Had Septical Myectomy six Months ago and it returned
Has anyone at six months, after a Septical Myectomy have it return.
My has come back and I am devastated..
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Thank you so much, I will look into it I really do appreciate the information ...
My cardiologist said that for my HOCM, which has become obstructive, septal myectomy (I think that's the one where a chemical is used to thin your heart walls?) would not be for me, and that some sort of cutting or shaving of the heart walls would be what I would get. But she told me that the drug Camzyos would be the first step. I started Camzyos about a month and a half ago and symptoms are better, but stress makes them worse. And the constant monthly rules every single month to get the next month's supply of Camzyos are a pain in the neck, with the fear that at any moment, I might need heart surgery anyway... Has anyone had the "cutting or shaving" heart surgery to thin their heart walls for their HOCM? What was it like? What was recovery like and how long did it take? How long in hospital?
You came to the right place because MANY of us have had surgery for HOCM! You are at the "sorting it all out" stage and asking questions. The chemical treatment is called alcohol ablation, not right for me, either, per both my home cardiologist and the Mayo team, because of the location of my obstruction. The surgery is septal myectomy and the procedure removes the obstruction. Going to a COE (Center of Excellence) for the surgery is highly recommended because of the expertise and experience of the surgeons. What was it like? It is major surgery and each of us had different specific experiences. I was 75, active lifestyle, the recovery was not difficult for me but took several months - hearts undergo trauma and must heal. I was in the hospital 5 nights. I hope I answered your questions. Debra @karukgirl, our mentor, started another related blog about how it all went, do look for it.
jmr091805 look for this: What I Learned From My Open Heart Surgery
https://connect.mayoclinic.org/discussion/what-i-learned-from-my-open-heart-surgery-part-1/
@walkinggirl says it all so well...I couldn't say it any better!
This is the link she mentioned, but do take time to poke around here and read as much as you can. If you see at the top of this page a search area, type in Septal Myectomy and you will be surprised by all the different conversations that have taken place here.
thank you! I saw my other cardiologist today by coincidence and asked him. he explained the surgery (the septal myectomy) exactly as you did. My doctors are all at COEs in Los Angeles. He added that the septal myectomy may well require a pacemaker. And that after one has this surgery, and is fully recovered, there will probably still be chest pain from the heart for life.
That's wonderful that a COE for septal myectomies is in LA if you live near there. what is the name of the hospital that's a COE? That means they do many of these surgeries every year. I have no chest pain, others may. I initially had no pacemaker, about 3 weeks after surgery I started experiencing dizziness sometimes with vertigo. To make a long complicated story short, I got a pacemaker 4 months after surgery after my cardiologist and his colleagues figured out the reason. It's my buddy!
Did you have your surgery at Mayo?
No at a Hospital in FL that is well known for doing surgery, including Septical Myectomy.
LA has (at least) 3 COEs. Cedars-Sinai, UCLA, and USC. I see various specialist doctors at Cedars-Sinai and UCLA is where my cardiologists are. The UCLA cardiology practice group is perhaps one of the best in the world. I have been to Mayo in Rochester and Stanford, as well as to University of Chicago and Northwestern Memorial also in Chicago, but UCLA is surprisingly excellent beyond any of these others.