DISH (diffuse idiopathic skeletal hyperostosis) or Forestier's

I am too a dish patient. I have bone spurs in my shoulders, and I have arthritis in my toes, my feet ankles, knees, hips I believe I even have bones spurs in my elbows. I feel like I have a lot of tendinitis as well which spine specialist said is one of the hardest things with dish I’m a frequent flyer at pain management. I just got bilateral RFA’s on Thoracic back.
Of course I’m overweight and I do have some cholesterol issues which we are ready to switch medications and see if that helps a little bit. I am also diabetic, but my numbers are good except for when I get steroid injections then they go up for a little bit, but usually back down to baseline less than a week. Diabetes is well under control. I feel like I’m wrecked with pain and I think I Noticed the first signs when I was about 30. I had bone spurs in the back of both heels and the bottom of both heels. But didn’t know what it was until just a few years ago.
I work in a very stressful job and healthcare and it’s getting even more stressful with whole hospital integrated computer system. I’m sure all the extra stress doesn’t help my condition either. I have been amended from some of my duties at work but still a lot of stress and I try to do as much as I can even though I shouldn’t be doing what I’m doing. Lately I’ve been working upwards of close to 50 hours a week, and maybe more coming up once the computer system goes live .
Of course we all know stress doesn’t help our physical self or mental self.
I wish you all luck and good providers with this disease. I am trying to avoid any kind of surgeries if possible. I’ve had enough in my lifetime already.

Hello,
I'm Becky.
I have recently been diagnosed with dish disease and would also like to connect with others.

I was diagnoised with DISH last april a year ago. I thought it was a double crick on both sides of my neck and I went to a chiropractor and a massage therapist for 2 or 3 months before I went to see an orthopedic doctor here in Fayetteville AR. He sent me for an MRI and it came back that I had " Diffuse Idiopathic Skeletal Hyperstosis or DISH. They said all my verterbra have fused and ligments are turning to bone. I get an epidural shot in my neck 4 times a year that medicare will pay for. Question ? What type of meds do any of your doctors prescribe for you. The pain I have is like gout on both sides of the back of my head , neck and down back. Its like a vice grabs a hold of me and will not let go. I can exsert my self one day and next day I pay for it with Pain and locking up the turn on my head to 10 degrees.

For years I was told my pain was fibromyalgia but after having Covid the pain in my body hit hard and a year after Covid I could not turn my head to check traffic. Made an appointment with a neurosurgeon had X-ray on my spine and was diagnosed with DISH. I never stopped working in the garden, walked two miles five days a week, did very heavy lifting. Painted and wall papered my home was always active while I believed it was fibromyalgia. Now it’s a new disease and is coming on fast. Not sure if Covid had anything to do with it but my pain has been bad since Covid. I still work in the garden but no longer plant huge bushes because of pain. I do believe heavy work for years took its toll on my body.

Is anyone having internal organ problems, hernias, prolapse issues? Just wondering if DISH takes a toll on all ligaments and tendons.