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PD Progression, stages and what to expect

Parkinson's Disease | Last Active: Jan 2 10:24am | Replies (54)

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Is anyone with PD, or know of someone with PD who describes themselves as having "brainfog"? A feeling of not being fully present mentally, confusion, weakness, fatigue, out of focus eyes? - with some weakness & a lack of stamina? Thank you. It isn't constant, but it does occur often

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Replies to "Is anyone with PD, or know of someone with PD who describes themselves as having "brainfog"?..."

Yes, I often have brain fog and I am always tired. I have had double vision for several years, long before I was diagnosed with PD in June of 2024. I can only go for walks for about 1/2 mile, but I used to walk 2-3 miles every day, due to my legs getting stiff. It has changed my stamina, strength, and memory.

I live with those symptoms every day and it is very frustrating. My eyes have double vision, blurring and I simply can't read as good. Brin fog is frustrating because it interferes what what I want to do. People close to me think I have loss of memory problems. Stree raises havoc with elevating my symptoms. I don't want to do anything but stay at home. Medications also adds to these symptoms. Every time I talk to my doctor he says i have to live with. How I wish I could think right and live well.

I'm being evaluated for PD at Mayo. I've dealt with this on several occasions.

Yes this is just starting with my husband. Diagnosed 1 year ago im sure he has had it 5? Years. Hes on carbadopa/ levadopa But lately having low blood pressures weakness, confusion say wrong words for things. He says everything is dark it reminds me of a stroke and he gets very rigid when this is happening. Hes been in the hospital 3xs

@windyh That would be me. ALL of it !Been there, done that, got the tattoo I can sit down to do something and lose track of time. I don't have a clue whether I've been there 5 minutes or 3 hours. When I tried to help my husband by filling up all my agddzillion pill boxes I knew I was having a hard time and had to check myself al lthe time, but I didn't know until he told me that it took me 3 hours to fill 8 pillboxes. And it wasn't helping him at all because he still had to check them when I finished. I've tod my grandkids not to trust m \y memory one little bit, so if they want to remind me o of somethng, please don't worry about my taking offense, because I won't, or even if I do, I'm bettter off with their help and attention than I am on my own. I told them that they now hadve3 Grandmas. Their Omi,( their Mother's mom, and They have regular Grandma sometimes and then other times they have PD Grandma, who can be a real pain in the patootee