I was diagnosed very recently that my aorta was enlaged

Posted by concern @concern, May 14 10:22am

Just by chance l had CT scan done for another issue. But when the results came back it showed l had a borderline descended aorta size 4.5 cc. Not sure what that means. I'm scheduled to see a cardiologist. I'm 63 never really had any serious heart trouble. But I'm concerned about this. Can someone please explain this to me.

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@concern

I finally got into see an experience cardiologist Monday 19th. Got an echo done that day results back showing 4.0 cm. But my CT scan done in the hospital in February 2025 showed 4.5 cm ascending aorta. Now I have to wait a month until l can get scheduled for another CT scan. He doesn't feel it's urgent. The nurse l spoke to said the CT scan number was more reliable.
At the rate it's growing l hope nothing will happen until l can get checked again June 19 it's kind of scary not knowing. Any advice I'm really stressing over this.

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You are assuming it’s growing fast (you said “at the rate is growing”) , but again you are basing that on two different measurements. Actually the fact that both echos show the same size may mean it actually hasn’t grown. It is true that the CT is more accurate , so wait until you get the second CT and get the feedback from the cardiologist,

I know it is hard not to be anxious but try not to focus on bits of information, you are doing the right things, now let the specialist get to the conclusion and give you his/her advice

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@houston13

Just to add to @moonboy comments, the aorta leaves the heart “ascending” and then bends down and “descends “ towards the abdomen, descending aneurysms have more options for repairs than ascending (open heart). Critical size start when the dilation starts approaching 5.0 cm. As Moonboy said, find a cardiologist who is an aortic disease specialist, it makes a huge difference.
Watch your BP, keep yourself active and treat your body well, you want to be in the best shape possible when and if you ever need surgery, again abdominal aneurysms (don’t know where on the descending side yours is) normally can be fixed with less traumatic surgeries than ascending, but surgery after all.
Take care and make sure you get monitored periodically just as Moonboy suggested.
Mine was repaired 5 years ago at 5.2 cm, found after an MTB accident , mine was ascending so I needed Open Heart. Knowing you have it is a blessing as you can monitor and plan.

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Hello - curious, were you able to return to MTN biking or cycling following recovery?

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@anthonytgbtg123

Hello - curious, were you able to return to MTN biking or cycling following recovery?

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I did, I do more trail biking now though, and 2 (or 3) intense spinning sessions a week

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I just joined this group today and so glad to see all those comments.
I had an echocardiogram and that’s where my Cardiologist told me that I have enlarge aorta. I have a CT scan scheduled on Thursday to find out the size and not sure if abdominal but sometimes I feel pain in my abdomen.
Thank you everyone for your comments.

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@houston13

I did, I do more trail biking now though, and 2 (or 3) intense spinning sessions a week

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Wow! This is great news! I feel glad to know you have returned to activities you enjoy. I walk/run/jog 3 times per week and enter one 5K road race per month. I cycle less these days and suspect I would return. I work in the arena of health and human performance; as such, my days are active. I am
considering a 3rd opinion at Cleveland Clinic. Are you willing to share where you had your surgery and with whom - ? - is that a fair question on this forum? I appreciate your support -

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@anthonytgbtg123

Wow! This is great news! I feel glad to know you have returned to activities you enjoy. I walk/run/jog 3 times per week and enter one 5K road race per month. I cycle less these days and suspect I would return. I work in the arena of health and human performance; as such, my days are active. I am
considering a 3rd opinion at Cleveland Clinic. Are you willing to share where you had your surgery and with whom - ? - is that a fair question on this forum? I appreciate your support -

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Of course, I have shared that info before I think it is incredibly appropriate in this forum, I live in Houston so I had my surgery at the Texas Medical Center, my surgeon was Dr Anthony Estrera, not only a wonderful surgeon (probably the best in Houston), but the nicest person. My cardiologist is Dr Siddharth Prakash, who is an aortic disease specialist (referred by Dr Estrera), couldn’t have asked for someone more knowledgeable about the subject, I see him every year, I also have a BAV which was left in place during surgery as it was still highly functional, will need replacement at some point, so far all the exercise has kept the deterioration to a minimum.

I was very active before the surgery and I am probably even more active now (more time since I took early retirement), I exercise 5 days a week on average, I cannot run anymore due to the leg fracture from my accident (how they found the aneurysm). I had two major surgeries in 2 months first one to repair my leg, and then Open Heart to repair the aneurysm.

Stay active!! And feel free to ask any other questions

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@houston13

Of course, I have shared that info before I think it is incredibly appropriate in this forum, I live in Houston so I had my surgery at the Texas Medical Center, my surgeon was Dr Anthony Estrera, not only a wonderful surgeon (probably the best in Houston), but the nicest person. My cardiologist is Dr Siddharth Prakash, who is an aortic disease specialist (referred by Dr Estrera), couldn’t have asked for someone more knowledgeable about the subject, I see him every year, I also have a BAV which was left in place during surgery as it was still highly functional, will need replacement at some point, so far all the exercise has kept the deterioration to a minimum.

