Bladder Cancer Group: Introduce yourself and connect with others

I have finished my 6 BCG treatments last Tuesday, April 15th. Have not had any side effects. I don't know if that is good or bad but I guess I will take it as a positive since my Urologist every week was so happy to hear I had no side effects at all.
On July 13th she is going to do a cystoscopy and if my bladder looks good, the next day July 14th my 3 BCG treatments will start.
It does make me feel nervous though with 3 months no check up but I guess I have to enjoy everything and will do my best to do that.

I am currently getting my third of six BCG treatments. I don't have many side effects except a huge lack of appetite and some unusual moods. Anyone experience this?
Francis I

Sue,

Thank you for your kind words. Tomorrow is week 2 of 6 for the GEMDOCE.

Elizabeth

@bethcamp, how are you doing in week 2 of gemcitabine and docetaxel?

Tom26
What treatment did you get 7 years ago. BCG?
Thanks
Fran

just getting statrted.removed my left kidney and ureter last july.cancer came back in the bladder.just had a turbt 11 days ago.will start BCG in 6 to 8 weeks.alot of anxiety and fear over things i read as am only 59

I'm sorry to hear of your protracted struggle with cancer, which is difficult, and your struggle with discouragement, which is worse. I am at an earlier stage, involving only the bladder so far, and it began about a year ago when I was 69. The certainty of my mortality and the anxiety I feel for my family and loved ones seem to be ever present. The thought of having to leave the dance fills me with emense sadness. I suspect your are no stranger to these thoughts and feelings, and they are even more immediate and pressing due to the state of your illness and your comparatively young age. Please know that you are not alone. In the quiet, solitary hours when we feel it all weighing in, we are not alone.

like you..i am not worried about me..feel am strong enough to deal..but sure could use someone to talk to..my worry will be for those i leave behind..bladder cancer seems to be unforgiven...as it seems to just about alwyas return..i have a line in sand i wont do..my bladder stays...i wont go out piece by piece..just alot of anxierty and fear of the unknown..it feels like atleast once a month..something is being done to me...i guess am fortunate in that regard as it gets caught early..but each test just heightens the anxiety...and awaiting pathology results is excruciating

Hi Fran,

Yes, I had 5+ rounds of BCG treatment ( not able to complete 6th round completely) 7 years ago which seemed to work.
Side effects weee minimal, just a bit uncomfortable until last round, my body started to reject at that point.

Thanks Tom
It appears that the BCG worked well for you. I'm having number 4 tomorrow. I have not had many side effects. I'm hoping that it works for me as it did for you. Thank you for the kindness of your reply.
Francis