1. < Transplants

Liver transplant - Let's support each other

Posted by lmctif @lmctif, Oct 29, 2018

What topics do people who are waiting for a liver transplant want to talk about? Who has had a liver transplant and wants to talk about?

Interested in more discussions like this? Go to the Transplants Support Group.

carecare | @carecare | 2 days ago
In reply to @melmc18 "I am just starting the evaluation process. So I’m not on the list yet. I have..." + (show)
@melmc18

I am just starting the evaluation process. So I’m not on the list yet. I have a MELD score of 15 and just diagnosed w HPS. No O2 needed yet

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Ok, so your liver must be in worse shape than mine. Im on oxygen 24/7.
I hope your evaluation goes smoothly.

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | 2 days ago
In reply to @melmc18 "I have been on a life long journey with my liver. Confirmed I had HepC at..." + (show)
@melmc18

I have been on a life long journey with my liver. Confirmed I had HepC at age 17 due to blood transfusions at birth. Went through 3 different experimental treatments, finally cured in 2013. Now because of all of the damage taken onto my liver I begin my journey of a transplant. I am very optimistic and hope my evaluation goes well. I am glad to have a place now to connect with others like me and who have already had the transplant. It will be helpful to learn from others. Blessings to All

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Hi, @melmc18, and Welcome to Connect. I want to add myself to your growing list of supporters. My experience is as a recipient.
I’m glad you found Connect.

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | 2 days ago
In reply to @carecare "I have Hepatopulmonary Syndrome. My oxygen levels have been awful, but I guess not awful enough...." + (show)
@carecare

I have Hepatopulmonary Syndrome. My oxygen levels have been awful, but I guess not awful enough. I hope they don’t wait to help me until I’m deathly ill.
I’m patient at Tampa General Hospital.

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@carecare, Welcome to Connect. I’m sorry to read about the delay in being listed. I know how hard the unknowing can be.
I’m hoping that your results will lead you closer to a transplant. ❤️

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margui70 | @margui70 | 1 day ago
In reply to @melmc18 "I have been on a life long journey with my liver. Confirmed I had HepC at..." + (show)
@melmc18

I have been on a life long journey with my liver. Confirmed I had HepC at age 17 due to blood transfusions at birth. Went through 3 different experimental treatments, finally cured in 2013. Now because of all of the damage taken onto my liver I begin my journey of a transplant. I am very optimistic and hope my evaluation goes well. I am glad to have a place now to connect with others like me and who have already had the transplant. It will be helpful to learn from others. Blessings to All

Jump to this post

God bless you, you will receive your miracle soon. Don’t let anyone or anything to weaken your faith; do your part to keep your health and let the doctors do theirs!

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