Two opposing recommendations on surgery

Posted by mleiva1234 @mleiva1234, May 8 11:52am

I am 57 and my aneurysm was discovered four years ago. My aneurysm grew this past year 0.4cm to 5.0cm and is 11cm in length. My heart surgeon is still in the wait it out mode but I went for a second opinion and this new doctor is telling me my risk of dissection with these measurements is 12-15% versus the risk of death from the surgery < 1%. He recommends I have the surgery and would not wait. So I have to decide whether to have the surgery sooner rather than later. I know I am delaying the inevitable but I am going for a third opinion on May 29. Not sure that changes the fact that I still need to make a decision. Like others have said the waiting is tough and puts your life on hold. That’s it just sharing. Thanks

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My thoughts totally!! I'm female 84yrs, I have root and ascending aorta aneurysm, and have been put on the wait and see list!!!!!! Both measuring 4.5cm. I'm pretty sure it's my age that is the problem. Kind of like I've been kicked to the curb!!!!!!!

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Profile picture for pamela78 @pamela78

It's so encouraging to hear success stories like yours, especially as I'm now 79 myself. I'm not at the threshold for surgery yet and I ask myself whether, if I get to 85, I'd be too old for a good outcome. Any oldsters out there who can share? I guess if there's no sharing, there are no survivors, which is an answer in itself. I'm not making my mind up now, of course, but if I'm even older than I am now, do I want to have a long, painful recovery just to come home and listen to more classical music?

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Dear Pamela,
You didn't tell the size of your Aneurysm.
If I'm telling you, I never had pain (except if I needed to caugh. Of course, I hugged myself).
Right after surgery, I got good pain killers, understandable. But they've been taken off after a week or so. Still no pain, a miracle to me.
All my organs kicked in again, right away in ICU, From there on, all my blood values were "excellent". I started Rehab the second day, a short distance walking, all went well.
8 days at the hospital room, and 8 days in inpatient Rehab at the same Mount Sinai Hospital.
I got a chair in my shower at home. So, I could independent shower and even washing my hair - avoiding stretching over head.
All I can say, I'm more than grateful, having back my life, without fear of the Aorta bursting. I couldn't even go on an airplane anymore.
I hope, helping getting more inside, God bless you.
Photo of scar after 4 weeks, and
In Rehab, second week post surgery, practicing getting in and out of a car, not using Elbows to push up

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Profile picture for celaud @celaud

Dear Pamela,
You didn't tell the size of your Aneurysm.
If I'm telling you, I never had pain (except if I needed to caugh. Of course, I hugged myself).
Right after surgery, I got good pain killers, understandable. But they've been taken off after a week or so. Still no pain, a miracle to me.
All my organs kicked in again, right away in ICU, From there on, all my blood values were "excellent". I started Rehab the second day, a short distance walking, all went well.
8 days at the hospital room, and 8 days in inpatient Rehab at the same Mount Sinai Hospital.
I got a chair in my shower at home. So, I could independent shower and even washing my hair - avoiding stretching over head.
All I can say, I'm more than grateful, having back my life, without fear of the Aorta bursting. I couldn't even go on an airplane anymore.
I hope, helping getting more inside, God bless you.
Photo of scar after 4 weeks, and
In Rehab, second week post surgery, practicing getting in and out of a car, not using Elbows to push up

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This is wonderful and you look great! My measurement is 4.2 and I'll have an echocardiogram and a CT scan in July. It will be my second scan and I'm eager to see if there's been any change in a year. This helps.

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Profile picture for pamela78 @pamela78

This is wonderful and you look great! My measurement is 4.2 and I'll have an echocardiogram and a CT scan in July. It will be my second scan and I'm eager to see if there's been any change in a year. This helps.

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Ok, 4.2 is acceptable to wait.
Mine changed by 1 mm in 6 month.

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Profile picture for claudiafoeh @claudiafoeh

Ok, 4.2 is acceptable to wait.
Mine changed by 1 mm in 6 month.

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Isn't that sort of fast?

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Profile picture for pamela78 @pamela78

It's so encouraging to hear success stories like yours, especially as I'm now 79 myself. I'm not at the threshold for surgery yet and I ask myself whether, if I get to 85, I'd be too old for a good outcome. Any oldsters out there who can share? I guess if there's no sharing, there are no survivors, which is an answer in itself. I'm not making my mind up now, of course, but if I'm even older than I am now, do I want to have a long, painful recovery just to come home and listen to more classical music?

