Alzheimers care and treatments: Consult with Mayo Clinic?

Posted by japlok @japlok, May 12 1:27pm

My wife was just diagnosed with AD and is currently on Donepezil. She will be taking a MMSE test in a couple of weeks to see if she qualifies for Leqembi or Kisunla. Does anyone recommend trying to get a consultation with a doctor at the Mayo in MN or stick with my current doctor? I'm looking for the best 'team' to help my wife and don't want to miss any opportunity if one is there. I have done nothing but read about the disease and tried to find any information on advancements to cure AD or slow it down significantly but haven't found anything that is promising. I read about using ultrasound to allow for the medication to attack the plaque quicker and also something called Perispinal Etanercept where an FDA approved drug for arthritis is used for AD treatment. I just need help with our path forward.

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moea | @moea | May 27 11:04am

@japlok Kudos to you for doing all the work to ensure the best outcome for your spouse. My husband was diagnosed with AD in December 2024 and is currently taking Leqembi. The infusions are twice per month for 18 months. I would definitely get your loved one tested at Mayo Clinic to see if she qualifies for treatment. If you decide to begin the infusions of the approved drugs, hopefully you can do this close to your home in Indiana. Best of luck and keep us posted. I have found it can be helpful to read the posts of others on similar paths.

japlok | @japlok | May 27 1:48pm

In reply to @colleenyoung "@japlok, I'd like to add my welcome. You have received good information from other members and..." + (show)

@colleenyoung, Thank you for all of the additional information. I am so grateful for the kind and thoughtful people like you and others posting here to help me and my wife get through this.