Why do I have constant pain and constipation when ulcerative colitis i

Posted by mariajean03 @mariajean03, May 5 9:10pm

I was diagnosed with ulcerative colitis in 2016. Mayo put me on Entyvio in 2018 and I have been in remission ever since yet I suffer almost daily from abdominal pain and bloating with constipation. My doctor wants me to go back to Mayo for IBS but that is out of the question. Colace can be too hard on me at times but doctor says to take it daily as needed. Can anyone relate to any of this cycle. Thanks.

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That helps a lot . Thanks. I love those muffins!

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I was diagnosed and hospitalized for nonspecific colitis with severe diarrhea and dehydration rece.ntly. I have EPI and was on 36000 units of pancreatic enzymes for the lipase. Then developed vasculitis and took high dose steroids. Was on mesalamine for the colitis. That put everything into remission and now I am back to constipatiionn, my usual routine for all my life because of redundant colon. I can go over a week without BM. Terrrible! I’m off the mesalamine, dropped pancreatic enzymes in 3000 units twice daily and take miralax. Supposed to be on low fiber low fat diet but I miss the fiber! It’s all confusing to be going from one extreme to the other!

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@slkanowitz

I was diagnosed and hospitalized for nonspecific colitis with severe diarrhea and dehydration rece.ntly. I have EPI and was on 36000 units of pancreatic enzymes for the lipase. Then developed vasculitis and took high dose steroids. Was on mesalamine for the colitis. That put everything into remission and now I am back to constipatiionn, my usual routine for all my life because of redundant colon. I can go over a week without BM. Terrrible! I’m off the mesalamine, dropped pancreatic enzymes in 3000 units twice daily and take miralax. Supposed to be on low fiber low fat diet but I miss the fiber! It’s all confusing to be going from one extreme to the other!

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I don't know if I have a redundant colon but I will ask Dr. Miralax makes me really bloated and gassey. I agree. It's frustrating and painful. Can't even eat what I use to love. Colitis is the worst and very isolating.

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@slkanowitz

I was diagnosed and hospitalized for nonspecific colitis with severe diarrhea and dehydration rece.ntly. I have EPI and was on 36000 units of pancreatic enzymes for the lipase. Then developed vasculitis and took high dose steroids. Was on mesalamine for the colitis. That put everything into remission and now I am back to constipatiionn, my usual routine for all my life because of redundant colon. I can go over a week without BM. Terrrible! I’m off the mesalamine, dropped pancreatic enzymes in 3000 units twice daily and take miralax. Supposed to be on low fiber low fat diet but I miss the fiber! It’s all confusing to be going from one extreme to the other!

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It sounds like your gut microbiome may be in a very poor state. Have you heard of SBO (small bowel bacteria overgrowth) or leaky gut? There are many ways to diagnose and treat such a thing if you have it. A functional medicine Dr tends to be best with these issues but insurance dos not cover them. I listen to Dr Mark Hyman podcasts and have read his books. He is truly an expert on all things like this. Check him out. He is very reputable and A leader in the functional medicine space. Fixing the root cause is key and that is what functional medicine focuses on. I am taking magnesium citrate by pure encapsulations and it is really helping with my constipation. I am also taking Microbiome Rejuvenate by Big Bold health.

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I've been tested for SIBO and was negative. I'm under extreme stress daily. That could be a root cause. But thanks. I will check out his book.

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Has anyone tried, (i use Pure brand) digestive enzymes? I'm recently diagnosed with Hashimoto's from my low thyroid. The symptoms from my inflamation, were never addressed through a few different internists, over 15 years. I believe a lot of illness happens from not absorbing vitamins and minerals from digestive issues.
I've only discovered this through finding a holistic doctor that analyzes health with a cheek swab. The digestive enzymes, bioplasma cell salts, and eating for my blood type turned my health around very quickly. Seeing a results in days. As the next few weeks flew by, weight falling off, and energy levels changing it is amazing. Im 58, and still trying to reverse brain fog and finding the right internist. Please give these natural changes a chance. I'm so grateful to be as healthy as I am so quickly, after years of crying to doctors.

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Can you ask your holistic Dr. About Emma relief to correct gut microbiome? Just heard about it from a nurse. Thanks!

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@lilly315

Has anyone tried, (i use Pure brand) digestive enzymes? I'm recently diagnosed with Hashimoto's from my low thyroid. The symptoms from my inflamation, were never addressed through a few different internists, over 15 years. I believe a lot of illness happens from not absorbing vitamins and minerals from digestive issues.
I've only discovered this through finding a holistic doctor that analyzes health with a cheek swab. The digestive enzymes, bioplasma cell salts, and eating for my blood type turned my health around very quickly. Seeing a results in days. As the next few weeks flew by, weight falling off, and energy levels changing it is amazing. Im 58, and still trying to reverse brain fog and finding the right internist. Please give these natural changes a chance. I'm so grateful to be as healthy as I am so quickly, after years of crying to doctors.

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@itsmeagain
Where are you living?

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@itsmeagain

@itsmeagain
Where are you living?

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I live in Des Moines ,Ia in a mentally abusive marriage in our house. He gaslights me and he's always the savior. No kids or sibling support. That's extreme stress for a messed up gut. I'm sorry. I may have answered the wrong person! I'm disabled and tired. Need a break but have no where to go. My prayers seem not to be answered. My volunteer work @ nursing home ended where my best friend passed. I need prayer warriors out there! Thanks for letting me vent.

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@mariajean03

I live in Des Moines ,Ia in a mentally abusive marriage in our house. He gaslights me and he's always the savior. No kids or sibling support. That's extreme stress for a messed up gut. I'm sorry. I may have answered the wrong person! I'm disabled and tired. Need a break but have no where to go. My prayers seem not to be answered. My volunteer work @ nursing home ended where my best friend passed. I need prayer warriors out there! Thanks for letting me vent.

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Prayer warrior here for you!! Sometimes God's timing is not ours.. I've been standing in faith now for over 5 years..and am seeing breakthrus one at a time.. and grateful as I was in bed most of the time for about 3 years.. calling your miracle in NOW in Jesus mighty name !!

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