Frequent PVCS

Posted by debraadell @debraadell, May 7 3:28pm

Has anyone experienced frequent PVCS for over 6 months. My PCP and Cardiologist are scratching their heads. I have normal electrolytes, tsh, magnesium level. Holter showed bigeminy and trigeminy but Cardiology feels like the overall burden is not high enough to treat. I have a baseline low heart rate 50s which makes treatment with a beta blocker impossible.
I had a normal echo 2023, repeat pending, and a normal nuclear Stress Test 2024.
I'm not under stress, we'll, take that back....these PVCs are driving me insane! I have been looking into any of my medications that could cause palpitations and have discontinued my amlodopine and Telmisartan. I'm currently on Valsartan 80mg bid with systolic running 150s and diastolic high 80s. I don't do caffeine and make sure I get adequate sleep. I'm exhausted with trying to figure this out. Any advice would be greatly appreciated. Thanks, Debra

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Profile picture for debraadell @debraadell

Thanks for reply. I don't feel so alone with this now. How did you keep your sanity. I've been praying and walking. I love to golf also.

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Well, I think mine are attached to another health problem that affects your autonomic nervous system. Get a second opinion at Cleveland Clinic, they are number one in heart problems. When I went there they told me they were benign from a cardiac point of view. If your echo is good that’s a good sign too.

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Profile picture for debraadell @debraadell

Forgot to mention, that's another thing we're trying to tackle; is my uncontrolled htn. I honestly believe that Telmisartan and Amlodopine at max dose was causing my palpitations. Since discontinuing those, my palpitations are better. Now we've switched from Losartan which was not helping my bp, to Valsartan 80mg bid which I've only been on a week. I got one reading in the 120s systolic tonight and I was shocked as I'm ususally 150s to 160s systolic. I have a message out for my doctor to call me in the morning so we can get a game plan. Thank you so much!

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debra - Side Effects Telmisartan - Changes in vision. dizziness, lightheadedness, or fainting.
fast heartbeat. large hives. painful urination or changes in urinary frequency. swelling in the hands, lower legs, and feet.
Side effects of Amlodopine - Common side effects, Headaches. Feeling dizzy. Flushing.
A pounding heartbeat. ...Swollen ankles.
Side effects of Valsartan - Feeling dizzy. Headaches. Make sure you rest and drink plenty of fluids. ...Nausea, vomiting. Diarrea. Pain in your joints or muscles.

You can google the side effects of any medicine BEFORE you fill prescription or swallow them.

You mention high BP. It says to me that you are eating lots of animal products, meat, cheese, dairy. Are you consuming ANY caffeine??? If so, if you eliminate all, eat fresh fruits and veggies, eliminate processed foods with refined flours especially, high sugar junk. You may find that you will greatly reduce or eliminate a need for your meds in time. No sodas either.
Let us know if any of these tips helps you. My game plan would be to walk daily and not play games with my health by eliminating the causes of the problem. But YOU are responsible for your decisions and who you put your trust in.

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@debraadell
I thought I had replied to your post but don't see it.
I have had extensive PVCs since 2000. When I get my 3 month pacemaker report it shows over a hundred thousand of them over a 3 month period.

The only ones that bother me are the multiple ones that happened together. That is a scary feeling as I think I am going to go in tachacardia.

What are the amolopine and telmisatran for? There are seveal medications out there to explore with your cardiologist other than beta blockers. I had ablation done on a RV and fixed it over 10 years ago. Recently I wanted to have ablation done on LV but holter monitor showed PVCs coming from 3 areas. My EP wanted to try medications before ablation as doing ablation on 3 areas was much more difficult than one.

My EP put me on Mexiline (spell) about a year ago. It cut my PVCs in half and have not had tachacardia since on it.

I do not see you mentioned a EP (electrophysioloigist) who are specialist in electrical functions of heart. If you can try to see one if you have one locally. Also consider getting a second opinion like from Mayo or Cleveland Clinic on your heart and electrical functioning.

I have very low PR (pulse rate) because of medication. I am on Entresto and Carvididol. I have a ICD/Pacemaker and I have worked with my EP and pace clinic and we have brought my pacing up to 70 bpm as that had best impact on reducing PVCs.

Per my EP a low PR can cause both PVCs and tachacardia. Many athletes heart rates are very low and many get pacemakers later after retiring because they remain low.

Your BP of 150s needs to be treated. It is the silent killer we hear so much about. I think in my previous post I mentioned stress. You admitted that you are under stress caused by PVCs. What my PCP and cardiologist have complimented me on is my exercise routine. It is a great stress reducer for me. When I cannot (I do 8 different water aerobics classes a week, swim an hour once a week, and ride bike 20 miles once a week, and walk my dog every evening for about an hour). If I can't do my exercising I feel the stress and anxiety come back and I also worry much more about my PVCs.

If (and approved by your doctors) you cannot do an exercise you like do consider a hobby. Anything to bring your mind off your PVCs and brings you enjoyment is going to help you mentally and physically.

Please consider seeing a EP. If you can consider getting a second opinion from a major medical facility like Mayo, Cleveland Clinic, John Hopkins, who can really look into the cause and even better the treatment options for your PVCs.

