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Weird neurological symptoms

Posted by frank815 @frank815, May 3 12:38am

It all started feb-march of 2024 I started getting twitching all over then one day I woke up and started noticing a clicking in my throat and very mild swallowing issues then I would feel these what felt like adrenaline rush in my forearms but now I realized they were actually tremors and I also started noticing my muscles getting thinner then tremors spread to my legs i would notice them more going down stairs so i scheduled appt with neurologist she said she would send me for mri (normal) and emg i waited to do that to see if symptoms progressed every think stayed the same till about April 2025 so I went back to neurologist she said it was in my head and and referred me to a physiatrist so I scheduled the emg in march came back clean then after that my symptoms started to progress rapidly I noticed the internal tremors got a little worse but then stoped and I only noticed them when I pick up heavy stuff but then I would have dizziness almost every day my memory seems to be getting worse lost some hearing in right side and the weakness in arm and leg seems to be more on the right I also have stiffness on that side including fingers comes and goes but constantly in thumb still functioning neck stiffness I do sigh alot am also a smoker i have vision issues fatigue feels like weakness in legs and arm are getting worse by the day I also have stiffness in my jaw and it tires easily when I chew dry mouth dry eyes bp is low laying down andbthen higher standing I do have low oxygen when sleeping but on bipap for osa oxygen levels seem to be improving little by little I have seen endocrinologist rheumatologist gi all labs normal I did order some labs my self all normal I did order one called vgcc n-type it was normal but close to high just wondering if any has had symptoms like this and any input would be greatly appreciated doctors keep pushing me off it's so frustrating every day I'm miserable because I feel like crap

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frank815 | @frank815 | May 15 10:49am
In reply to @dlydailyhope "@frank815 Is the pain in your neck, right arm and leg? Where is your primary source..." + (show)
@dlydailyhope

@frank815
Is the pain in your neck, right arm and leg? Where is your primary source of pain?

Did you have only a MRI of your brain? Did you review the report in detail yourself? Did you get a MRI of your cervical spine? If so, what exactly did it list as the impressions by the radiologist?

Getting a 2nd or 3rd opinion from a neurologist may be good. Do not tell them that you already saw others and see what they say on their own. Let them know the top 3-5 symptoms and concerns that affect your quality of life each day.

If you have pain in your neck and weakness in arm/leg, you may want to see an orthopedic spine specialist to review your symptoms, reflexes, gait, and request a new MRI of your cervical spine if they think you may have spinal cord compression causing your neurological symptoms.

My cervical spine issues caused me daily headaches, neck/shoulder pain, arm/hand and leg weakness. It also seemed to cause balance issues, brain fog, hearing loss, tinnitus, swallowing and speaking issues, and bladder issues. Spinal cord compression in your neck can cause many problems above/below the level of compression.

Did your first neurologist do a skin punch biopsy to test you for small fiber neuropathy? I have this as well and it can cause all sorts of issues with temperature and skin sensation plus autonomic nervous system disruption (heart/lungs/digestion). Did your neurologist do neuropathy bloodwork and check glucose levels (diabetes)? You will want to quit smoking because it is a toxin that can damage your nervous system, blood vessels, heart and lungs.

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I just had neck mri yesterday this is the result. The posterior fossa brain structures appear within normal limits. The brainstem appears normal. The cervical cord appears intact without evidence for any significant cord signal abnormality. Spinal canal appears normal without evidence for any abnormal masses or fluid collections. The craniocervical junction appears to be grossly intact.

Diffuse loss of normal T1 signal is identified in the visualized osseous structures. This is a nonspecific finding but can be seen with red marrow reconversion. There is no evidence of any significant bone marrow edema. No evidence of any significant fracture or suspicious marrow replacing lesion identified.

No evidence of any significant retropharyngeal fluid. Visualized soft tissues of the neck appear within normal limits. Normal flow void is identified in the visualized vasculature. Small cervical chain lymph nodes are identified, not pathologically enlarged. Remainder of the neck soft tissues appear within normal limits.

