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Just started Qulipta-any experiences to share?
I have been feeling pretty awful with migraine, cervicogenic headaches and fatigue from those issues & breast cancer drugs. Was taking Nurtec with not great results but now been switched to Qulipta. I hate adding another daily drug to my already beat-up body (I am 71) Also this is all making me anxious & they want to give me another pill for that! Looking for some advice as to how to fight the fatigue and other side effects & wondering if the drugs are worth it. So far I’m not any better. On day 5 of 30 mg Qulipta. On Nebebolol beta blocker, Ibrance & Exemestane for cancer & a blood thinner. Thanks for any thoughts.
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Did not work for me, nor did the Nurtec.
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1 ReactionQulipta was a God send to me, but my history is not nearly as complicated as yours. I went from 15-20 days of headache/month to fewer than 5 - I hope it never stops working! I didn’t notice side effects, but am questioning now if it may be causing some sleepiness.
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4 ReactionsI have been on Qulipta for a year. It has reduced my headaches some with no side effects. My Dr suggested I add Nurtec to it when headaches come but I don’t like how it makes me feel. 1/2 Sumatriptan will help but it does make you tired, and it takes a while to kick in.
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1 ReactionI have been on 60mg of Qulipta for about a month & I think my headaches are more frequent. Today I had one with a visual aura that hasn’t happened to me in months. I know this med might take a while to work &I have an appointment with the PA on 6/24 wonder if I should keep going till then? So far Nurtec& Ubrelvy have not helped either. Ideas?
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1 ReactionLike you, I thought Qulipta did nothing for me but make me more dizzy. I tried Nurtec and Ubelvy and Viapta. I also tried about 50 other medications off-label. I'm afraid this is my new life in pain!
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2 ReactionsI feel pretty much the same.
I just tried a new medicine called Ergomar (plus I do Vyepti, Ajovy and do Botox every 90 days), and I think Ergomar may be working as a rescue drug. I also have used Topiramate as a preventative. I think that works, but it constipates me, so I quit taking it,
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2 ReactionsI was on Sumatriptan until I reached the age of 60. At 60 my doctor took me off due to Triptans being known to cause stroke in people over 60. It really didn’t help much anyway.
I was prescribed Nurtec and Quilipta but my copay is $400.00 for 9 pills per month so I opted out.
I have been getting Botox injections for a couple of years. It took a year to see progress and then another year before it stopped working. My last injections were delivered to my neck rather than head/face and it really helped for 2 months now into month 3 I’m back to chronic 10 pain. I’m looking forward to my next injections for sure. They can only do them every 3 months.
You might want to talk to your doctor about referral to a neurologist that specializes in migraines?
MOJO
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1 ReactionThank you so much for the information. I do see a neuro who specializes in headaches. She is hard to see because she is so busy but I do have an appointment with her PA this month & I want to talk to her about Botox & nerve blocks. I’m finding the meds to be useless with side effects. Did you have any side effects from the Botox?
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3 ReactionsI didn’t have any side effects from the Botox at all.
But I know for certain that having it in my neck helped way more than in my head and face!
My neurologist doesn’t do my treatments, his wife, a PA takes care of his migraine patients. I am very happy with her and she is a migraine sufferer too so she understands and knows how to word her reports for the insurance.
I am on Medicare plus a supplemental and my copay is $250.00 every 3 months for the Botox.
MOJO