Anyone from Canada?

Posted by amn17 @amn17, Sep 19, 2018

I would like to connect with anyone from Canada...

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

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@tevadog

What is a picture line. I have BE with MAC and another infection plus depression, anxiety with adhd. Im new to this site tho have been years with BE on antibiotics, too, when my cough is bad or bloody phlegm. Cipro really helps the infections.

I'm interested in what others are doing which helps them. Good luck.

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PICC line is peripherally inserted central catheter. Line inserted into arm that gets threaded through a vein to near the heart. Used to adminster IV meds. Infusions can be done at home with medical supervision and training. I am going to be getting antibiotics that way every 8 hours.

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@mholm

Hi Esther

I live in Penticton with mild MAC and bronchiectasis. I'd love to join your education and support group.

Margaret

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Hi Margaret
Send me your phone number and I will call you. I am in Toronto.

Looking forward to speaking to you.

Esther

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@helpme33

Hi Margaret
Send me your phone number and I will call you. I am in Toronto.

Looking forward to speaking to you.

Esther

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Canadian Bronchiectasis/NTM Support & Education Group

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@tevadog

What is a picture line. I have BE with MAC and another infection plus depression, anxiety with adhd. Im new to this site tho have been years with BE on antibiotics, too, when my cough is bad or bloody phlegm. Cipro really helps the infections.

I'm interested in what others are doing which helps them. Good luck.

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I am the Canadian Bronchiectasis/NTM Education and Support Group Coordinator.
Message me and we can set up a time to have a phone call.

Esther

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@payette78

PICC line is peripherally inserted central catheter. Line inserted into arm that gets threaded through a vein to near the heart. Used to adminster IV meds. Infusions can be done at home with medical supervision and training. I am going to be getting antibiotics that way every 8 hours.

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I'm so sorry. Is this for bronchiectisis or it's infections. What is this concern?

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@tevadog

I'm so sorry. Is this for bronchiectisis or it's infections. What is this concern?

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NTM infection, specifically mycobacterium abscessus (similar to MAC but a different bacterium). M. abscessus is difficult to treat because it is resistant to a lot of antibiotics but hitting it with 3 IV ones initially is standard from what I have read. Also have bronchiectasis.

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@fingerlessknitts

Hi I’m also in Canada
45 miles north of Barrie on the shores of Georgian Bay in the boonies. Took forever to be diagnosed something like 10 years
Bx MAI very mild I do mucus clearances and have a puffer to help with that otherwise quite healthy
Ive been through 2 family drs both have now retired so I’m left without one. dr who diagnosed by Dr Tailor his office is in Barrie

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My dad grew up in Midland. Love Georgian Bay.

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@helpme33

Hi Margaret
Send me your phone number and I will call you. I am in Toronto.

Looking forward to speaking to you.

Esther

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Thanks

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@helpme33

I am the Canadian Bronchiectasis/NTM Education and Support Group Coordinator.
Message me and we can set up a time to have a phone call.

Esther

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Esther can you post the Canadian group meeting info here?

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