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@contentandwell I was also on rifaxomin which complimented the lactulose pretransplant. Yes my HE episodes were debilitating. Total memory loss. I had no idea what month, what year or what day it was. I couldn't remember my address, my phone number or any important dates. It took me almost a full year to start remembering anything day to day. Post transplant my memory has dramatically changed but limited to only 4 months after surgery. I know that I spent Christmas 2018 on the transplant ward in hospital. and went home sometime in the new year. I then was re-admitted 2 weeks later to have surgery on an artery between my heart and liver and was reopened along my surgical scar and had all my staples administered for a 2nd time. Then I had a blocked bile duct that took 4 ERCPs to implant a stent. I contracted pancreatitis 3 times and if you look it up it is the most painful thing to endure. I was on morphine, tramadol, and other painkillers which I cant remember. It's been a trial to say the least. Today I had a cancerous skin lesion removed from my arm (which developed post transplant) by the plastic surgeon. Pathology results pending. Yes I'm grateful still. I'm alive and soon I will be close to recovery. My one year anniversary is Nov 28th.
Replies to "@contentandwell I was also on rifaxomin which complimented the lactulose pretransplant. Yes my HE episodes were..."
@gaylea1 I remember being in the hospital and they asked me what day it was, what month, who the president was. I knew nothing and asked how the heck did they expect me to know the date when there I was stuck in a hospital room with no outlet. When they asked me who the president was I said Bush, but it was Obama of course. The nurse thought maybe I had really liked Bush. One nurse complimented me on my complexion and asked what products I use. I didn't remember right away but by the time she came back to my room I had and told her, and then it became somewhat obvious she was just testing my memory. As soon as the HE episode ended though my memory was pretty normal.
You have had a very hard time. I hope the results of the biopsy are good, you deserve a big break.
JK
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I see you have a positive attitude that will always help you get over the issues. I pray the future is bright and this period will be a memory real soon.