@kequick Thank you, great info in that link. I am a year and a half post-transplant. At this point, Medicare B pays for my immunosuppressants but someone on here said, a while ago, that is only for three years. If anyone else on here has gone through that, and had Medicare B stop paying, how well have the immunosuppressants been covered by Medicare D?
JK

@kellysmith1215 It sounds to me as if your coordinator is not as well informed as she should be. I get frustrated because the nurse who is the first point of contact is also not as knowledgeable as I think she should be. I actually sent a message on the portal to an NP there hoping she could help me but I got a message back from the other nurse, and in it she informed that ALL the messages go through her first. In other words, I had better be darned careful of what I say! She is always vague and basically gives me a non-answer.
JK

Does Medicare part b pay for all tour medication?

@kellysmith1215, Here is the link to the CENTERS for MEDICARE & MEDICAID SERVICES Medicare Coverage of
Kidney Dialysis & KidneyTransplant Services

This link opens the official government booklet on line.
It explains: The basics of Medicare, How Medicare helps pay for kidneydialysis and kidney transplants, and Where to get help
https://www.medicare.gov/Pubs/pdf/10128-Medicare-Coverage-ESRD.pdf

@kellysmith1215 Hi Kelly, I presume that question was directed at me.
Medicare B pays for my immunosuppressants, all other drugs are covered by my Medicare D, even prednisone which is something that most people take post-transplant but is not an immunosuppressant. Frankly, I'm not sure why prednisone is necessary, but I do take a small dose of it.
JK

Thank you

@kellysmith1215 OMG words defy how moved I am about your story. I lost my 1st born & the rebound seemed out of reach. As a survivor of being a throwaway youth I'm incredibly bonded with my sister whom I later recieved custody of...I think I would feel like dyeing if something as serious as organ failure happened to her. As a matter of fact one of my negative emotions (which is on the normal list of donor emotions) is "What if she needs a kidney after I've given mine away." You're story is a perfect example of why I want to give the gift of life. Thanks for sharing. @rosemarya I just found something (a question) I feel like I should keep as my own yet I wonder if someone could benefit because they have the same question, ugh.

@contentandwell Unfortunately that is far more common than any of us can imagine. We are in a very real sense at the mercy of the medical institution and it's myriads of interlocking businesses (insurance companies, medical practices, scientific trials, the politics, ect...). It is a fact that what applies for one is totally inapplicable for another because as we've seen repeatedly in these discussions "one size does not fit everyone". Thank you for sharing your experience

@beckyjohnson, There is a Private Message option on Mayo Connect. Do you see the envelope icon on top right of page? You are welcome to send me a PM anytime:-) I will be able to give you some thoughts about posting it.
I am working on a last minute sewing project and I am enjoying reading these posts.
Rosemary

@rosemarya Aww yes I do... right next to the annoying sideways - beautiful double rainbow pic that I personally took. I hadn't really given personal messages any thought. Thank you for the pm offer. That is really sweet & I do appreciate it.