Ascending Aortic Aneurysm-Tips for post surgery

Posted by frisco07 @frisco07, Mar 30, 2025

My husband is 69 and will be having open heart surgery at Mayo for ascending aortic replacement on 4/11/2025. For those of you that are post-surgery, do you have any suggestions or tips that worked for you to ease the pain and promote your recovery after surgery. I saw one comment on a bidet and a few other general comments, but hoping for any other suggestions that will be helpful to him and ease some of his anxiety for the recovery process. For all of you contributing post-surgery experiences, your experiences and insight are hugely valuable to the rest of us following in your footsteps! Thank you for taking the time to help others!

Interested in more discussions like this? Go to the Aortic Aneurysms Support Group.

Hi there @frisco07
I am just checking in with you to see how you are both doing.
I hope you are well, and not worried too much about tomorrow (4/11).
I am sure things will be fine, and everything will go according to plan.

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Profile picture for martinkennot @martinkennot

Hi there. Sounds like you are the support he will need. My wife was the same for me. I would not have made it to the hospital that night without her.
I had a dissection and aneurysm and drs replaced the asc aorta and other bits in OHS.
Search for my first posts to this forum about 1+ year ago. I have a list of recovery tips.
The most important (for me) was to practice lying on my back when sleeping. If your husband can do it now start sleeping on his back only. After surgery he MUST sleep on his back for at least six weeks to let that sternum heal. And it took me about six weeks to get used to it and it wasn't nice at all. I was an emergency surgery so no time to practice, and no idea what I was in for. I went for 3 months on my back and now it is hard for me to do otherwise. But it is a good thing.
So that first six weeks is going to be the most important to get that sternum right.
Therefore, no reaching, no stretching, no bending over, no tying shoes, no crouching, no physical twisting or flexing. They told me about the cylinder, keeping within an invisible cylindricalbarrier, tucking elbows gently in, and not extending out arms for any reason.
I needed assistance for showering, dressing, getting into and out of bed, going to the bathroom (esp number two) and wiping. I found it easier to have shower after the number two than to try too hard to reach around.
(sorry everyone for the descriptions - but we are all here for a reason)
If your bath is also a stand-in shower then getting into and out of will be difficult. Try to avoid slipping. Really try. A slip can tear wounds and break fragile mends.
Wear slip-on, safe shoes. Open shirts that button easily - there will be NO over-the-head method of wearing shirts. Same with pyjamas.
The sternotomy wound will be super-sensitive - give it some space. For me the slightest touch meant excruciating pain and discomfort. (back sleeping to the rescue!)
Walk.
He will need to walk even though he won't like it.
I forgot how to walk. I was in ICU 5 days and in the ward I couldn't walk. My body was ruined and exhausted from the surgery and recovery. Nine hours or more for my OHS.
Walk outside on nice flat ground, grass or pavement. The legs are the powerhouse of the body. They will pump the blood and keep things in sync. Don't push too much, don't struggle, and stop every few yards - strength will return after a time. I used to go to the mall and walk up and down past all the stores. Kept my mind active so I would forget how boring walking is. Make sure there is plenty of supports.
Get out of the bed, and out of the chair. He is not going to re-learn how his body should move if he is lying in bed. But he should pace hmself, and not go too hard.
Focus on good foods, and some meds will make everything taste like cardboard. But eat like you're sick (because you are) and get the best nutritious foods. That heart has to heal and the wounds have to mend. Give the heart and aorta so much love and support.
Check yourself (and when I say "you" I mean "him" because this is general advice for all "you"). Check for symptoms and signs. If you are doing to much - stop. Your body will tell you when it is hurting and you have had enough. If things change esp chest and heart, seek medical help.
Check urine and poop for any signs of blood (internal bleeding) - if found, seek help.
Take meds - always. Never skip a day for any reason - you can quibble with doctors later but for a start take your meds. If you have missed a dose, don't double dose or "catch up". Just take the dose later that night or when you remember and resume dosage next time and listen to pharmacist or doctor advice - that will be a question to ask before discharge from hospital. What if I miss a dose?
Get into a rehab program - think about it now. I don't think I live near you so I cannot help here. But there should be at least one hospital offering cardiac rehab. Don't skip the education component, and attend with him so you can learn something.
Ask questions. Always ask questions. Information is a powerful tool for recovery. PM me if you need. My CT angio scan is on 11th. I will thinking about your stories.
Tell us all how you are doing.

