PD Progression, stages and what to expect

Hi, @dgalindo, and welcome. I applaud your looking out for your dad with his Parkinson's disease. Sorry to hear he is not doing as well overall.

When was your dad diagnosed with Parkinson's? Are you aware of any factors from a couple weeks ago that may have contributed to his feeling tired, weak and barely being able to stand up or get out of bed?

hello ... i was dx'd about 5 yrs ago at age 66 and go through bouts of the same. almost every time i find it is inflammation causing it. 'my' go-to for this is ibuprophen. also, for energy i take a vitB complex, heavy on vitb-12.
best of luck...

Is anyone with PD, or know of someone with PD who describes themselves as having "brainfog"? A feeling of not being fully present mentally, confusion, weakness, fatigue, out of focus eyes? - with some weakness & a lack of stamina? Thank you. It isn't constant, but it does occur often

hi
was dx’d in 2022. had brain fog after starring on c/l. MDS had me cut back to half tab. seem to work. Still have horrible fatigue.

All patients should be referred.
Genneral Measures
Physical therapy, occupational therapy, and speech therapy helps many patients.
Treatment is symptomatic.There is great interest in developing disease modifying therapies, but trials of several neuroprotective agents have shown no benefit. Trials of various gene therapies
have providing promising results but are not yet complete as of start of 2022.
Medical Measures
Medication is not required early in the course of Parkinson disease , but the nature of the disorder and the availability of medical therapy for use when necessary should be discussed with the patient.There are many available medications.
There is in addition Stimualation and ablative treatments available by neurological surgery.
He is not on the point of no return as far as parkinsons disease alone is considered.

Yes, I often have brain fog and I am always tired. I have had double vision for several years, long before I was diagnosed with PD in June of 2024. I can only go for walks for about 1/2 mile, but I used to walk 2-3 miles every day, due to my legs getting stiff. It has changed my stamina, strength, and memory.

Thank you, Laurie -I find the same fatigue, weakness & disorientation &, as I used to be doing exercise classes every day, including yoga & had good strength & fair balance this situation is very discouraging to me. I have been dx with PD for about 4-years now, but sx seem to be getting worse! It seems foolish to say that having someone else shared their experience is comforting, but it is.

Thank you! I was beginning to think I was just being a drama queen! I am taking carbidopa/levdopa 100mg 3x a day - I have experimented a bit with dosage but noticed no difference in sx. Exercise has been recommended by almost everyone, but my balance is off, so I am a bit concerned - but maybe strength & balance classes as well as some gentle yoga might help.

I am seeing a neurologist tomorrow. I am still hoping to hear it is just stress. My biggest issue is intense anxiety coupled with apothy. I have a number of physical sxs and som pain. Reading your posts really helps. From all of my reading, over the six week wait to see the neurologist, it seems like PD takes quite an individual track and highly variable rate of progression. Is that accurate?

I either walk 3 miles a day or ride my bike on a trainer. By the time I get done with my walk I generally have lower back pain and very strong back fatigue around my lats. I do the exercise because when I am done exercising the pain subsides and I feel better than days when I don’t exercise.