My journey with Bacillus Calmette-Guerin (BCG) treatment

Posted by ggarrepy @ggarrepy, Nov 9, 2022

I’m a 77 year old female. I just started the first of six BCG treatments for T1 high grade bladder cancer. I was so worried that I would not be able to hold it for the two hours but I did it with no problem at all. Turned over every 15 minutes and felt fine. I’ve been back home now for a few hours and feel perfectly normal. So grateful!

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Is the standard care for HG NMIBC a 6 week course of BCG? Are there any more TURBT's anticipated?

REPLY

RSand here.. I am on the BCG, but have trouble keeping it in for the full 2 hours.
Can only fo 1 to 1 1/2 hours.
Can you please post your wats to keep it in?
Thanks so much.

REPLY
@amu45sin

RSand here.. I am on the BCG, but have trouble keeping it in for the full 2 hours.
Can only fo 1 to 1 1/2 hours.
Can you please post your wats to keep it in?
Thanks so much.

Jump to this post

That’s not the instruction I received on my treatments. I was supposed to keep from voiding and drinking for one hour. Then void, sterilize the toilet, drink plenty of fluid and after one hour, void and sterilize again. That’s what I read elsewhere as well.

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@sail1612

Is the standard care for HG NMIBC a 6 week course of BCG? Are there any more TURBT's anticipated?

Jump to this post

The theory is that the BCG treatments are to prevent additional tumor formation.

REPLY
@amu45sin

RSand here.. I am on the BCG, but have trouble keeping it in for the full 2 hours.
Can only fo 1 to 1 1/2 hours.
Can you please post your wats to keep it in?
Thanks so much.

Jump to this post

I just looked at my original response and I think it can be interpreted incorrectly. The dose should be retained for two hours. I wasn’t counting the time at the office. I voided approximately one hour after leaving the urologist or close two hours altogether. The second was about one hour after that after lots of fluid intake.

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@quahog

I just looked at my original response and I think it can be interpreted incorrectly. The dose should be retained for two hours. I wasn’t counting the time at the office. I voided approximately one hour after leaving the urologist or close two hours altogether. The second was about one hour after that after lots of fluid intake.

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Hi Clam, HaHa
amu45sin
So glad you figured it out! Hope the BCG treatments work out very well for you.
I may have a solution for me, since I can only keep it in for 1 hour.
The nurse said she could put in a catheter with a clamp, that stays in for 2 hours, and which I can remove at home.
That will keep it in for the required time for me.
Best to you for excellent results. Hugz.

REPLY
@amu45sin

Hi Clam, HaHa
amu45sin
So glad you figured it out! Hope the BCG treatments work out very well for you.
I may have a solution for me, since I can only keep it in for 1 hour.
The nurse said she could put in a catheter with a clamp, that stays in for 2 hours, and which I can remove at home.
That will keep it in for the required time for me.
Best to you for excellent results. Hugz.

Jump to this post

Hope it works for you. Getting my last treatment tomorrow. Hope the series has its intended results.

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