I was very active before the surgery and I am probably even more active now (more time since I took early retirement), I exercise 5 days a week on average, I cannot run anymore due to the leg fracture from my accident (how they found the aneurysm). I had two major surgeries in 2 months first one to repair my leg, and then Open Heart to repair the aneurysm.

Stay active!! And feel free to ask any other questions

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Thank you for sharing. I live in Vermont. I was initially monitored at Dartmouth and recently transferred or received a second opinion at Massachusetts General Hospital. I feel glad to know you have rewarding relationships with your physicians. I am considering one more opinion at Cleveland. I feel grateful for having found this forum and I appreciate your willingness for me to continue to ask questions as needed. Enjoy this day -

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@houston13

Of course, I have shared that info before I think it is incredibly appropriate in this forum, I live in Houston so I had my surgery at the Texas Medical Center, my surgeon was Dr Anthony Estrera, not only a wonderful surgeon (probably the best in Houston), but the nicest person. My cardiologist is Dr Siddharth Prakash, who is an aortic disease specialist (referred by Dr Estrera), couldn’t have asked for someone more knowledgeable about the subject, I see him every year, I also have a BAV which was left in place during surgery as it was still highly functional, will need replacement at some point, so far all the exercise has kept the deterioration to a minimum.

I was very active before the surgery and I am probably even more active now (more time since I took early retirement), I exercise 5 days a week on average, I cannot run anymore due to the leg fracture from my accident (how they found the aneurysm). I had two major surgeries in 2 months first one to repair my leg, and then Open Heart to repair the aneurysm.

Stay active!! And feel free to ask any other questions

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You're blessed to live in an area with such high quality medical care . Unfortunately l live in Daphne,Al. I love the community but the medical care here is in sad shape. I read were someone just posted said they went to their cardiologist and had an echo that and set for a CT scan on Thursday. Good for them. Just for an example of how things are I met with cardiologist on Monday 19th. I had to almost beg for him to any testing by the grace of the Lord he agreed to do an echo. After getting my results back from my echo he wants to do a CT scan. Hd doesn't seemed to concern because it'd not scheduled until June 17, 2025. I hope nothing happens before l can get the scan done. So for everyone living in an area of the country that has better health care be thankful.

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I know l have asked this question in different ways but l just really need some help. Some of you are very knowledgeable about my issue. Please help me understand this so l can possibly get some peace of mind. Here we go so how can you have an echo done July 2024 and it showed my ascending aorta was slightly enlarged 4.0 cm. The cardiologist explained it but said I had absolutely nothing to be concerned about. His statement was will just keep an eye on. No CT scan order no other tests. He said l didn't need to change anything. So I use to go to the gym 3-4 times a week. Also did cardio some. Never had a problem. January of 2025 l had COVID for the second time. I didn't have serious symptoms but since having COVID l have never regain my energy. Went to my GP in February 14, 2025. He ran numerous blood tests all normal. He had answer for my extreme fatigue. He stated if l didn't get to feeling better go to the ER, which is exactly what I did that same day. That is where l had a CT scan and it showed l had a borderline dialating ascending aorta 4.5 cm. The ER doctor never mentioned that to me. I was told all my tests were okay couldn't find any heart issues sent home. This was never followed up on because the information was never sent to my cardiologist's office. I never heard anything from the cardiologist so l figured everything was okay. But l being to research this and discovered it wasn't normal to have this. Naturally l begin to worry about it. I knew l needed another cardiologist. So on Monday 19, 2025. I met with a new cardiologist gave him all my previous tests results. He did an echo, which l was told
showed my aorta was 4.0 cm. He has me scheduled for a CT scan but not until June 17th, 2025. Can someone please give me their opinion on how my aorta would show 4.0 in July 2024. Show 4.5 in February 2025 from the CT scan. Then on Monday, May 19th, 2025. The echo showed 4.0. I don't know what to do l'm afraid because I don't know what my actual number may be. In the meantime l haven't done any type of physical activity. I feel like I'm going crazy not knowing. Can anyone give some opinions. I would greatly appreciate it

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I am so sorry you are feeling such anxiety….i know how awful that is and you just want everything done yesterday so you can have some answers right? My husband has an abdominal aortic aneurysm. We were told they just watch them until they are 5 centimeters and then they discuss surgery to fix them . My husband has an unltrasound every year to measure it and so far it is under 5. We also found that the radiologist gave us one figure and the surgeon felt it was a bit smaller…so I think it depends who is reading the results and also possibly worrying about liability they may say it’s a bit larger just to make sure ya know? They don’t want to make a mistake. It might help to write down all your questions so you have them in your hand when you see the doc . Also they did not restrict my husband.,,just said might not be a good idea to jerk 100 lbs but encouraged him to continue exercising and lifting free weights (10 pounds. I hope this helps you. Take care

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