Dying Well

Posted by happykc @happykc, Apr 26 5:24pm

Does anyone know of a group, anywhere, who can support each other while dying in love and grace? I do not fear dying, for a number of reasons. It will come soon, and I hope I can welcome it, I've worked hard to get to this point. But this is the first time in my eight decades that I feel lonely. I would love to share feelings, experiences, etc. with other like minded folks, but no one in my periphery shares my joy at looking forward to the transition. Family would be horrified, friends terrified. I cannot discuss this with my therapist, he is terrified himself and would be sure I am depressed and possibly suicidal. I am not. I am not anxious to die, I love my life. I used to wonder why God kept me around so long, as everyone around me, even those younger, are passing. I'm thinking it might be the grand gift of the 'Golden Years', 'cuz I am loving these days! I am not anti aging, but have no interest in attempting to retain my youth or live forever. My attitude is "I'm ready whenever He is". Not a religious person, but one of great faith and spirituality. I've spent hours scrolling around to see if there is any entity, group or person who shares my feelings. All I find is stuff to support fear of death, and how to get over it. I'm over it, and have been for some time. I'm trying to age with love and gratitude, and meet the transition the same way. I live each day as joyfully as I can. I'm just kinda bummed that I have no one to share this joy with, who feels as I do. Life has taught me that shared experiences have such great value, but maybe not this? Maybe Mayo should consider a "Dying Well" support group. I can't believe I'm the only person out there. But if I tried to start one, OMG! Friends and family would plotz! I think I'm just tired of having to keep my feelings to myself. It's a long journey, and a great one, and I'd love to share with others like me, learn from each other, help each other along. Thanks to any who read this, and suggestions are welcome but don't be a wiseass.

Interested in more discussions like this? Go to the Aging Well Support Group.

Profile picture for lilymarie @lilymarie

Thank you for the kind and generous feedback. It is very true what you wrote and, like you (pretty sure), there have been many wonderful stories you now reflect on that were pretty miraculous. Such as it is with me and which is why I love being a caregiver. That sweet spot is what we wait for when we are paired with someone who is facing their next step forward into eternity. That sweet spot is what I look forward to and am grateful that, for whatever reason, it was me who was chosen for them. It took ten plus years for my client (beloved friend as I knew her since I was 13) to have NO anxiety any longer...her soul found the peace and her mind was healed. I miss my friend fiercely every day, and yet, my own heart is happy she is no longer in that state of anxiety. Peace, harmony, infinite well being...!

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In addition, thank you again for replying as it was very helpful to talk about it again to someone who truly understands this role as a caregiver. Thank you!

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What about hospice. When my mom was in her process of dying I kept asking my 2 health care professional sisters about requesting visits from hospice and both sisters told me that in order to get hospice visits you have to only gave 6 mos. To live and that had to be documented somehow from a doctor. I have always been the black sheep in my family and finally asked her doctor. Turns out they were both wrong. Some patients have had hospice visits for 2 years. There is no age or time left requirement. I called and they were there within 24 hours. I found them to be helpful and matter of fact when needed. I would reach out to them as of course they specialize in dying. We need to destigmatize the whole process so that talking about it does not make us out to be ghoulish. We will all get there and some people me included want to discuss.

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I don't think it is healthy to keep your thoughts to yourself. I do find mostly solace here on this site. I share when I think I have some thoughts. That others might find helpful. You should try to do the same. Someone always joins in and then you don't feel so alone

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Profile picture for happykc @happykc