(edit: I just realized how long that comment is - sorry, but I hope it helps)

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God bless you both...beyond imagining what one has to deal with given this predicament. ALL is in His hands and take care of yourself. Praying is the best medicine for both of you. ✌🏻

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I had my surgery 03/25/2025 repair Thoracic Ascending Aorta Aneurysm 5,3 cm .
My Surgeon, Dr. Xydas Mount Sinai Medical Center, Miami.
I can not praise enough, what genius this team is.
2 days in ICU, 6 days special care unit, excellent. Starting Physio gentle already.
7 days REHAB inpatient at the same hospital.
Grandiose REHAB about 40 sessions one by one.
Being home for 5 days now made me recovered about 80%.
Shower, washing hair, getting dressed all myself under surveillance of my caring husband.
Even sleeping on my back is not a problem.
I never had pain, even when the pain killers have been taken off, after about one week.
The scar is almost invisible.
Getting the lungs completely free, I'm training every hour for 2 min. on this breathing device, they've given me the first day.
The coughing is a chellange getting the mucus out. But you hug yourself with a pillow, your best friend.
Last night, I slept like normal already. No coughing. I'm taking caugh medicine TUSSIN, before sleep.
I'm 79, female in very good shape, no other risk factors. This made a huge difference in the whole process.
I can't be more grateful for what happened to me the last 3 weeks, a miracle.
Hope, I could help someone, making a decision.

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AWESOME. So glad to hear you're on the other side of it. The pillow hug trick is my go-to move after 10 years post-surgery. So glad to hear you're doing so great!

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Profile picture for moonboy @moonboy

AWESOME. So glad to hear you're on the other side of it. The pillow hug trick is my go-to move after 10 years post-surgery. So glad to hear you're doing so great!

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Thank you moon boy.
I've been following your posts the last few months.
When I got this diagnosis 6 month ago, I thought, I never will undergo OPEN HEART SURGERY. Keeping it like Einstein in 1952: I wanna go when I wanna go........
But I educated myself, reading your experience. It's not always a sudden death.
I'm glad, I did.
I'm back to a normal life, without fear, and no restrictions, going on an airplane.
Thank you moon boy, helping me, making this lifesaving decision.

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🙂 I AM SO HAPPY FOR YOU!!!!!!! POST A PICTURE FROM YOUR TRIP!!!!

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Profile picture for moonboy @moonboy

AWESOME. So glad to hear you're on the other side of it. The pillow hug trick is my go-to move after 10 years post-surgery. So glad to hear you're doing so great!

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The heart pillow Mayo sent home with me was/is the #1 most important thing they gave me followed by a distant second for the "Jack" Reacher tool! I didn't even bother with a walker.

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Profile picture for celaud @celaud

Thank you moon boy.
I've been following your posts the last few months.
When I got this diagnosis 6 month ago, I thought, I never will undergo OPEN HEART SURGERY. Keeping it like Einstein in 1952: I wanna go when I wanna go........
But I educated myself, reading your experience. It's not always a sudden death.
I'm glad, I did.
I'm back to a normal life, without fear, and no restrictions, going on an airplane.
Thank you moon boy, helping me, making this lifesaving decision.

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This is wonderful! I'm 79 and have been questioning whether I'd ever have the surgery. I'm at 4.2 now with another scan scheduled for July. Your experience has me thinking in brand new directions. This support group is invaluable!

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Profile picture for moonboy @moonboy

🙂 I AM SO HAPPY FOR YOU!!!!!!! POST A PICTURE FROM YOUR TRIP!!!!

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I'm not going on a trip soon.
How can I post a picture??

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Profile picture for celaud @celaud

I'm not going on a trip soon.
How can I post a picture??

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When you post a comment, there is an option below that says Add photo/Files, click on that and find your file

So good you’re doing well!!!

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