Wet Macular Degeneration: What treatment helps you?

Posted by lvon @lvon, Jul 22, 2020

I have recently tried a different injection for my Wet Mac and was almost cleared up and was worstend by this drug. I have gone back on my previous drug and cannot get any satisfying results. Has anyone had this experience?

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Do you get injections only when your doctor (their techs actually - they do the tests) detects fluid in the retina and/or leaking?

I haven't gotten any injections in three years - not since the first three injections, after which I guess no fluid was noted.

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I have recently been diagnosed with Macular Generative Disease (AMD). I am only 50. The dr. said he was shocked to see that my right eye was what he would expect of someone in their 70's with this disease. Both my parents have it so he is guessing I got it from both which is what progressed it so soon for me. Anyway - New to this forum and wanting to get some insight on what to expect here. I start injections next month and a bit scared of the whole thing. What results have people seen with these injections and is there any change it will stop the progression of the disease? Also, does anyone know if there is any correlation with this disease and strokes? I also had a stroke 2 years ago and my eye sight has gotten worse, I'm just wondering if there is a connection with AMD and strokes.

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@slchand3

I have recently been diagnosed with Macular Generative Disease (AMD). I am only 50. The dr. said he was shocked to see that my right eye was what he would expect of someone in their 70's with this disease. Both my parents have it so he is guessing I got it from both which is what progressed it so soon for me. Anyway - New to this forum and wanting to get some insight on what to expect here. I start injections next month and a bit scared of the whole thing. What results have people seen with these injections and is there any change it will stop the progression of the disease? Also, does anyone know if there is any correlation with this disease and strokes? I also had a stroke 2 years ago and my eye sight has gotten worse, I'm just wondering if there is a connection with AMD and strokes.

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You mentioned you have AMD and are scheduled next month for an injection? AMD is diagnosed as either dry or wet. If dry AMD, new drugs via injections came out in 2023 and given every 25-60 days I believe. Now if it is "wet" AMD then yes, eye injections every month or so, would be necessary to keep the condition manageable. I have wet AMD in both eyes and had to start injections and continue every month for about 6 months. I started with Eyelea. I responded so well that I was then given Eyelea HD which is stronger. I now receive injections every 10-11 weeks. It all sounds scary with a "shot in the eye" but honestly, the thought is worse than the actual procedure. It takes just a few seconds, and your eye will be numb.
Regarding stroke risks: From the web: https://www.ahajournals.org/doi/10.1161/strokeaha.111.616359
Many wishes of good health, good outcome, and healing.

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@realitytest

Do you get injections only when your doctor (their techs actually - they do the tests) detects fluid in the retina and/or leaking?

I haven't gotten any injections in three years - not since the first three injections, after which I guess no fluid was noted.

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That's great! I read that that is possible, but my RS has advised against extending the shots that long. My next appointment will be 5 months since my last shot. I extend an additional month each time (against his advice).

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@donnamac

You mentioned you have AMD and are scheduled next month for an injection? AMD is diagnosed as either dry or wet. If dry AMD, new drugs via injections came out in 2023 and given every 25-60 days I believe. Now if it is "wet" AMD then yes, eye injections every month or so, would be necessary to keep the condition manageable. I have wet AMD in both eyes and had to start injections and continue every month for about 6 months. I started with Eyelea. I responded so well that I was then given Eyelea HD which is stronger. I now receive injections every 10-11 weeks. It all sounds scary with a "shot in the eye" but honestly, the thought is worse than the actual procedure. It takes just a few seconds, and your eye will be numb.
Regarding stroke risks: From the web: https://www.ahajournals.org/doi/10.1161/strokeaha.111.616359
Many wishes of good health, good outcome, and healing.

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I did not know there are injections for DRY AMD Would you please share the name of the drugs. Thank you

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@donnamac

You mentioned you have AMD and are scheduled next month for an injection? AMD is diagnosed as either dry or wet. If dry AMD, new drugs via injections came out in 2023 and given every 25-60 days I believe. Now if it is "wet" AMD then yes, eye injections every month or so, would be necessary to keep the condition manageable. I have wet AMD in both eyes and had to start injections and continue every month for about 6 months. I started with Eyelea. I responded so well that I was then given Eyelea HD which is stronger. I now receive injections every 10-11 weeks. It all sounds scary with a "shot in the eye" but honestly, the thought is worse than the actual procedure. It takes just a few seconds, and your eye will be numb.
Regarding stroke risks: From the web: https://www.ahajournals.org/doi/10.1161/strokeaha.111.616359
Many wishes of good health, good outcome, and healing.

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It is wet AMD 🙁
Thank you for sharing! I really hope that I respond well too! I’m not sure what they are starting me on but I will definitely have these on hand to ask about.

So as I understand there is not cure or reversal of this right?

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Vabysmo injection every 5 months!

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@tnj

I did not know there are injections for DRY AMD Would you please share the name of the drugs. Thank you

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There are injections for Dry AMD. Your retina doctor may use a specific medicine. Make sure doctor is a good retina doctor and deals only in retina treatment.

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@mostlyjackie

Vabysmo injection every 5 months!

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U are lucky; I go every month. Different medicine.

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@mikaylar

U are lucky; I go every month. Different medicine.

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Are you bleeding every month or does your doctor believe it's the best practice to inject whether you are or not

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