1. < Neuropathy

Neuropathy Pain at Night: What helps?

Posted by Donald @donfeld, Jun 8, 2020

THC or marijuana for me relieves pain from neuropathy. It works every time takes a few minutes and a few puffs of smoke and it comes it down for some crazy reason that makes this drug so popular.

Interested in more discussions like this? Go to the Neuropathy Support Group.

tntwo99 | @tntwo99 | 4 days ago
In reply to @intlguyct "Also 86 years with Non-diebetic PN for about 10 years. It’s now progressed from my toes..." + (show)
@intlguyct

Also 86 years with Non-diebetic PN for about 10 years. It’s now progressed from my toes to about midcalf. Hands are also an issue but feet are worse. Night pain in both feet begins in heels and top of arches after abut two hours every night. For those who haven’t tried this, I have had some had success with taking two Tylenols nightly and resting my ankles on a rolled up blanket with my feet hanging over the end. All I need is about a one and a half inch roll, just enough to keep my heels off the mattress, and that’s enough most nights to keep my pain away and improve sleeping. Won’t work for everyone but likely will help for some and it’s free.

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I am 78 years old and started with non-diabetic neuropathy after having chemo for breast cancer in 2001. The first question my oncologist asked when I saw him after my treatments was "How are your feet"? I didn't have pain just numbness. Then in 2017 I had sepsis which in turn put me in Septic Shock from cellulitis in my lower leg and prosthetic knee. From that, I developed lymphedema which in turn started the painful burning neuropathy. The pain in my feet was just as if I was wearing very tight sandals. I could actually feel the straps on my feet. Sometimes I even checked to make sure I didn't still have shoes on. I now have Purple Toe and Feet because of poor circulation in my lower legs. The pain on the soles of my feet is like they are cracked. I checked with my doctor to see if I could try magnesium cream and waiting to hear back. I can't take a supplement due to CHF. I don't know what I would do without diclofenac and lidocaine patches.

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1kay2 | @1kay2 | 3 days ago
In reply to @intlguyct "Also 86 years with Non-diebetic PN for about 10 years. It’s now progressed from my toes..." + (show)
@intlguyct

Also 86 years with Non-diebetic PN for about 10 years. It’s now progressed from my toes to about midcalf. Hands are also an issue but feet are worse. Night pain in both feet begins in heels and top of arches after abut two hours every night. For those who haven’t tried this, I have had some had success with taking two Tylenols nightly and resting my ankles on a rolled up blanket with my feet hanging over the end. All I need is about a one and a half inch roll, just enough to keep my heels off the mattress, and that’s enough most nights to keep my pain away and improve sleeping. Won’t work for everyone but likely will help for some and it’s free.

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thank you, it sounds good.

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1kay2 | @1kay2 | 3 days ago
In reply to @robertspen7 "I have severe foot neuropathy in my feet burning numbness pins and needles it's horrible. from..." + (show)
@robertspen7

I have severe foot neuropathy in my feet burning numbness pins and needles it's horrible. from walking on floor joists and roof rafters for many years. what works for. y pain is a high dose of Gabapentin and Norco. Like I am saying it takes away the pain but not the numbness. I was in total hell until I started the gabapentin sleepless nights, again it was horrible 😫 !

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I also have neuropathy for many years. My doctor would not let me take gabapentin, I take one 0.125mg mirapex at night and it is gone immediately.

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1 reply
darrylp | @darrylp | 1 day ago

I have found that half a THC/CBD gummy at bedtime helps me get through the night with my body-wide neuropathy symptoms. I’m a bit worried about taking the gummies on an upcoming trip to Europe.

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nrg | @nrg | 1 day ago
In reply to @johnbishop "@donfeld, You will notice I changed the discussion title to more reflect the topic and help..." + (show)
@johnbishop

@donfeld, You will notice I changed the discussion title to more reflect the topic and help members find your discussion. You mentioned in another discussion that you slept in a recliner and the night pain went away. Do you still find that helpful to reduce or make the pain go away?

I have lymphedema and my right leg tends to swell up during the day even though I wear compression socks to help with the lymphedema. I put a pillow under the mattress at the bottom of the bed to elevate my legs slight and help with the fluid retention and swelling. I've read where other members have used blanket and sheet tents to raise the sheets off of their legs to help with the pain they feel when the sheets touch their legs. There is another discussion you might find helpful if you have similar problems with fluid retention.

Correlation between increased neuropathy pain and fluid retention?: https://connect.mayoclinic.org/discussion/correlation-between-increased-neuropathy-pain-and-fluid-retention/

@jeffrapp @rwinney @jimhd @artscaping may also have some thoughts about neuropathy pain at night and what helps.

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I have had nerve pain since 2015 and three spine surgeries later I finally found something to help with that. I received 19 laser treatments and haven't taken anything for pain in 9 weeks. Some insurance is accepted for this process but I had to pay out of pocket.
Baclofen 3 to 5 times a day as well as St John's Wort five pellets three to five times a day. One of my clients is a war veteran and also taught me that organic Frankincense applied topically five times a day really significantly helped me with nerve pain.

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nrg | @nrg | 1 day ago
In reply to @1kay2 "I also have neuropathy for many years. My doctor would not let me take gabapentin, I..." + (show)
@1kay2

I also have neuropathy for many years. My doctor would not let me take gabapentin, I take one 0.125mg mirapex at night and it is gone immediately.

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That's one of the few things I haven't tried.
Hopefully there are no side effects for you 😀

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