Anyone have Laryngeal Sensory Neuropathy?

Posted by tkubby @tkubby, Jan 23, 2019

I am looking to talk with anyone that has been told they have larynx sensory neuropathy. In other words, over active nerves in the larynx.

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Has anyone had a positive, long term effect with laryngeal blocks for chronic throat clearing? That is my next step after trying all the already mentioned treatments and seeing multiple specialists.

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I have also been through many treatments and specialists. As a last resort, I had both left and right side laryngeal nerve blocks last year, but unfortunately they were ineffective. I wish you luck.

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@wendymb

There is a spot behind the earlobe and above the jaw which when pressure is applied with your index finger can ease a laryngospasm (when it feels like you can’t breathe). Not sure if that’s what you mean when talking about a coughing spasm?

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Thanks!

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@wendymb

There is a spot behind the earlobe and above the jaw which when pressure is applied with your index finger can ease a laryngospasm (when it feels like you can’t breathe). Not sure if that’s what you mean when talking about a coughing spasm?

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Google Larson's Maneuver. The points are behind the ear lobes. Hope this helps.

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@bubbie2

Google Larson's Maneuver. The points are behind the ear lobes. Hope this helps.

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Thank you!

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@onmayo

I have also been through many treatments and specialists. As a last resort, I had both left and right side laryngeal nerve blocks last year, but unfortunately they were ineffective. I wish you luck.

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Thank you very much. I do hope you find relief as well.

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Hello. I found this post because I have had some laryngeal spasms that scared me to death. If you've ever had one of these, you cannot breathe or talk for many seconds, even minutes. There is so much helpful information here that I am copying and pasting into my research, and I thank you all for sharing your experiences, successes, and warnings.

I have had issues with throat clearning, lump in throat, and the spasms for over 20 years, but I am fortunate in that they are extremely annoying, at times absolutely terrifying, but not completely intolerable as you all describe. I currently get the cough with phlegm and layngeal spasms some nights where I can't breath and tears stream down my face, and I get a cough/ raspy voice, throat clearing/ lump in throat in the mornings.

Anyway, I am writing here to say that, for me, I believe it is a part of Vagus Nerve Malfunction. You can find articles about the symptoms that can be caused, and often they include issues with the Larynx, Esophagus, Reflux, and Chronic Cough.

I don't know what to do with this information exactly, but for those of you that are incredibly desparate, there may be some treatment involving your Vagus Nerve function that could help. Especially if you have any of the other symptoms associated with the Vagus Nerve Dysfunction. I am holding you guys all in the light and hoping that you don't lose your will to keep pushing to get help, and hoping the same for me as well.

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@johnbishop

Hello @arlinebringhurst, Welcome to Connect. It must be frustrating not being heard by your doctors. Have you thought about trying to get a second opinion to find a treatment? Here are some links from earlier in this discussion that may offer some help.

Use of Botulinum Toxin Type A for Chronic Cough
https://jamanetwork.com/journals/jamaotolaryngology/fullarticle/496294

Botox may quiet chronic cough
https://www.reuters.com/article/us-botox-cough/botox-may-quiet-chronic-cough-idUSTRE64Q5GQ20100527

Treatment of chronic neurogenic cough with in-office superior laryngeal nerve block.
https://www.ncbi.nlm.nih.gov/pubmed/29668037

@tkubby @mjahall and @kimduncan1211 may have some suggestions for you.

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I did the nerve blocks, still coughing. Been everywhere, Otolaryngologist, pulmonologist, chiropractor, Neurologist, Naturopaths, endocrinologist… and I cannot take a lot of the meds because of my genetic mutations.

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@dani1972lsn

I did the nerve blocks, still coughing. Been everywhere, Otolaryngologist, pulmonologist, chiropractor, Neurologist, Naturopaths, endocrinologist… and I cannot take a lot of the meds because of my genetic mutations.

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Welcome @dani1972lsn, Sorry to hear that you haven't found any relief after all the testing and treatments you have been through. Mayo Clinic has a special cough clinic if you haven't already tried something similar - https://www.mayoclinic.org/departments-centers/cough-clinic/overview/ovc-20399029. Have you thought about seeking help at a cough clinic?

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@johnbishop

Welcome @dani1972lsn, Sorry to hear that you haven't found any relief after all the testing and treatments you have been through. Mayo Clinic has a special cough clinic if you haven't already tried something similar - https://www.mayoclinic.org/departments-centers/cough-clinic/overview/ovc-20399029. Have you thought about seeking help at a cough clinic?

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I’ve tried it all… including a bronchoscopy twice. My lungs are great.

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