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Heart Palpitations
Hi Everyone, whew, where do I start ? I've been to 6 cardiologists, ( 2 were electrophysiologists ) over the last 11 months and basically I have them all scratching their heads on why I get REALLY bad heart palps, and I mean BAD ones to where it feels like someone punched you in the chest an hour ago, that's how it feels if you can imagine having that happen to you and then I get light-headed and disorientated to where I just want to sit and not talk or move for an hour or more until I get back to normal, usually this takes a few hours. Yes I get them THAT bad. I'm hoping that this group can help me because I'm at the end of my rope. One electrophysiologist said what I described to him was " impossible " to be happening, I'm really starting to wonder if I was born on another planet, I can't be the only person in the world with the heart palps that I have.
Mine basically come in two stages, I feel a pressure on the left side of my heart and then a strong thump in the heart itself, this happens within 2 seconds and then it's gone until the next time, no it doesn't happen all day, mine come as fast as they go but when them come it's like a Mike Tyson punch. I usually get these about once or twice a day. I've done every test imaginable, Nuclear Stress Test, Treadmill Stress Test, 2 heart & neck angiograms, 2 twenty four hour Holter Monitors, Echocardiogram, and numerous EKG's and blood tests and every single test comes back absolutely normal, so ( as one cardiologist put it ) " If we can't diagnose what's wrong we can't treat it " That makes sense but I'm still going through this with no new info, no meds, no nothing, I have the same knowledge that I have of whats wrong with me that I did when this all started 11 months ago and that is NOTHING at all, no more knowledge, no meds, nothing.
Here's more info on me, I " had " CLL, Chronic Lymphocytic Leukemia, (13q14 deletion ) they caught it fast and treated it with FCR chemo and within 3 months ( not 6 months which is standard ) I was in full remission, if you don't understand what this means I'll just put it this way, if you HAD to get leukemia then this is the one you want to get, it's the most common and most treatable out of all the leukemia's and as much as oncologists " can't " say that I'm cured from this they pretty much say ( in your ear ) that you're cured. Now with that said, every Dr, Oncologist and Cardioligist all agree that this is not the cause of my palps, could it be from the chemo ? Yes possibly but I was diagnosed with CLL in April 2016, the palps started in December 2015 and I did the chemo in May 2016 so you see it doesn't match up.
The ONLY relief I get from the palps is when I take Magnesium Citrate, I tried Magnesium Taurate ( which they say is more for the heart ) but I've noticed that the Citrate works a lot better. Ok so you're saying why are you on here then, just take the Mag.Citrate right ? Well there's a problem, when you take Mag.Citrate on a regular basis you literally have to run to the restroom like 10 to 15 times a day, and when I say run I mean RUN !!!!! From what my last cardiologist said " They give Mag Citrate to people who are about to have a colonoscopy to clean them out " and trust me I believe him. So my question is does anyone know what else I can do to alleviate these palps without running to the restroom all day long ? My quality of life has sunk, I either have palps so bad that I can't enjoy life or I'm running to the restroom every half hour, I don't know which one is worse. I've also tried taking potassium and CoQ10, neither works or am I not taking the right dosage ?
Lastly, does anyone have any knowledge of the " Vagus Nerve " ? It's a nerve that pretty much connects your heart to other parts of the body and I'm thinking when the bad palps hit me it's " short circuiting " the Vagus Nerve and that's what makes me light headed. Any help would be greatly appreciated folks. I'm thinking that with the right supplements I can live with this, but what are the right ones and the right dosage ?
Thanks
Mikey P
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Hey @mikeyp, we haven't heard from you for a while. Any developments with the palpitations? How about the kidney stones?
Hi Colleen,
The palps have slowed down on their own without taking any meds or vitamins whatsoever, go figure because I can't, the only thing I can think of is the chemo I was taking " could " cause the palps and now it's been 7 months since my last chemo so I guess it's finally wearing off. My urologist said I have a urinary tract infection and has me on antibiotics for a week, most likely from the stones, thats pretty much it with me right now, thanks for asking.
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1 ReactionHey, I dunno if you are still wondering about this, I know this post is old, but if still, Google Pvcs and PACs. They're generally normal.
@mikeyp Hi, Mike. Two quick notes. First Nothing in the Human Body is "normal". We are all different. Second, my pvc's, palps, and pacs arre symptoms of Cardiac Light Chain Amyloidosis, which will kill me one day soon, without warning. My doc also said UTI, which does show up occasionally, and has brought on severe bleeding at times. oldkarl https://bit.Ly/1w7j4j8
I was in auto accident with L trauma in 2005.
Just told after palp's driving me nuts (by chiropractor) that I have a hernia prob pressing on heart.
Well that explains palp's when bending over, positional, when I eat or drink also.
So now just have chiropractor adjust back and pull diaphram down from heart.
No caffeine. No sugar. No lifting. I do EVERYTHING slow, espec eating.
Hardly no carbs. Just fish, chicken, veggies and fruit.
I remember getting my first palps when I crashed my bicycle at maybe 9 years old. I have lived with them on and off ever since. To make a long story short I have used every type of magnesium know to man and for the most part they do help. I am getting ready to retire in July 2019 and wife and I are moving to florida. We went to visit friends a few weeks ago and the palps started again with a vengeance. Its been daily now for 3 weeks! Im back to trying different mags and some actually make it worse! I saw a dr. on youtube say that they can be electrolyte levels so I picked up some Gatorade and they got worse? Today I tried Mag. Taurate and they got worse? I do go to the gym often and luckily they don't bother me too much when exercising, But there have been times when I get them at the gym I just stop and go home. There has to be a reason for these life stalling bumps in the chest. Still in search of..
I had colonoscopy and throat camera at age 55 and ever since then I started getting Chest Pains, some minor some harder. Dr said I have hiatal hernia? Its never bothered me and I rarely get heartburn? I have had 3-4 stress tests in my life and actually told Dr as they were occurring on the machine and he looked at me as if it was impossible to detect. I feel every little bump and he circled as I told him. he said PVC's just ignore which I do for the most part.
Harry
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1 ReactionI too have had similar experiences. My doctor likewise has brushed it off. I have read where there is a connection, via the vagus nerve which can be stimulated and cause palpitations. Google it, you will find there is a lot of information about the connection. I was recently weaned off Metoprolol, and have experienced both palpitations and a fast heartbeat. However there seems to be a connection with eating. I have only gotten those symptoms, when I had eaten a large meal, and like you had to burp a lot. On days where I ate a salad for dinner, or a less filling meal, I had none.
I burp at any time of the day if i start some aerobic exersize and at the same time my heart rate increases .
No doctor has been able to explain.
Now I an on some ayurvedic medicines. Let me watch.
Are you still having this problem and have you gotten an answer? I, too, have this problem. I will look up the Vagus nerve.