offer treatments. There is no treatment other than palliative for MSA. If your ailment is rare, sadly, the incentive to find a cure is reduced. Hoping you have some hope for improvement. ❤️
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My heart is sound according to Cleveland Clinic. The palpitations I think are part of the autonomic symptoms that I have. I think I have a neurological condition known as MSA. I have ongoing testing to determine if my fears are correct. It is an ugly to say the least condition and it is fatal. I pray I do not have it. And, in so many health problems like you wrote, we have a long way to go to offer treatments. There is no treatment other than palliative for MSA. If your ailment is rare, sadly, the incentive to find a cure is reduced. Hoping you have some hope for improvement. ❤️
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1 ReactionI take Unisom and it helps to fall asleep.
At one time I was getting a lot of pvc's. I had to sleep on my right side.
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1 ReactionWhat changed for you?
I eat more pumpkin seeds and nuts now. That may help. Magnesium and potassium are supposed to help. I'm also trying to reduce stress.