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Changes after Transplant

Transplants | Last Active: May 21, 2023 | Replies (197)

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@bexhall

There are two odd changes I’ve experienced. One, I abhor seafood of any kind and pre-transplant I was a fan. Second, I am no longer afraid of spiders. I didn’t have a conscious thought about it; nothing bubbled up and announced the revelation. I was at an outdoor gathering and there were two writing spiders in their web at the end of the porch and I just reached out and touched it without thinking about it. No fear whatsoever. It was surreal. I don’t *like* them, but the squeamishness I used to have is gone. I don’t react the same. The seafood thing was a physical reaction. My husband asked me to Red Lobster for a meal and I thought I would puke just thinking about it. Haven’t had seafood or fish since Oct. 2014. Which was when I received a new liver. There are some other odd changes like my taste in music, an obsession with color, creative expression wakened. Some I’m sure can be explained because of meds or age appropriateness or having a second chance at life. Whatever the reasons, I’m happy for the changes and my life has never been better!

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Replies to "There are two odd changes I’ve experienced. One, I abhor seafood of any kind and pre-transplant..."

@bexhall Strange, but I have also noticed changes in taste, lifestyle, and even entertainment and I am pre-op for a liver transplant. I have become more of a vegetarian almost completely cutting out meat in my diet. I also used to enjoy shellfish, curries and other foods that i now cant stomach. Although I have always been an avid reader I am reading almost exclusively cutting out television altogether. I do enjoy Netflix and Britbox though. I wonder how I will be affected post-op? Still haven't given up my fear of spiders yet!

I am interested to learn how you fare post transplant. Please keep us posted! All the best to you.

@bexhall, Wow! I can understand and identify with the food tastes. But the spider thing has me completely baffled! I still don't like spiders or any creepy crawly thing. Good for you.
Before my transplant when I was very ill, and minimal sense of taste, I fell in love with cinnamon. That is the one taste that has remained with me even after my transplant.

Thank you for sharing this personal experience. As a recipient, and now as a volunteer mentor, I am fully aware and appreciative of hearing about the experiences of other transplant recipients. Thinking back on my transplant life I can surely say that I wish I would have had the opportunity to converse with others in similar situation. We are like one big 'family' in a sense.
I have just returned from my annual evaluation appointment(s) and one thing that many of the technicians and nurses in a variety of departments noticed is the 'connection' that they have observed in the transplant patients that they see.

How long after your transplant did you have the seafood incident? What food choice have you found that will substitute for this favorite special taste?

Life is good! I will look forward to seeing you on other transplant discussions.
Rosemary

gaylea1 , I too, had severe food changes pre transplant. My sense of taste mostly vanished. That was compounded by nausea and the knowledge that I 'had' to eat to be healthy enough to have the surgery. I found that cinnamon and also lemon juice were my favorite condiments. My condition was complicated by the fact that I was also on dialysis, so I don't know if my experience is of any practical help to you.
I will be interested to hear about how your tastes change after your transplant. I know that your entire life will change!
I hope that you will soon hear that phone ring with your phone call of a life time. I know that the waiting is a difficult, one-day-at-a-time experience. It will happen - when the time is right.
Rosemary

@bexhall Hi, you have not specified a specific person in your message asking about faring post-transplant so assume it is a general question. My transplant was on 09.23.2016. I have fared excellently ever since, in fact I was doing great within a few weeks of transplant, better than even the transplant anticipated. The only problem has been that I have had some problems with the immunosuppressants. Tacrolimus was causing my creatine to get high so I was changed to sirolimus. Unfortunately the sirolimus causes me to have to take an anti-diarrheal. 🙁 Small price to pay though, overall.
JK

@bexhall I'm a believer in cell memory simply because our body knows how to deal with anything it is already experienced as compared to something new we are going through. This is evidenced by our antibodies, practice makes perfect, adaptation, evolution, personality & physical traits passed down through our DNA. Of course some things are not so easily explainable which explains why science is always changing what was, expanding what is & theorizing what we cannot confirm.