1. < Pancreatic Cancer
Moderator

Pancreatic Cancer Group: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Dec 3, 2019

Welcome to the Pancreatic Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with pancreatic cancer or caring for someone with pancreatic cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by fellow members and volunteer patient Mentors, when you post to this group. Learn more about Moderators and Volunteer Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Pull up a chair. Let's start with introductions.

When were you diagnosed with pancreatic cancer? What treatments have you had? How are you doing?

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 2 4:04pm
In reply to @grizzlyman "I am going into my 3rd year after diagnosis for cholangio carcinoma, and was looking for..." + (show)
@grizzlyman

I am going into my 3rd year after diagnosis for cholangio carcinoma, and was looking for patients who had to have biliary tubes inserted in their liver to keep the reconstructed bile duct open and ask questions about how they are feeling and any other issues they might have had.

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Welcome, @grizzlyman. You may wish to check out the discussion related to cholangiocarcinoma here:
https://connect.mayoclinic.org/search/discussions/?search=cholangiocarcinoma

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12cows6025 | @12cows6025 | Apr 3 12:29pm

Hello to all I was diagnosed on Febuary 6,2025..with Stage 2+ pancreatic cancer and now is stage 4 as it has metastasis to lungs. Have had 2 rounds of chemo. 5-Fu..

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1 reply
marienewland | @mnewland99 | Apr 4 3:20am

Sorry to hear what you are going through. Were you offered surgery at Stage 2? Why only 2 rounds of chemo so far?

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thecomfycouchcafe | @thecomfycouchcafe | Apr 4 8:38am
In reply to @gamaryanne "My journey since 2021 has multiple treatments, surgeries, etc. but I do feel great and still..." + (show)
@gamaryanne

My journey since 2021 has multiple treatments, surgeries, etc. but I do feel great and still work full time and volunteer where my heart leads me! It keeps me strong emotionally and distracts me from health concerns.
I have consulted with several Drs outside of Atlanta, but I consider my care team leader to be Dr Eddie Abdalla, Atlanta Liver and Pancreas Surgical Associates With Northside Hospital. Also in Atlanta, Dr. Harpaul Gill, Oncology

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Thanks so much

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kath0361 | @kath0361 | Apr 9 1:14pm

Hello my name is Kathryn and I was first diagnosed in July 2022. After chemotherapy and radiation I was cancer free for two years and in November 2024 cancer was discovered on my gallbladder. Having the Whipple procedure at the end of June- Dr Stucky is my surgeon - anybody here that has had the procedure and Dr Stucky operated?

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | 6 days ago
In reply to @12cows6025 "Hello to all I was diagnosed on Febuary 6,2025..with Stage 2+ pancreatic cancer and now is..." + (show)
@12cows6025

Hello to all I was diagnosed on Febuary 6,2025..with Stage 2+ pancreatic cancer and now is stage 4 as it has metastasis to lungs. Have had 2 rounds of chemo. 5-Fu..

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Welcome, @12cows6025. I hope that chemo treatment with fluorouracil (5FU) is going okay.

You may wish to join @mnewland99 and others in this discussion:
- Treatment for metastasis to the lungs?
https://connect.mayoclinic.org/discussion/treatment-for-metastasis-to-the-lungs/

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grizzlyman | @grizzlyman | 6 days ago
In reply to @kath0361 "Hello my name is Kathryn and I was first diagnosed in July 2022. After chemotherapy and..." + (show)
@kath0361

Hello my name is Kathryn and I was first diagnosed in July 2022. After chemotherapy and radiation I was cancer free for two years and in November 2024 cancer was discovered on my gallbladder. Having the Whipple procedure at the end of June- Dr Stucky is my surgeon - anybody here that has had the procedure and Dr Stucky operated?

Jump to this post

I too was diagnosed with cholangiocarcinoma on July 1 2022, and had a robotic whipple surgery. The surgeon removed my gallbladder. I wonder why your surgeon didn’t remove your gallbladder. I developed other issues because he built a bile duct out of other tissue and it started to close, so l had to have biliary tubes inserted to keep the duct open. I had to have the procedure every 2 weeks to replace the smaller tubes with bigger tubes. This took 6.5 months. I am doing okay, but I have started to feel some discomfort in my abdomen since last week. I go for a mri next week.

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