Just wondering...sometimes after the call, it doesn't work out?

@keggebraaten So happy to hear that this place will be demolished/replaced. I knew it wasn't a matter of just housekeeping; so much needed replaced. We did rent an apartment for 3 months which was wonderful (Ocean Park).

@jeanne5009 It is advertised as a Marriott property. So convenient for very early tests but no place for anyone with respiratory issues (or anything else). It was very expensive -- appalling.

I have been called for liver 6 times. Been sent home each time. So it doesn't always work out

renaefield @renaefield, Welcome to Connect. I am a liver/kidney recipient, but I am not sure that I can begin to imagine the disappointment you must have experienced. (I did learn after my transplant that my team had rejected organs for me on several occasions).

Connect is where we can share our experience and learn from each other. In the transplant group there is a wide variety of topics and conversatioins happening. I want you to know that you are welcome to join in anywhere, and at any time with your thoughts or questions, or simply to take to others who are like yourself.

How far do you live from your transplant center?
How do you feel? Have you been given any indicatioin of why they sent you home, or how long you might have to wait until transplant?

@renaefield I can only imagine the disappointment to be sent home after having your hopes up. I have heard that can happen quite a lot. I was fortunate, it never did for me.
I don't think my transplant center ever did reject an organ that they were considering for me, because I am sure they would have called as soon as one was available for me to be there and ready if there was an organ. As it was, when I got the call they did not have the liver in my transplant center yet. They told me to get there right away, so I did, getting there at about 2:30 or 3:00 in the afternoon. The transplant did not occur until 12:30 A.M.
@rosemarya asks some good questions, I am interested in also.
JK

@renaefield I can't imagine being called and then sent home 6 times! I'm so thankful my husband was blessed to get his transplant the first call. I am also curious as to why you've had so many calls. Prayers you get your transplant soon.
Blessings in your journey,
JoDee

I was put on the liver transplant waiting list 12/4/24… I received a call with an offer Wednesday 5/21/25… I waited for the call to tell me when to go to the hospital… Unfortunately, once they had the liver in the OR , the procurement team didn’t like what they saw and decided that was not the liver for me… I was obviously disappointed but I want the surgeons to be 100 % sure that the liver they transplant me with is the best for for me… I do know that I am at the top of the list and they feel they will have one for me very soon… I will continue to remain optimistic and patient… I think waiting and the chances of having a “dry run” is the worst!!!

@jaimedavis93, Hugs to you, dear liver transplant friend. Your experience is definitely disappointng and I can tell by reading your experience, that you understand the reason for this in your mind. However the emotional disapppointment is the worst, even though you are positively counting it as a dry run.

Had you already reported to the transplant center? Are you at a distance from the transplant center?

No, I hadn’t reported to the transplant center… Fortunately, I live only 20mins from Mayo Clinic in Jacksonville… So, that’s a plus for sure!!!!

I live in CO. About a year ago I got a call to come down to Mayo AZ within 24hrs but not to come just yet. Hrs later the liver was deemed not good. But I got a call within about a month to come down and had a successful transplant. The first call was a disappoint but the 2nd was worth the wait. I think it's a good sign that you got called. Hopefully you won't need to wait much longer. Best of luck. (----: