Looking to connect with people who have non-diabetic neuropathy

Posted by Ann broussard @user_ch98d0b5c, Aug 6, 2018

Would. Like to find people with this issue

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I have idiopathic pn. The only other thing my Neurologist could find on blood tests is very low B12, unsure why. So I take B12 injection every month now and gabapentin daily.
Has anyone ever tried TENS therapy for their PN? I initially tried it at PT and bought a unit for myself.
It helps with pain signals. I use it on my back as well.

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@3740

Tylenol … I have about 6-9 oz glass of wine with my meal every night. Is that bad? I have Neuropathy in my Hands & Feet.

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My alcohol consumption is beer, with an occasional shot of tequila. Nothing crazy.

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@3740

Tylenol … I have about 6-9 oz glass of wine with my meal every night. Is that bad? I have Neuropathy in my Hands & Feet.

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Alcohol is not good for neuropathy. But ever body and situation is different. Just monitor how it affects yours.

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I was diagnosed with non-diabetic neuropathy about 18 months ago. My neurologist kept insisting that I must be diabetic but after a series of blood glucose tests (one in which they draw your blood then give you something really sweet to drink, test your blood again and then 2 hours test it again) and I am not diabetic. My doctor did a battery of blood tests and the only thing they found wrong was that my B6 level was way too high. She told me to immediately get off of all vitamins containing B6 which I did. It took about 4 or 5 months but my neuropathy went away. This may not be your problem but definitely have them check your B6 levels if they have not. I have talked to people who had B6 toxicity for years before someone finally caught it.

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@arnrob

I would very much appreciate hearing about what works for you, as would a lot of us. Thanks. Arnrob

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I have peripheral neuropsychology located in in both feet and progressing to my hands, I'm am doing slot of research and one thing to take is b vitamins,do not take gabapentin it will cause more harn. I also wear socks that are made for neuropathy and bought myself a tens machine that help .please get in touch with me for all the research h I have done

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@sunnyme

I have peripheral neuropsychology located in in both feet and progressing to my hands, I'm am doing slot of research and one thing to take is b vitamins,do not take gabapentin it will cause more harn. I also wear socks that are made for neuropathy and bought myself a tens machine that help .please get in touch with me for all the research h I have done

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Please explain why nog gabapentin

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@januaryjane

I have idiopathic pn. The only other thing my Neurologist could find on blood tests is very low B12, unsure why. So I take B12 injection every month now and gabapentin daily.
Has anyone ever tried TENS therapy for their PN? I initially tried it at PT and bought a unit for myself.
It helps with pain signals. I use it on my back as well.

Jump to this post

Please do not take Gabapentin,it will make your symptoms worst.I have done multiple hours on this drug and it is not used for pn .It is an off label drug meaning it is for epilepsy . Pfizer made 2.27 million dollars sales on it and research said was no more effective than a placbo.it will cause other bad effects later.

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@januaryjane

I have idiopathic pn. The only other thing my Neurologist could find on blood tests is very low B12, unsure why. So I take B12 injection every month now and gabapentin daily.
Has anyone ever tried TENS therapy for their PN? I initially tried it at PT and bought a unit for myself.
It helps with pain signals. I use it on my back as well.

Jump to this post

Continue with B12 but definitely stop Gabapentin which will not help you at all. Unfortunately doctors suggest it but it does nothing for your pn. It is for epilepsy it is off label drug.Research findings found it was no more effective in treating pn than a placbo,itcould harmful effects later.

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@sunnyme

Continue with B12 but definitely stop Gabapentin which will not help you at all. Unfortunately doctors suggest it but it does nothing for your pn. It is for epilepsy it is off label drug.Research findings found it was no more effective in treating pn than a placbo,itcould harmful effects later.

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Tens therapy is helpful and now red light therapy. Also ,wear on socks really help.

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@pepperroot

Please explain why nog gabapentin

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I have done multiple research and found that gabapentin is anti seizure med the American Family Physician journal 2006 found that gab . was completely ineffective for acute np pain.It also stated with significant side effects

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