Bladder Cancer Group: Introduce yourself and connect with others

Hi,
My name is Irene & my husband had a procedure to
check a 2 cmm tumor for bladder cancer. I talked to
the dr. after the procedure & she says it looked like
cancer, but will have to wait until the pathology report.
Very nervous, I am having trouble waiting for the results

I

Hi,
My name is Irene & my husband had a procedure to
check a 2 cmm tumor for bladder cancer. I talked to
the dr. after the procedure & she says it looked like
cancer, but will have to wait until the pathology report.
Very nervous, I am having trouble waiting for the results

I

Hi Irene
Try to stay positive. I'll keep you and your husband in my prayers.

Hello. We found my 81 year old mother has bladder cancer this week.
It is:
Papillary
Noninvasive
Low grade
Stage 1
Uninvolved
The tumors were 1 superficial & 1 deep but did not enter the muscle.
They think they got all of it but since it was over 3mm they are going to use immunotherapy with BCG.
Mom is having some physical discomfort in her abdomen but the bigger issue is that she is so freaked out she is disassociating which makes it difficult for her to retain information about her condition & what she should be doing. I’ve been trying to help her learn to calm down with breathing - working towards meditation etc. but I don’t live close.
questions:
Has there been anything that you/yours have found to be helpful to decrease side effects or increase comfort throughout this process?
Have you found a guide for eating to:
Know which foods are best to consume/avoid for people dealing with bladder cancer? To boost health & decrease possible recurrence?
Thank you for your time & I’m sorry for whatever scenario landed you in this spot.

Hi Irene
Try to stay positive. I'll keep you and your husband in my prayers.

So sorry to hear about your mother's diagnosis and anxiety. I began BCG treatments last Monday. Insertion and removal of the catheter were briefly uncomfortable, but insertion of the small amount of BCG involved no discomfort. I'm incontinent, so needed to remain in the treatment room for an hour. A pillow, warm blanket and a tv remote made the hour speed by. After treatment, I had a slight burning sensation during urination for two days, a tiny amount of blood in my urine, but none of the potential side effects noted in the literature. Prior to treatment, I had anxiety; after all it's unfamiliar territory. But there's no need for exceptional anxiety. I do have a supportive wife, family and friends, many of whom prayed for me. If you understand that professionals implementing your care are highly trained, capable, kind and experienced, it helps moderate anxiety. But there's no substitute for prayer because you need God's help for healing. I'm 84 years old with an aggressive form of bladder cancer. With BCG treatments planned for the next five weeks, I've been wondering if I'd be able to play golf now that the weather is moderating here in Minnesota. Well, my first BCG is behind me with no side effects. So I'm planning to make a tee time next week. For that I'm grateful to Mayo Clinic for professional help. I'm certain God will eliminate the cancer if that's what He has in mind for me. But I know God will walk with me either way. My bottom line recommendation: Pray for your mom, but also seek help from family or friends who may be able to provide on-site support to help her through this unfamiliar valley and ease her anxiety. I'm not a physician, but my doctor tells me he is confident my aggressive bladder cancer can be controlled with non-surgical measures. BCG may be all that's needed. From your description of your mother's diagnosis, I suspect my doctor would pass along to her the same prediction.

Hi all,

I am new to the group and wish I had known about this 7 years ago. I am an avid biker and after a long bike ride back in 2018, I saw blood in my urine. The local urologist I went to said he saw a tumor in my bladder. I was shocked as this does not run in family and am very healthy.
The surgeon removed the tumor which was a high grade but had not gotten into the bladder wall. I can thank the lord that it was detected early. Another month and it could have been a different recovery. I started BCG treatments for the next few months and made it through 90% until my body started to reject them.
Bladder was monitored via cystoscopy over the next 7 years, every 3 months , then 6 months and last 2 years it was yearly, all negative. It was starting to feel like I had gotten past this and my dr felt the same.
However, this last month, the scope revealed a small growth on the back wall of my bladder. After 7 years!!!
The surgery was yesterday and we are waiting on the pathology report to determine the next steps, bCG or other immunotherapy.
I wonder if there are any case studies or data to support using bCG as a preventive. The prior year, the scope was clean.
Has anyone had similar experiences?

Hi. My name is Ron. I was diagnosed with invasive, high grade, cancer in my right utterer 9 months ago. It became high grade bladder cancer before I could have it removed. I have had Turbt surgery to remove as much of the cancer as possible. After that, I had 4 rounds of chemo in preparation for a radical cystectomy. That is scheduled for May 8th.

Luckily, the original cancer was found totally by accident. So, I’m hoping to be cancer free after my surgery. I plan on having an ileal conduit with a stoma.