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Weird neurological symptoms
It all started feb-march of 2024 I started getting twitching all over then one day I woke up and started noticing a clicking in my throat and very mild swallowing issues then I would feel these what felt like adrenaline rush in my forearms but now I realized they were actually tremors and I also started noticing my muscles getting thinner then tremors spread to my legs i would notice them more going down stairs so i scheduled appt with neurologist she said she would send me for mri (normal) and emg i waited to do that to see if symptoms progressed every think stayed the same till about April 2025 so I went back to neurologist she said it was in my head and and referred me to a physiatrist so I scheduled the emg in march came back clean then after that my symptoms started to progress rapidly I noticed the internal tremors got a little worse but then stoped and I only noticed them when I pick up heavy stuff but then I would have dizziness almost every day my memory seems to be getting worse lost some hearing in right side and the weakness in arm and leg seems to be more on the right I also have stiffness on that side including fingers comes and goes but constantly in thumb still functioning neck stiffness I do sigh alot am also a smoker i have vision issues fatigue feels like weakness in legs and arm are getting worse by the day I also have stiffness in my jaw and it tires easily when I chew dry mouth dry eyes bp is low laying down andbthen higher standing I do have low oxygen when sleeping but on bipap for osa oxygen levels seem to be improving little by little I have seen endocrinologist rheumatologist gi all labs normal I did order some labs my self all normal I did order one called vgcc n-type it was normal but close to high just wondering if any has had symptoms like this and any input would be greatly appreciated doctors keep pushing me off it's so frustrating every day I'm miserable because I feel like crap
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@frank815
I hear your frustration and have been where you are now.
Did your neurologist do a MRI of your brain and cervical spine? Did they do a small fiber neuropathy skin punch biopsy?
You may want to see a new neurologist for 2nd opinion and an orthopedic spine specialist to check to make sure your spinal cord is not being compressed and causing your many symptoms (called cervical myelopathy).
I have myelopathy caused by spinal stenosis, degenerative disc disease, bone spurs/osteophytes, herniated disc, etc. which is pressing on my cervical spine and nerve roots/nerves and causing all sorts of symptoms below the c5-c6 and c6-c7 level. Many doctors miss the myelopathy diagnosis and misdiagnose. A delay in diagnosis can cause permanent injury so treatment is time sensitive to stop the progression. I already had ACDF surgery on c5-c6 and having surgery on c6-c7 to decompress and fuse in 2 weeks.
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3 Reactions@frank815
P.S. Cervical myelopathy can cause symptoms like yours in your head/neck, arms/hands, legs/feet and affect bladder/bowel control. Walking can be slowed and unstable and handwriting can become messy. You can start to drop things to less control of your arms. Myelopathy can cause pain, weakness, numbness and dizziness/balance issues. Get seen as soon as possible and don’t let doctors dismiss your symptoms anymore. I had a doctor put in my records she thought I was a hypochondriac when I was actually suffering many symptoms due to a spinal cord injury. Needless to say, I fired her but have some permanent spinal cord injury due to delayed diagnosis/treatment. Your many symptoms make me think you may have myelopathy diagnosis. When I saw my 4th orthopedic spine specialist/surgeon, my first appointment with him, he examined me and my reflexes, looked at my cervical MRI, listened to all of my symptoms/history of progression and had me walk so he could watch my gait and immediately diagnosed me with cervical degenerative/spondilytic myelopathy and recommended surgery right away to stop the progression and permanent injury. I was in my early 50s and a single parent of a pre-teen and his sole provider. My son is almost 16 now and I am disabled. I had surgery on my cervical and lumbar spine and my next cervical spine surgery is to stop the new spinal cord damage from progressing. My future will include many surgeries due to my congenital spinal canal (much more narrow than average) and aging degeneration and other health issues. By the end of this year, I will have had 7 surgeries in 4 years (after my c6-c7 ACDF and left hand carpal tunnel surgeries). It would be 8 surgeries but I am holding off getting my gallbladder removed (isn’t fully functioning/releasing stored bile and I manage through smaller, lower fat meals). Not fun getting old and having health decline.
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5 ReactionsShe only did one of the brain and emg both clear when I asked her for mri of head and neck mri repeat she said she can't justify doing one and to go see mds in 3 months
@frank815
It would be good to see an orthopedic spine specialist to have them review your medical history and current symptoms and ask them to look at your cervical spine for myelopathy.
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1 ReactionPlease see Dr. Kumar at Mayo Clinic Minnesota. He is an expert superficial siderosis.
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