1. < Transplants

Just wondering...sometimes after the call, it doesn't work out?

Posted by jodeej @jodeej, Jul 5, 2018

My husband is waiting for a liver. I've read and heard that sometimes you get the call only to find out after you get to the hospital that it won't work. Does this happen often? I don't remember being told this in any of our appointments. I want my husband to be prepared in case it happens to him.
Blessings,
JoDee

Interested in more discussions like this? Go to the Transplants Support Group.

pgruetz | @pgruetz | 19 hours ago
In reply to @jaimedavis93 "I was put on the liver transplant waiting list 12/4/24… I received a call with an..." + (show)
@jaimedavis93

I was put on the liver transplant waiting list 12/4/24… I received a call with an offer Wednesday 5/21/25… I waited for the call to tell me when to go to the hospital… Unfortunately, once they had the liver in the OR , the procurement team didn’t like what they saw and decided that was not the liver for me… I was obviously disappointed but I want the surgeons to be 100 % sure that the liver they transplant me with is the best for for me… I do know that I am at the top of the list and they feel they will have one for me very soon… I will continue to remain optimistic and patient… I think waiting and the chances of having a “dry run” is the worst!!!

Jump to this post

Be patient trust me you only want to get this done once the doctors know what they are doing you want the best one possible, I waited a few months I was near death but after you get it done a huge anxiety burden will be gone hopefully you get it soon

REPLY
maggieinfp | @maggieinfp | 18 hours ago
In reply to @jodeej "@myson and @mauraacro Thank you for the prayers! I always pray for everyone on here as..." + (show)
@jodeej

@myson and @mauraacro
Thank you for the prayers! I always pray for everyone on here as these boards are such a blessing.
I've posted on FB about what is going on, but haven't specifically asked for a donor. We have head a couple people ask what they need to do, though. I haven't heard more from them after that. He is still doing quite well at this point so we will keep waiting.
Blessings,
JoDee

Jump to this post

Jodee, your transplant team should have provided a phone number for potential donors to call. You could post it on social media.

I got my first call for a transplant and had a bag packed only to be told I was the #2. Got the second call 6 months later and all went well. It WILL happen 🤞

REPLY
rachel5239 | @rachel5239 | 17 hours ago
In reply to @rosemarya "@jaimedavis93, Hugs to you, dear liver transplant friend. Your experience is definitely disappointng and I can..." + (show)
@rosemarya

@jaimedavis93, Hugs to you, dear liver transplant friend. Your experience is definitely disappointng and I can tell by reading your experience, that you understand the reason for this in your mind. However the emotional disapppointment is the worst, even though you are positively counting it as a dry run.

Had you already reported to the transplant center? Are you at a distance from the transplant center?

Jump to this post

The same thing happened to me. 2 weeks later I had my transplant and the liver must have been a great one because I am 38 years post transplant on June 9th. Wish you a wonderful transplant journey. There is life after transplant.

REPLY
Mentor
Ginger, Volunteer Mentor | @gingerw | 10 hours ago
In reply to @jaimedavis93 "I was put on the liver transplant waiting list 12/4/24… I received a call with an..." + (show)
@jaimedavis93

I was put on the liver transplant waiting list 12/4/24… I received a call with an offer Wednesday 5/21/25… I waited for the call to tell me when to go to the hospital… Unfortunately, once they had the liver in the OR , the procurement team didn’t like what they saw and decided that was not the liver for me… I was obviously disappointed but I want the surgeons to be 100 % sure that the liver they transplant me with is the best for for me… I do know that I am at the top of the list and they feel they will have one for me very soon… I will continue to remain optimistic and patient… I think waiting and the chances of having a “dry run” is the worst!!!

Jump to this post

@jaimedavis93 I am sitting here with fingers crossed the call comes in soon for you. The saying "all in due time" seems to fit here, doesn't it?!

My husband is a kidney transplant recipient. He was offered a kidney but had to decline it because he was on the last 3 days of a 14 day antibiotic regiment for a diverticulitis infection. So, someone else took his place. The nurses assured him he would be getting "the call" soon. He did, 2 weeks later! He and another patient received deceased donor kidneys from the same donor. That was 1 October 2016.

Gentle hugs being sent for getting that call soon, and patience!
Ginger

REPLY
View MoreView Less
Please sign in or register to post a reply.