I am living in Toronto and have mild bronchiectasis and mac diagnosed 6 months ago. I started on the big 3 about 4 months ago. There is a very helpful Canadian mentor from Toronto on the NTM site.
@kaymr and @brigi Welcome to our Connect community, you will eventually meet several members from Canada. It is great when we have members who understand the nuances of our enormous and complex health care systems who can make suggestions and provide tips on navigating them.
I spend my winters with a number of Canadian and Mexican friends and we have learned a lot from one another about our respective health care systems - it seems so bizarre to me that we are neighbors, yet our systems are so wildly different.
One thing that I find helpful, when naming Brand Name medications, is to include the common or generic name of the drug. For example, in the US & Canada a formoterol/budosnide inhaler has the brand name of Symbicort or Breyna, in Mexicao and South America it is Vannair.
Hi I’m also in Canada
45 miles north of Barrie on the shores of Georgian Bay in the boonies. Took forever to be diagnosed something like 10 years
Bx MAI very mild I do mucus clearances and have a puffer to help with that otherwise quite healthy
Ive been through 2 family drs both have now retired so I’m left without one. dr who diagnosed by Dr Tailor his office is in Barrie
Esther, I just heard about this group. I sent you an email as well. Any information regarding support would be greatly appreciated. I live in Vancouver BC.
Also from Canada. New Brunswick. Just saw an infectious disease doctor yesterday. Awaiting results of m abscessus susceptibility tests from national lab in Manitoba. Will be getting a PICC line and 3 antibiotics (to be determined by test results) every 8 hours at home for 3 months. There's an extra mural program here for support in managing all this at home, but I am still pretty nervous. My days of 8 hours of sleep a night will be over for at least 3 months. Hope I can go on oral after that. Whew!
Also from Canada. New Brunswick. Just saw an infectious disease doctor yesterday. Awaiting results of m abscessus susceptibility tests from national lab in Manitoba. Will be getting a PICC line and 3 antibiotics (to be determined by test results) every 8 hours at home for 3 months. There's an extra mural program here for support in managing all this at home, but I am still pretty nervous. My days of 8 hours of sleep a night will be over for at least 3 months. Hope I can go on oral after that. Whew!
What is a picture line. I have BE with MAC and another infection plus depression, anxiety with adhd. Im new to this site tho have been years with BE on antibiotics, too, when my cough is bad or bloody phlegm. Cipro really helps the infections.
I'm interested in what others are doing which helps them. Good luck.
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I am living in Toronto and have mild bronchiectasis and mac diagnosed 6 months ago. I started on the big 3 about 4 months ago. There is a very helpful Canadian mentor from Toronto on the NTM site.
@kaymr and @brigi Welcome to our Connect community, you will eventually meet several members from Canada. It is great when we have members who understand the nuances of our enormous and complex health care systems who can make suggestions and provide tips on navigating them.
I spend my winters with a number of Canadian and Mexican friends and we have learned a lot from one another about our respective health care systems - it seems so bizarre to me that we are neighbors, yet our systems are so wildly different.
One thing that I find helpful, when naming Brand Name medications, is to include the common or generic name of the drug. For example, in the US & Canada a formoterol/budosnide inhaler has the brand name of Symbicort or Breyna, in Mexicao and South America it is Vannair.
Sue
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2 ReactionsHi I’m also in Canada
45 miles north of Barrie on the shores of Georgian Bay in the boonies. Took forever to be diagnosed something like 10 years
Bx MAI very mild I do mucus clearances and have a puffer to help with that otherwise quite healthy
Ive been through 2 family drs both have now retired so I’m left without one. dr who diagnosed by Dr Tailor his office is in Barrie
Glad to hear you are healthy and managing your symptoms well..What type of puffer do you use? Thank you
We have an Education and Support Group in Canada - our meetings are on zoom.
Contact me anytime!!
Esther
Esther Steinberg
Bronchiectasis/NTM Organization of Canada
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2 ReactionsThank you
I’ve tried an Arobika alone and couldn’t get anything to come up and out using Salbutamol puffer makes all the difference in the world!!
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1 ReactionEsther, I just heard about this group. I sent you an email as well. Any information regarding support would be greatly appreciated. I live in Vancouver BC.
Also from Canada. New Brunswick. Just saw an infectious disease doctor yesterday. Awaiting results of m abscessus susceptibility tests from national lab in Manitoba. Will be getting a PICC line and 3 antibiotics (to be determined by test results) every 8 hours at home for 3 months. There's an extra mural program here for support in managing all this at home, but I am still pretty nervous. My days of 8 hours of sleep a night will be over for at least 3 months. Hope I can go on oral after that. Whew!
What is a picture line. I have BE with MAC and another infection plus depression, anxiety with adhd. Im new to this site tho have been years with BE on antibiotics, too, when my cough is bad or bloody phlegm. Cipro really helps the infections.
I'm interested in what others are doing which helps them. Good luck.
Hi Esther
I live in Penticton with mild MAC and bronchiectasis. I'd love to join your education and support group.
Margaret