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Hi panela78;
At 79, and not near the threshold for surgery, you are a candidate for starting to exercise. If you do you may make it to 85 and beyond without needing to concern yourself with surgery. If you do not, you may well be a candidate for surgery. I am not a doctor or a jock, but I started a lite exercise program a few years ago and I can say without hesitation that it has made all the difference in the world concerning my overall health. At 88 I am not lucky and do not have good genes. But I did make the decision to make exercise a part of my life and am eternally grateful that I did. I exercise at home while listening to classical music and you can too. Good Luck!

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Profile picture for pamela78 @pamela78

Isn't that sort of fast?

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Hi Pamela78: The generally accepted rule is 1/3 cm growth per year on average. So, it would take 3 years to make one cm. One cm = 10 mm, so 1 mm in 6 months is not something to be concerned with if you believe in the numbers and averages.
In your case, from 4.2 to 5.2 is still not at the surgery point which is 5.5. and that's not for 3 years from now, if you were average, which your not.
Again in your case; At the rate of 1 mm in 6 months. it would take 5 years just to get to 5.2 cm and you still have 1 and 1/2 years to decide on the surgery. If you start an exercise program, I bet you will go well beyond that without needing to worry about surgery.

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Profile picture for dew88 @dew88

Hi panela78;
At 79, and not near the threshold for surgery, you are a candidate for starting to exercise. If you do you may make it to 85 and beyond without needing to concern yourself with surgery. If you do not, you may well be a candidate for surgery. I am not a doctor or a jock, but I started a lite exercise program a few years ago and I can say without hesitation that it has made all the difference in the world concerning my overall health. At 88 I am not lucky and do not have good genes. But I did make the decision to make exercise a part of my life and am eternally grateful that I did. I exercise at home while listening to classical music and you can too. Good Luck!

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You've inspired me. I'm going to do what you say. What sort of exercises do you do?

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Profile picture for pamela78 @pamela78

You've inspired me. I'm going to do what you say. What sort of exercises do you do?

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Hi Pamela78;
I got on Amazon and found a simple rubber cable band system that I now use for muscle toning as opposed to building muscles as young people do. It is what we need to prevent falls and to just keep on doing the things we like without fear of getting hurt. The brand is ""Veick"" and the product is ""Exercise Bands"and instructions on how to use them. The cost is $17.99 to get more than you will need as you progress with your muscle toning program. Good decision.

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Profile picture for celaud @celaud

Dear Pamela,
You didn't tell the size of your Aneurysm.
If I'm telling you, I never had pain (except if I needed to caugh. Of course, I hugged myself).
Right after surgery, I got good pain killers, understandable. But they've been taken off after a week or so. Still no pain, a miracle to me.
All my organs kicked in again, right away in ICU, From there on, all my blood values were "excellent". I started Rehab the second day, a short distance walking, all went well.
8 days at the hospital room, and 8 days in inpatient Rehab at the same Mount Sinai Hospital.
I got a chair in my shower at home. So, I could independent shower and even washing my hair - avoiding stretching over head.
All I can say, I'm more than grateful, having back my life, without fear of the Aorta bursting. I couldn't even go on an airplane anymore.
I hope, helping getting more inside, God bless you.
Photo of scar after 4 weeks, and
In Rehab, second week post surgery, practicing getting in and out of a car, not using Elbows to push up

Jump to this post

Hi there,
I have 5.0-5.3cm (depends who's measuring!) ascending aortic aneurysm diagnosed this past January 2025. Surgery has been recommended but I'm holding off right now and pursuing a second opinion from a higher volume hospital/surgeon. I am so pleased to hear your surgery story and amazed at what a good experience you had overall! Very encouraging. Best wishes to you and congrats on doing so well in your recovery!

I'm most impressed with your minimal scar!! The scar is the least of my worries of course, but it's definitely a concern! Do you know what your surgeon used to close your sternum? My surgeon said she will be using wires. I'm worried I'll be able to feel them or that the "bumps" will show on my chest (I'm very thin and bony).

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