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Profile picture for debraadell @debraadell

Forgot to mention, that's another thing we're trying to tackle; is my uncontrolled htn. I honestly believe that Telmisartan and Amlodopine at max dose was causing my palpitations. Since discontinuing those, my palpitations are better. Now we've switched from Losartan which was not helping my bp, to Valsartan 80mg bid which I've only been on a week. I got one reading in the 120s systolic tonight and I was shocked as I'm ususally 150s to 160s systolic. I have a message out for my doctor to call me in the morning so we can get a game plan. Thank you so much!

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Valsartan took about 3 weeks to work for me. Or, something else changed. I too have a resting heart rate in the low 50s, I get tons of pvc when my HR goes above 80. Then I get afib 12 hours later. I got ablated 5 days ago for the afib. Things are changing. I do ear vagal nerve stim which seems to help. It might have cut my afib down by a factor of 3. Anecdotal evidence is weak I know. I’m not sure my pvcs are coming from my ventricles. I suspect weird pacs are getting conducted and blocking my R bundle, ashmans is what that’s called. My EP i’t worried about my annoying PVCs.

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For what it’s worth, I had nsvt, PVCs, etc after heart valve replacement surgery. My EP told me several times there was a huge mental component to it.
Even prior to my surgery I had episodes of racing, pvc’s and who knows what else due to a mitral valve issue and wore monitors ad nauseum. I remember one time after a 2 week monitor, my cardiologist telling me it was nothing lethal.
50% of my symptoms disappeared immediately. I went to the gym after the appt, maxed out on the treadmill, and didn’t feel so much as a blip.
Maybe look into something like Xanax that you can take as needed? I find that helpful.
The mental shift from fear to confidence was key for me.

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Profile picture for Phoenix @kudzu

For what it’s worth, I had nsvt, PVCs, etc after heart valve replacement surgery. My EP told me several times there was a huge mental component to it.
Even prior to my surgery I had episodes of racing, pvc’s and who knows what else due to a mitral valve issue and wore monitors ad nauseum. I remember one time after a 2 week monitor, my cardiologist telling me it was nothing lethal.
50% of my symptoms disappeared immediately. I went to the gym after the appt, maxed out on the treadmill, and didn’t feel so much as a blip.
Maybe look into something like Xanax that you can take as needed? I find that helpful.
The mental shift from fear to confidence was key for me.

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Thanks so much! This could definitely be....I'm a nervous wreck. I was weaning off Xanax when it seems all of my problems started.

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Profile picture for diane987654321 @diane987654321

Valsartan took about 3 weeks to work for me. Or, something else changed. I too have a resting heart rate in the low 50s, I get tons of pvc when my HR goes above 80. Then I get afib 12 hours later. I got ablated 5 days ago for the afib. Things are changing. I do ear vagal nerve stim which seems to help. It might have cut my afib down by a factor of 3. Anecdotal evidence is weak I know. I’m not sure my pvcs are coming from my ventricles. I suspect weird pacs are getting conducted and blocking my R bundle, ashmans is what that’s called. My EP i’t worried about my annoying PVCs.

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Thanks so much. I'm scheduled for Cards f/u next month. Hopefully I can get an EP consult.

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Profile picture for debraadell @debraadell

Thanks so much! This could definitely be....I'm a nervous wreck. I was weaning off Xanax when it seems all of my problems started.

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You’re welcome.
Be careful weaning off Xanax; that should be done gradually.

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Profile picture for Phoenix @kudzu

For what it’s worth, I had nsvt, PVCs, etc after heart valve replacement surgery. My EP told me several times there was a huge mental component to it.
Even prior to my surgery I had episodes of racing, pvc’s and who knows what else due to a mitral valve issue and wore monitors ad nauseum. I remember one time after a 2 week monitor, my cardiologist telling me it was nothing lethal.
50% of my symptoms disappeared immediately. I went to the gym after the appt, maxed out on the treadmill, and didn’t feel so much as a blip.
Maybe look into something like Xanax that you can take as needed? I find that helpful.
The mental shift from fear to confidence was key for me.

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@kudzu
Concur. Mental health is as important as physical health.

Both have dramatic impact on each other. Your post echos that!

I see you went to gym and that is good for us both physcially and mentally.

All my doctors (PCP, HF, EP) all say stress and anxiety over your PACs, PVCs, etc. are going to cause more as the flight or fight adrenaline is building up and your body is responding to that stress and axniety. Hobbies, exercise, anything to find enjoyment is going to help.

The Xanax which her doctor would have to agree and prescribed is something I have on same (As needed) from my Mayo Psychiatric medication specialist. I rarely take but there is I need it and I think that too helps reduce anxiety and stress that something is there if you need it.

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Profile picture for jc76 @jc76

@kudzu
Concur. Mental health is as important as physical health.

Both have dramatic impact on each other. Your post echos that!

I see you went to gym and that is good for us both physcially and mentally.

All my doctors (PCP, HF, EP) all say stress and anxiety over your PACs, PVCs, etc. are going to cause more as the flight or fight adrenaline is building up and your body is responding to that stress and axniety. Hobbies, exercise, anything to find enjoyment is going to help.

The Xanax which her doctor would have to agree and prescribed is something I have on same (As needed) from my Mayo Psychiatric medication specialist. I rarely take but there is I need it and I think that too helps reduce anxiety and stress that something is there if you need it.

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Thanks, jc76
Always good to hear support.
Absolutely right about the effect of knowing something is there if you need it. Makes it less likely that I will use it.

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