Anyone from Canada?

Posted by amn17 @amn17, Sep 19, 2018

I would like to connect with anyone from Canada...

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Note from the Moderating Team
In addition to connecting with fellow Canadians here on Mayo Clinic Connect, you can also reach out to the

Bronchiectasis/NTM Organization of Canada
Esther Steinberg, Lead
Canada@ntminfo.org

See the contact information for Canada and other country support groups here: https://ntminfo.org/local-support-groups/

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

westcottkm3040 | @westcottkm3040 | May 6 6:28pm

I’m in spruce grove. Would love to chat with some Canadians. Compared drugs and notes.

payette78 | @payette78 | May 7 9:27am

In reply to @westcottkm3040 "I’m in spruce grove. Would love to chat with some Canadians. Compared drugs and notes." + (show)

Spruce Grove AB? Hi from northern New Brunswick. Not a lot of NTM expertise in this province and travel involved for me. I have bronchiectasis and m abscessus subsp abscessus. See my posts under "Home infusions." Would love to hear your story,

westcottkm3040 | @westcottkm3040 | May 7 10:47am

That’s too bad to hear nothing local for you.
I’m 30 mins out of edmonton and the university hospital. Have a great MAC here. Best in Canada I am told. And a good pulmonologist as well.
Diagnosed about ten years ago with MAC and had BE as well. It’s gotten a lot worse in the last few years.
On all the pills. Round 3 of them. Waiting to talk to the pulmonologist on Monday. So maybe start a treatment for that.
Are you on meds? How’s day to day life for u?

payette78 | @payette78 | May 16 2:55pm

In reply to @westcottkm3040 "That’s too bad to hear nothing local for you. I’m 30 mins out of edmonton and..." + (show)

I am waiting for ID doc to come up with m abscessus treatment plan. My pulmonologist ghosted me two months ago. Referred me to ID and hust disappeared. I have no family doctor. Many months to years long waiting list for one. So being treated by a nephrologist for hypertension and ID doc and that is my medical team. Can't get an appointment with Healthlink either. Would move back to Toronto if I could afford to live there. Very frustrated.

Colleen Young, Connect Director | @colleenyoung | May 20 9:37am

Special note from the Moderating team

In addition to connecting with fellow Canadians here on Mayo Clinic Connect, you can also reach out to the
Bronchiectasis/NTM Organization of Canada
Esther Steinberg (@helpme33), Lead
Canada@ntminfo.org

The Bronchiectasis/NTM Organization of Canada also hosts Zoom meetings.
See the contact information for Canada and other country support groups here: https://ntminfo.org/local-support-groups/