Malignant Stomach Polyps

Posted by barbwire2 @barbwire2, Nov 17, 2016

Wondering what will be my next option after they removed lots of malignant polyps in my stomach.

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@barbwire2 I see that you just joined Mayo Connect, let me welcome you to this online support group. You are asking about malignant stomach polyps. I'm sure that is frightening for you. What has your doctor said regarding this? Has a copy of the biopsy report been provided to you? If not, ask for a copy. If you are able to share a little more information about the type of malignancy, someone in the Mayo Connect Community might have some info to share with you regarding their experience. Keep in touch, I know that you will find support and encouragement here.

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@hopeful33250

@barbwire2 I see that you just joined Mayo Connect, let me welcome you to this online support group. You are asking about malignant stomach polyps. I'm sure that is frightening for you. What has your doctor said regarding this? Has a copy of the biopsy report been provided to you? If not, ask for a copy. If you are able to share a little more information about the type of malignancy, someone in the Mayo Connect Community might have some info to share with you regarding their experience. Keep in touch, I know that you will find support and encouragement here.

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Thank you I will request a copy of the report. Dr. Hellan at Kettering Hospital is the one viewing my tests done and plans on trying meds to help with the rest of polyps and if that doesn't work part of stomach would be removed.

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@hopeful33250

@barbwire2 I see that you just joined Mayo Connect, let me welcome you to this online support group. You are asking about malignant stomach polyps. I'm sure that is frightening for you. What has your doctor said regarding this? Has a copy of the biopsy report been provided to you? If not, ask for a copy. If you are able to share a little more information about the type of malignancy, someone in the Mayo Connect Community might have some info to share with you regarding their experience. Keep in touch, I know that you will find support and encouragement here.

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@barbwire2 I'll certainly pray that your doctor will find just the right treatment. I have had recurring neuroendocrine tumors NETs (also called carcinoids) in the duodenal bulb. NETs are very rare tumors (on the orphan disease list) and are also very slow growing (that is good news). Since 2003, I have had three surgeries, the most recent was this year and it was done at the University of Michigan, endoscopically as an outpatient. My previous surgeries had been done with another hospital system and it was a major surgery with a long hospital stay. It was at that time that I connected with the Mayo Community and it's been just great. I know that this is a great online patient support group. Keep in touch, we will walk with you through this "healing journey."

If I could ask a question or two, how were these polyps diagnosed? Were you having symptoms? Best wishes!

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@barbwire2 Hi, I realized that it has been a while since we have heard from you. I hope that you are finding some answers for the malignant stomach polyps. Do you have any new information that you would like to share? Keep us posted, we care at Mayo Connect.

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@hopeful33250

@barbwire2 I see that you just joined Mayo Connect, let me welcome you to this online support group. You are asking about malignant stomach polyps. I'm sure that is frightening for you. What has your doctor said regarding this? Has a copy of the biopsy report been provided to you? If not, ask for a copy. If you are able to share a little more information about the type of malignancy, someone in the Mayo Connect Community might have some info to share with you regarding their experience. Keep in touch, I know that you will find support and encouragement here.

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Hi, I have been looking info about stomach polyps for my 13y/o son. He was having GI symptoms such as difficulty swallowing, food get stock in his esophagus, constipation, feels lump in his throat. They did check his throat awhile ago and it looked normal(scope). His symptoms did not get better and they said it might be EoE food allergy disease, we did 2 months diet and it kind of helped, he had endoscopy and colonoscopy last week, he has 1.5cm metaplasia polyp in antrum area. He is only 13, how am I gonna tell this to him. They said his stomach looked like chronic gastritis. Why would a 13 y/o boy have this? I do have same sympyoms for a while too. I had endoscopy 2 years ago no polyps. I need to know if anyone also had that before. Because we did the food elimination diet prior to scope, there was no esonophyl cell in GI track. So we do not know if he has EoE or some of his symptoms are from EoE. H. Pylori is negative, his colons are ok. They will do more imaging and test and will remove the polyp to look at it again.