By level:
C2/C3: Small posterior disc ossified complex. No evidence of any significant neural foraminal narrowing or canal stenosis.

C3/C4: Small posterior disc ossified complex is noted with minimal left uncovertebral hypertrophy. Mild left neural foraminal narrowing. Right neural foramen is patent. There is minimal canal stenosis.

C4/C5: Small posterior disc ossified complex and uncovertebral hypertrophy with mild left neural foraminal narrowing. Right neural foramen is patent. There is no evidence of any significant canal stenosis.

C5/C6: Small posterior disc ossified complex with bilateral uncovertebral hypertrophy. Mild bilateral neural foraminal narrowing. Mild canal stenosis.

C6/C7: No significant canal or neural foraminal narrowing.

C7/T1: No significant canal or neural foraminal narrowing.

IMPRESSION:

1. Mild multilevel degenerative changes are identified in the cervical spine as described in detail above.
2. No evidence of any significant cord compression or cord signal abnormality.
3. Diffuse low T1 signal identified in the visualized osseous structures may be related to red marrow reconversion. No suspicious lesions or fracture.

REPLY
1 reply
dlydailyhope | @dlydailyhope | May 15 11:42am
In reply to @frank815 "I just had neck mri yesterday this is the result. The posterior fossa brain structures appear..." + (show)
@frank815

I just had neck mri yesterday this is the result. The posterior fossa brain structures appear within normal limits. The brainstem appears normal. The cervical cord appears intact without evidence for any significant cord signal abnormality. Spinal canal appears normal without evidence for any abnormal masses or fluid collections. The craniocervical junction appears to be grossly intact.

Diffuse loss of normal T1 signal is identified in the visualized osseous structures. This is a nonspecific finding but can be seen with red marrow reconversion. There is no evidence of any significant bone marrow edema. No evidence of any significant fracture or suspicious marrow replacing lesion identified.

No evidence of any significant retropharyngeal fluid. Visualized soft tissues of the neck appear within normal limits. Normal flow void is identified in the visualized vasculature. Small cervical chain lymph nodes are identified, not pathologically enlarged. Remainder of the neck soft tissues appear within normal limits.

By level:
C2/C3: Small posterior disc ossified complex. No evidence of any significant neural foraminal narrowing or canal stenosis.

C3/C4: Small posterior disc ossified complex is noted with minimal left uncovertebral hypertrophy. Mild left neural foraminal narrowing. Right neural foramen is patent. There is minimal canal stenosis.

C4/C5: Small posterior disc ossified complex and uncovertebral hypertrophy with mild left neural foraminal narrowing. Right neural foramen is patent. There is no evidence of any significant canal stenosis.

C5/C6: Small posterior disc ossified complex with bilateral uncovertebral hypertrophy. Mild bilateral neural foraminal narrowing. Mild canal stenosis.

C6/C7: No significant canal or neural foraminal narrowing.

C7/T1: No significant canal or neural foraminal narrowing.

IMPRESSION:

1. Mild multilevel degenerative changes are identified in the cervical spine as described in detail above.
2. No evidence of any significant cord compression or cord signal abnormality.
3. Diffuse low T1 signal identified in the visualized osseous structures may be related to red marrow reconversion. No suspicious lesions or fracture.

Jump to this post

@frank815
It does seem like you have mild degenerative changes in your cervical spine and something going on with your bone marrow.

You may need to find a doctor to do a bone marrow biopsy. If you were my son, I would want to investigate why you have a “diffuse loss of normal T1 signal is identified in the visualized osseous structures…this is a nonspecific finding but can be seen with red marrow reconversion.” This may be causing some issues with blood. It would be good to see a hematologist.

1. https://www.mayoclinic.org/tests-procedures/bone-marrow-biopsy/about/pac-20393117
2. https://www.verywellhealth.com/bone-marrow-biopsy-7967855
3. https://www.healthline.com/health/bone-marrow-biopsy
4. https://my.clevelandclinic.org/health/diagnostics/17735-bone-marrow-biopsy
5. https://www.hopkinsmedicine.org/health/treatment-tests-and-therapies/bone-marrow-biopsy

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