Hi @cynthiaftaylor . I didn't mean to give the impression to you that I am not a believer. I'm sorry if I mislead you. My faith in God, and in the Holy Trinity is the strongest it's ever been. The words that speak to me are from St. Paul, "pray ceaselessly". And I do, doubt I would have made it this far on my own. I am planning on revisiting all of my advance directives this summer. I did them forever ago, and my wishes have not changed. But the laws do. I recently retired as an Eldercaregiver, my second career. I stopped because my last patient passed and I knew I was burnt out. Not on caregiving, I've loved all my folks to bits. I had to step away from the medical industry, because I was getting combative. I was also horrified by the rampant ageism in medicine. I sure didn't expect that. All my people have their ducks in a row, had advance directives, DNR, POA. Etc. Here in AZ we can file them with the AG's office, which is a lifesaver. I would make multiple copies, all signed and notarized. I would take them to their doctors' offices, and local hospital and request they be placed in the patient's chart. If it was a Vet, the VA got a set. I kept the originals, and several copies in file. Why? Because nobody reads anymore. If you don't have an advocate there hospitals routinely ignore the directives. I would show up, wave it all in staff's faces and that's when the combat commenced. "well, we've never seen this before". Try going beyond the first page in the chart, you morons. If a patient comes through ER, without said advocate, here's what happens. The race is on, to pad that hospital bill with useless diagnostics that cost a fortune. Setting the cost aside, I've seen patients in extremis, close to death get hustled all over town in ambulances for extra imaging, etc. Families getting hysterical, because their loved one's wishes are not being addressed or even considered. There are laws now, in most states, addressing this problem, but it is endemic to the elderly death experience. I had seen enough, and had to step away, for my own health and sanity. There are loopholes, even in DNR. Is she really dying? They have to make sure, before they can even look at the DNR. Let's do a bunch of tests and see. I hope your doc is still around to advocate for you, or a trustworthy family member or designee. It's dreadful time for families. They are bereft as it is, and under enormous stress. Which is the cue for everyone to pile on. The social worker, who is getting hassled by her bosses, to empty the bed. The insurance company reps, who come off ultra sincere while they tell you softly, that oh no, that isn't covered. They will ask the patient rep million stupid questions and then lie in the answers. It's always the next person in line's job to tell the family that what the previous said is incorrect, until your head spins! I am my family's patient rep, because I am the family pit bull. My daughter is starting to take over, even tho she's in poor health herself, but is finding her advocate's voice. And me, I'm done. No more doctors ('cept eyes and feet). No more invasive procedures, no more questionable meds. It's been five years now, and I am doing great, having taken the responsibility for my own self care. I was once a nurse, my mother was a nurse. I have two cousins' who are doctors. We're all on the same page with this stuff, and they are all over the US. Marcus Welby is long gone. Hospitals are for profit, Which means they answer to a Board of Investors who are only interested in profitability. And senior are the cash cows in that equation, for the Boomers are aging out, while the system is collapsing. Peace and Every Good! Mayo Rochester is the exception, I've heard, but Mayo Phoenix and Jacksonville are the same as everyone else.

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I am sorry if I implied you were Not a believer. I am just not a person who imposes my beliefs on others. I would have no way of knowing one way or other, so I spoke out of turn. We went through this with my parents who stated that they wouldn’t want life support , but didn’t know that they needed it in writing. My Dad died during a nap, and my Mom died after surgery for a broken thigh. I have 3 siblings and my sister who was delegated medical decision maker, had a very hard time letting her go. They died within 2 months of each other after 70 years of marriage. I would not push my sister or try to usurp her position. I did arrange for a hospice nurse to come and speak to her, and we sat with Mom for 5 hours once her breathing assistance was removed. She was fighting it. She also kept taking off her oxygen mask. She was semi conscious. So the 4=of us sat with Mom to let her know we were there for her and if she wanted to join Daddy it was okay. We played her favorite music and she smiled, as she went through the common death signals of staring off in the corner, and reaching up for whatever she was seeing. ( It was easier to imagine it was Daddy’s spirit coming to escort her home.) I just never want my family to have to go through that very sorrowful experience. But I am glad we did.

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Profile picture for amkie @amkie

I am 76. I love my life even though it is filled with physical pain right now. I live in hope that can be solved. Generally I'm in good health. I will live this life for as long as I have. I love my husband and he loves me. We have a wonderful family. I will die when I die. I hope I have time to say goodbye to my loved ones. I think. Sometimes though, when one is elderly, and you've talked fairly openly about death and life for others beyond your life, maybe just slipping away is the best. Not really a great shock or surprise. I've had my travel and adventures. Had a great career. Now, I find incredible joy in such simple things in life. Observing nature in minutia. Listeming to my family chat and laugh in the next room. Sharing a glass of wine with my dear friends. Reading a great novel. Trying to meet my couriosity needs about "stuff" Enoying the favorite things of ours with my husband of 55 years. That's all I want or need now, and until the day I die. Although, I hope this pain situation I have now can get resolved because having pain at this level, I could not live with.

