Congestive Heart Failure in young people
My daughter, Heather, passed from Congestive Heart Failure at the age of 25. This was a total shock as she was very healthy and no examinations have ever revealed this possibility. She did have a kidney infection in Dec 2015 and went for diagnosis twice when she had the symptoms. Both times the doctors just passed it off as anxiety. She died in Feb 2015 at Tampa General. The surgeon tried to install VADs on both sides of her heart. When he came to us in the waiting room he said he never saw anything like the scars inside her heart.
I would like to know if anyone else has a story like this. We can only surmize that Heather must have had a dormant virus that was activated by something she took or was exposed to. I wished now we would have had an autopsy done but there may still be no way of finding out how she contracted this evil in her heart.
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Yes the cost is expensive. The clinic in Mexico called Navastern charges $8000.00 per therapy session. If your waiting for the FDA to approve stem cell therapy and insurance picking up the costs, don't hold your breath for any length of time. Maybe in the next generation parts of the therapy will be approved and healthcare will cover a portion of the costs.
@fishinpete
Hello, does the therapy really work? And about how many therapy sessions does one need to recover?
Great question @bangel...But I don't have all the answers. I have yet to speak with anyone who has used stem cell therapy for their heart. All I have done is read testimonials and research reviews. I take the time on a daily basis and read everything that I can. 3 years ago I found out that I have mild case of cardiomypathy, non-schemic as of 2 weeks ago I'm still in the mild stage. But my EF is slowly decreasing. I know it is a progressive diease. I have increased my diet and excerise, hoping to level it off for awhile longer. Being 67 I push myself hard while exercising, but as I grow older excerise becomes harder. My EF has yet to improve. I get frustrated by being told there really is no cure, but if you take these pills it will slow your heart down and help you live longer. Not the way I was planning to go out. I would like to have options with my life. . If I were in the final stages of CHF I'd be willing to try anything, as everyone else. Getting back to your question, so far everything that I have read, it has worked. Some may require more therapy then others. And there are probably few cases that it didn't. I mentioned in a earlier post of 11 patients in stage 4 CHF with a 70% mortality rate within 2 years. If I remember correctly that was in 2014. Well, all are alive with a much improved heart function, living a normal life. Wish I could have jump in on that study, but I think you have to be on your death bed to get involved. My research, is to find a reliable clinic, a clinic that has been around for awhile and shows positive results with improving the heart function. It's a shame that we have to travel outside of the US, spend a lot of money and take chances. There isn't a doctor or hospital around that would support stem cell therapy and give you their blessings because it is yet to be approved by the FDA. Let along embryonic stem cells that is totally illegal here but legal in many others country's. I suggest that you do your homework if your thinking about it, it may not be for you. This country may be the leader in medical technology, but so are other country's and they may not be owned by pharmaceutical and insurance corporations.
Good question, Pete. You can read about all the heart conditions being investigated on the Van Cleve Cardiac Regenerative Medicine Program website: http://www.mayo.edu/research/centers-programs/van-cleve-cardiac-regenerative-medicine-program
Thanks for the list will put it on my things to do list.
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Martin Graham
I am so sorry for your loss Brian, but I feel it's a blessing I landed on your post. I have just been diagnosed with pulmonary hypertension with eisenmegar syndrome. That means the right side of my heart is enlarged and I have a hole in my heart. It's a miracle that something was spotted on a chest x-ray which led to this recent diagnosis. Everyone is born with a hole in the heart and for most, it closes up naturally. Others can go their whole life like that and never know. The rest are at great risk and don't even know something is wrong until a heart attack happens. In my case it is not only herititery, but I also have a heart murmur. I am healthy and 49 yrs old. I was supposed to have my gallbladder removed but was cancelled, but the pre-op physical found this disease. I am in the process of lining up open heart surgery. I don't want to die, but even more I don't want to leave you knowing you just want to know why. There was nothing you could do and no signs of heart problems because your daughter was a healthy young woman. From here on, encourage her blood relatives to get checked out, staring with a chest x-ray. God bless you and know He is with you during this difficult time.
Hello fam! How are you all doing?
@bangel
I'm good, how are you? Any new appointments scheduled? How are you feeling these days?
Teresa
@hopeful33250.I'm feeling much better, except that I always feel full. A very small amount of food tends to fill me up. My next appointment is in two weeks. Generally, I feel more energetic. I've started taking long walks.
@bangel
I'm glad to hear that you are walking! That will help with the full feeling and will also give you some more energy.
I am glad that you keep me updated on your progress. I look forward to hearing from you again.
Teresa