Pseudomanosis: what is your protocol/medications

Over the course of time, I was on Doripenem, Meropenem twice, Zosyn, and Cefepime. Each one was for at least three weeks and twice, the ID extended it for another week - I think the Doripenem and Cefepime because I hadn't cleared enough infection at the end of the third week. After each time, I usually had three or six good months until the cough came creeping back. That's why I am so thankful to be on the inhaled Colistin.

Were you hospitalized for the IV treatments each time or did they set you up to do it at home?

Irene,
Medicare is covering Cayston by part D. I had switched from Colistin to Cayston because I had gotten sick and ended up with fluid on my lungs (pleurisy) and had to have the fluid drained. I was hospitalized for 8 days and was very sick. Afterwards I started back on my schedule of taking Colistin which now made me short of breath after all those years of using it. My doctor didn’t know why. I assume my lungs were in bad shape afterwards and were still healing. So we tried the Tobi podhaler which also made me short of breath and was intolerable. Then my pulmo tried me on Tobi inhalation which I did not tolerate either. So finally with Cayston being approved by Medicare we tried that and I had no problem with it at all. So here I am hoping this lasts since I was only on it for 28 days. I’m off now and will start again I two weeks. I had no side effects and it helped with controlling pseudomonas…

My doctor at NJH has me on inhaled colisthemate two weeks on, two weeks off. It keeps my pseudomonas levels down to mild and without it goes back up to moderate. I have had no side effects at all and have doing it for 2-3 years.

My infection subsides and with much less coughing with Cipro antibiotics. I've used it twice and it's like a miracle. Gave up Trilegy and even my daily inhaler except for a dry cough and food obstruction. Not much phlegm and mostly clear, no brown or blood. He gave me Cipro when I was coughing up blood. Went away quickly.

I'm overweight. Is that the cause for shortness of breathe?. Can't walk far or and incline.

I have great success with infections and bloody phlegm with Cipro antibiotic.

Cipro is a miracle med for my bloody phlegm and other related mac and Psuedomonisis. I'm sorry you suffer from all your issues.

There can be a lot of reasons for breathlessness when walking, some related to weight/fitness level, others are indicators of specific health issues.

Have you been to a pulmonologist for a pulmonary function test to see how well your lungs are working?

Have you seen a cardiologist to see if the problem is with blood flow or heart function?

Yes and yes. I have BE and mac and Psuedomonisis but it's under control. It's so hard to lose any weight especially at age 77 with pain that hinders my walking plus shortness of breath. Would a pulmonologist recommend weightloss meds? I'm sure my pain is weight.