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Hello, dear @amkie . Thank you for your beautiful words. I'm a bit slow getting back to folks, was completely overwhelmed by the number of responses, and had to turn the group off for a bit, to answer so much kindness and concern, love and support. I too live with chronic pain and completely understand where you are coming from. I'm happy that you have such a wonderful and long lasting marriage. I did not, and have chosen to live single, but I'm terribly happy with my life as it is right now. I do have children, grands and great grands, and I adore them all and are so blessed to have their love and support. I will pray that your pain gets mitigated, but in the meantime, I share your attitude. Everything you named, are also the things that bring me the most joy now. I'm often bed bound, and one night I was lying in bed at my son's house, and just listening to my family interact, kid each other and joke, brought me to tears of love and gratitude for just that precious moment. Peace and Every Good!

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Profile picture for alissahe @alissahe

There are trained professionals who specialize in positively facilitating the final stage of life.
I’m not sure what it’s called in English but I have a truly wonderful student (I’m a yoga teacher) who does this. From her stories, I think this is exactly what you’re looking for. Try googling it.

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Thank you for your response, @alissahe. As Miriam noted below, that is what we call a death doula, a woman who will help facilitate in the dying process. I had hoped to do some training in that field, when I retired from Eldercaregiving a couple of years ago, but decided against it, wisely noting my own aging and physical limitations. I think it is a wonderful service that good folks dedicate themselves to, so kudos to your student. And kudos to you as well! Yoga has sustained me for over 40 years! I'm prolly at my best now in reclined mountain, but I still cherish my other asanas and do what I can. I filmed myself a while back, and even proud warrior was pretty funny! Peace and Every Good!

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Profile picture for edsutton @edsutton

Some things I've done in preparation for dying:
A prepaid contract with the Neptune Society. All arrangements have been made and paid for collection of my body, filing of legal papers, funeral services and cremation. One phone call to the Neptune Society is all that is needed. < https://neptunesociety.com&gt;
I've made a simple box to hold my cremains with the cremains of by beloved dog, Hazel. I do need to talk with friends to ask their help in mixing and spreading our ashes along our favorite walk in the woods.
If I die first, Hazel's foster parents have agreed to adopt her.
I've completed the Get It Together notebook from Nolo Press. All the information and documents that will be needed to finish my business are in this book, in a fireproof container, and people know about it.
< https://www.nolo.com/search/products?query=Get+It+together&sub=www&gt;
I constantly try to reduce my possessions and bring order to what I keep. That's the hardest task!

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Good for you, @edsutton, for being so proactive, not just for yourself but for your dogger as well. I have done the same. And right you are, the decluttering is just a bear! I started two years ago, and now, after watching ton of stuff go out the door, I'm still at it. It's an ongoing thing for me, I think, to try and get as minimalist as possible. Dunno if I'll get there, but it keeps me busy and out of trouble! I've had the notebook sitting here forever, determined to get it done! Thanks for that reminder. Peace and Every Good!

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Dear HappyKC,
Thank you for responding. Your words were so lovely and heartwarming. I think we are on the same wavelength sister. I probably face a major back surgery for the 2nd time. So I need strength, hope, and wisdom in abundance right now. So I once again may live my happy, simple life with less pain I will work hard to get there. I wish you days of less pain and more of those simple joys of life. Warmest Regards.

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Hi all, I thought you might appreciate this interesting project that my friend, Kathy Kastner, does. She takes minature white boards to conferences and patient gatherings with a simple fill in the blank question:

I want to __________________ until I die.

It is so thought provoking and really makes people ponder what is important to them. And the end result when they land on their choice is a smile and bright eyes. Check out the article and the smiles:

- ‘I want to pat dogs until I die’: End-of-life planning should be more than just Living Wills https://healthydebate.ca/2025/05/topic/end-of-life-planning-more-than-wills/

What would you write in the blank spot?

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi all, I thought you might appreciate this interesting project that my friend, Kathy Kastner, does. She takes minature white boards to conferences and patient gatherings with a simple fill in the blank question:

I want to __________________ until I die.

It is so thought provoking and really makes people ponder what is important to them. And the end result when they land on their choice is a smile and bright eyes. Check out the article and the smiles:

- ‘I want to pat dogs until I die’: End-of-life planning should be more than just Living Wills https://healthydebate.ca/2025/05/topic/end-of-life-planning-more-than-wills/

What would you write in the blank spot?

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Thank you, Colleen. I had no idea when I first posted, what the response would be. I'm overwhelmed. Obviously this a concern we elders all share, and I much appreciate being able to reach out to so many folks through your wonderful platform. Thank you for the link, and I love what your friend does with the whiteboard, what an excellent idea breaker! It's going into my tool kit. What would I write? I want to live in grace, gratitude and joy until I die. So far, great!
Peace and Every Good!

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