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@faye1

Hi, I have been looking info about stomach polyps for my 13y/o son. He was having GI symptoms such as difficulty swallowing, food get stock in his esophagus, constipation, feels lump in his throat. They did check his throat awhile ago and it looked normal(scope). His symptoms did not get better and they said it might be EoE food allergy disease, we did 2 months diet and it kind of helped, he had endoscopy and colonoscopy last week, he has 1.5cm metaplasia polyp in antrum area. He is only 13, how am I gonna tell this to him. They said his stomach looked like chronic gastritis. Why would a 13 y/o boy have this? I do have same sympyoms for a while too. I had endoscopy 2 years ago no polyps. I need to know if anyone also had that before. Because we did the food elimination diet prior to scope, there was no esonophyl cell in GI track. So we do not know if he has EoE or some of his symptoms are from EoE. H. Pylori is negative, his colons are ok. They will do more imaging and test and will remove the polyp to look at it again.

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Hello @faye1 Welcome to MayoClinicConnect. We’re all volunteers on this site and not doctors. We try to help others though our own health journeys and experiences. I’m glad you found us. I can imagine that you must be so worried about your son. I put the link to information about stomach polyps below. You are also worried about how you’ll tell your son what is going on. Have his doctors told him anything with regards to the tests and why he was on a special diet? What have they explained to you?

https://www.mayoclinic.org/diseases-conditions/stomach-polyps/symptoms-causes/syc-20377992
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@faye1 - I join Becky in welcoming you to Mayo Clinic Connect.
Your son must feel awful! Was he evaluated by Pediatric Gastroenterologist?
Eosinophilic Esophagitiis is tested for more nowadays. Maybe that’s what is causing everything- you said he felt better on the allergy diet. It would have helped to have the endoscopy done before the endoscopy.
The polyp will give more answers.
I would just tell him he has a small polyp/ growth in his stomach and it’s probably due to the irritation from the chronic gastritis. No reason to frighten him now. Most polyps are not cancerous.
Please let us know how further testing goes!!

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@faye1

Hi, I have been looking info about stomach polyps for my 13y/o son. He was having GI symptoms such as difficulty swallowing, food get stock in his esophagus, constipation, feels lump in his throat. They did check his throat awhile ago and it looked normal(scope). His symptoms did not get better and they said it might be EoE food allergy disease, we did 2 months diet and it kind of helped, he had endoscopy and colonoscopy last week, he has 1.5cm metaplasia polyp in antrum area. He is only 13, how am I gonna tell this to him. They said his stomach looked like chronic gastritis. Why would a 13 y/o boy have this? I do have same sympyoms for a while too. I had endoscopy 2 years ago no polyps. I need to know if anyone also had that before. Because we did the food elimination diet prior to scope, there was no esonophyl cell in GI track. So we do not know if he has EoE or some of his symptoms are from EoE. H. Pylori is negative, his colons are ok. They will do more imaging and test and will remove the polyp to look at it again.

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@faye1 Has your son been able to see any more doctors and get more testing? How are the two of you doing?

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@becsbuddy

@faye1 Has your son been able to see any more doctors and get more testing? How are the two of you doing?

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He had abdominal ultrasound and it is normal, he had bunch of labs but we have not recieve results yet. We are waiting for MRI appointment. We wanted to go to texas children hospital, things are taking too long just I cannot wait.

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@faye1

Hi, I have been looking info about stomach polyps for my 13y/o son. He was having GI symptoms such as difficulty swallowing, food get stock in his esophagus, constipation, feels lump in his throat. They did check his throat awhile ago and it looked normal(scope). His symptoms did not get better and they said it might be EoE food allergy disease, we did 2 months diet and it kind of helped, he had endoscopy and colonoscopy last week, he has 1.5cm metaplasia polyp in antrum area. He is only 13, how am I gonna tell this to him. They said his stomach looked like chronic gastritis. Why would a 13 y/o boy have this? I do have same sympyoms for a while too. I had endoscopy 2 years ago no polyps. I need to know if anyone also had that before. Because we did the food elimination diet prior to scope, there was no esonophyl cell in GI track. So we do not know if he has EoE or some of his symptoms are from EoE. H. Pylori is negative, his colons are ok. They will do more imaging and test and will remove the polyp to look at it again.

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Hi @faye1. The only thing scarier than going through an illness ourselves, and dealing with the fear and stress of the unknown, is watching our children go through it. As a mom myself, I can certainly relate to that. But I am also a middle school teacher. I have worked with a lot of 13-year-old children over the years, and if there is one thing I have learned it is that they are more resilient than we give them credit for. They follow our lead, and appreciate when we answer their questions as honestly as we can, even if that means telling them we don't know. So lead your son as honestly as you can, and as you feel comfortable with, because you know him better than anyone. I agree with @astaingegerdm, no reason to stress him, or yourself, more than needed right now until you have more information. Remember to breathe 🙂 We are here if you need us!

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