Has anyone seen a sudden onset of seizures in an adult?

Posted by 1990mom @1990mom, Jan 13 6:24am

My son is 34 years old. He had never experienced a seizure or had any family history of seizures until a week ago. We are looking for a cause but only seem to get treatment for symptoms at ER when have an occurrence...can't get appointment with neuro until January 24th in Colorado and can't get an EEG until the 30th....does anyone have experience getting into Mayos quickly and getting answers quicker?!
Thanks!

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@1990mom

Thanks for all the info and input!! My son had his Dr gradually stop the meds and had another seizure 6 days after last dose....back in it again but having headaches with meds...Dr believes those will eventually stop...fingers crossed!

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Did he decide to try to go to Mayo or no?

Tracey

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@tchandos

Did he decide to try to go to Mayo or no?

Tracey

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Not yet...he is thinking he wants to see if headaches go away with current med...I doubt he goes...too many family issues

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Yes mine started at about 18 but just petit mal. I had my first massive grand mal at 21. First off is he drinking alcohol because that was the biggest trigger of mine

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@kingkol13

Yes mine started at about 18 but just petit mal. I had my first massive grand mal at 21. First off is he drinking alcohol because that was the biggest trigger of mine

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Not drinking alcohol...but that's a definite consideration...thanks for sharing!!!
Deb

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@1990mom
I'm sorry your son has developed a seizure disorder. Adult onset seizures are not uncommon but new epilepsy is more common in children & about 25% in seniors.
Sometimes seizures manifest themselves years or decades after and injury, illness, infection, accident, head trauma etc.
As far as finding the cause to his seizures, about 50% of epilepsy patients supposedly do. I say supposedly because the cause may not be accurate. Misdiagnoses are rampant in the epilepsy community. Because of so much inaccurate information being perpetuated by doctors I've become skeptical and maybe a little cynical.
I blame doctors for helping to perpetuate the stigma epilepsy already has.
Is your son on anti-seizure medication? Does it seem to be helping? How long has it been since his last seizure? If anyone is ever around him when he's having a seizure, it would be very beneficial to his physicians if they viedoed it. What type of seizure/s is he having?
Medication adherence and good sleep quality are essential in seizure patients.
If he has two or more unprovoked seizures (the current criteria for having an epilepsy diagnosis)
EEG's are normal in 50% of patients even those with verified epilepsy. I would advise staying up most if not all night prior to the EEG unless the doctor plans on doing a sleep deprived or other type EEG.
Acceptance is crucial for quality of life reasons.
Not to downplay the importance of finding the cause, if possible, which may be treated and potentially stopping the seizures although a cause is often elusive. I wouldn't build my hopes up on a cause being found.
Having only one seizure in your life is quite common, so hopefully this will be his one and only.
Take care,
Jake

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Hi....I had a tonic clonic seizure for the first time at 69yrs old a year and a half ago and another seizure about a year after that because I forgot to take my keppra. Since then a year later no seizures and I have been weaning off the keppra gradually on my own. I am down to 125mg once a day and no effects so far. A lot is unknown about seizures. Some is genetic and some sudden onset like mine. Maybe in a 100 yrs we will know more. God Bless
ray hippele

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@1990mom
Hi Deb, Good Morning
How is your son doing?
Kind regards,
Chris @santosha

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My husband (72) had his 1st seizure in 2/25. It was not witnessed by anyone but he had chewed his lip and tongue. He had also fallen and had 2 fractured his spine and neck. He was also diagnosed with pneumonia and a very elevated white blood count. At this time we got an appointment with a neurologist for 5/6/25.
Then on 4/25, almost 2 months to the day, he had 3 seizures about 2 hours apart. At the hospital they did brain scans, MRI on his brain and a spinal tap looking for an infection that they might have missed. They could find no reason for the seizure. We were told that often they cannot pinpoint the cause of the seizure.
We did go to the appointment on 5/6. He had had a headache since the day before his most recent seizure, the neurologist was able to give him injections in the back of his head that got rid of his headache.
We have an appointment on Tuesday with a neurologist that specializes in seizures. He is about 50 miles away hopefully we will get some answers.
My husband is now on Keppra.

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@lynn0225

My husband (72) had his 1st seizure in 2/25. It was not witnessed by anyone but he had chewed his lip and tongue. He had also fallen and had 2 fractured his spine and neck. He was also diagnosed with pneumonia and a very elevated white blood count. At this time we got an appointment with a neurologist for 5/6/25.
Then on 4/25, almost 2 months to the day, he had 3 seizures about 2 hours apart. At the hospital they did brain scans, MRI on his brain and a spinal tap looking for an infection that they might have missed. They could find no reason for the seizure. We were told that often they cannot pinpoint the cause of the seizure.
We did go to the appointment on 5/6. He had had a headache since the day before his most recent seizure, the neurologist was able to give him injections in the back of his head that got rid of his headache.
We have an appointment on Tuesday with a neurologist that specializes in seizures. He is about 50 miles away hopefully we will get some answers.
My husband is now on Keppra.

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@lynn0225 - I see that you've joined Mayo Clinic Connect fairly recently, so welcome to the community. Your husband has sure been through a lot and is so fortunate to have you at his side.

How's is the levetiracetam (Keppra) going for him so far?

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@lisalucier

@lynn0225 - I see that you've joined Mayo Clinic Connect fairly recently, so welcome to the community. Your husband has sure been through a lot and is so fortunate to have you at his side.

How's is the levetiracetam (Keppra) going for him so far?

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He says it drags him down. He is on 1000 mg twice a day.
He doesn’t sleep well at night. His primary care doctor has started him on 50mg of Trazodone. Last night was his 1st night and was only up 12:30-3:30 a.m.
Hopefully tonight will be better,

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