1. < Digestive Health

Getting an appointment at Mayo Clinic

Posted by bevie24 @bevie24, Mar 23 2:24am

I have submitted the form to get an appointment at Mayo Clinic (3) times. I’m contacted by phone each time. We review my symptoms I’ve been suffering with for one year and multiple test results that diagnose Mesenteric Panniculitis, and then the Mayo Clinic representative tells me they are not scheduling any appointments for 2025 and there is no wait list.. Ughhh! Has anyone else been told this??

Interested in more discussions like this? Go to the Digestive Health Support Group.

bevie24 | @bevie24 | 3 days ago
In reply to @roch "@bevie24 It is frustrating when unable to schedule an appointment with a provider at Mayo or..." + (show)
@roch

@bevie24
It is frustrating when unable to schedule an appointment with a provider at Mayo or anywhere. You may want to look at the following discussion in Visiting Mayo on same topic:
https://connect.mayoclinic.org/discussion/how-to-get-appointment/
Sounds like your doing self-referral, have you talked to your current provider about doing a referral?

Jump to this post

I did ask my current gastro dr at Penn State Hershey (PA) and he told me to get a referral from my PCP, which I have not yet done..thanks for the suggestion

REPLY
bevie24 | @bevie24 | 3 days ago
In reply to @soledad02 "I tried to get an appointment with Mayo for five years. Finally one day I called..." + (show)
@soledad02

I tried to get an appointment with Mayo for five years. Finally one day I called to see if I could make an appointment with an ENT for an ongoing ear infection. Fortunately I was able to get an appointment. Wonderful, caring and professional doctors and staff. The Mayo in our area is almost an hour's drive but well worth it.

Keep being persistent and don't give up. Good luck.

Jump to this post

So glad to hear that you were successful! I had a referral to John’s Hopkins, sent all of my test results, imaging. When no one reached out to me, I called to make sure my test results were received and they said they did get them, but they do not have any drs that treat mesenteric panniculitis! I was surprised by that..

REPLY
bevie24 | @bevie24 | 3 days ago
In reply to @mothermary1 "That is very disappointing to hear. I just left my gastroenterologist office and after five years..." + (show)
@mothermary1

That is very disappointing to hear. I just left my gastroenterologist office and after five years he feels that I need a total colectomy. He wants to schedule me for consult in Minnesota. I was scheduled in 2021 in Boston but was terrified to do it. I might be ready now but no appointments for this year. Oh boy this is awful. Took me 5 years to decide. I’m so sorry for you.
Joanne

Jump to this post

Thank you. Best of luck to you!

REPLY
bevie24 | @bevie24 | 3 days ago
In reply to @hansenshorses "I have been sick with nausea for six years. The last year has been unbearable. I..." + (show)
@hansenshorses

I have been sick with nausea for six years. The last year has been unbearable. I have gone to multiple drs and specialists and they can’t figure it out. I have a spinal cord injury and am disabled so being ill has just made me so weak and worse. I have tried to make an appointment at Mayo for years and this year I have tried multiple departments. I kept getting denied. I have finally got an appointment with neurology, which I’m not sure is the problem but maybe from there they can help me get into a different department if needed. It always lead back to Gastro with the nausea and no they are not taking appointments. For a organization that says they can help people, especially people that have unusual, undiagnosed illnesses you would think you should be able to get in there.

Jump to this post

I’m sorry to hear about your health journey. Researching, making appointments, going to appointments, having tests done and no answers over and over really wears you down. It’s a full time “job”

REPLY
1 reply
katreilly | @katreilly | 3 days ago
In reply to @hansenshorses "I have been sick with nausea for six years. The last year has been unbearable. I..." + (show)
@hansenshorses

I have been sick with nausea for six years. The last year has been unbearable. I have gone to multiple drs and specialists and they can’t figure it out. I have a spinal cord injury and am disabled so being ill has just made me so weak and worse. I have tried to make an appointment at Mayo for years and this year I have tried multiple departments. I kept getting denied. I have finally got an appointment with neurology, which I’m not sure is the problem but maybe from there they can help me get into a different department if needed. It always lead back to Gastro with the nausea and no they are not taking appointments. For a organization that says they can help people, especially people that have unusual, undiagnosed illnesses you would think you should be able to get in there.

Jump to this post

I have daily nausea and it’s awful. I’ve been told it’s Dyspepsia. No cure.

REPLY
molly39 | @molly39 | 1 day ago

April, 2025. Yes, I was just told the same thing. Appt person suggested I work with my local dr. My local dr is great, but she’s never heard of Mesenteric Panniculitis.

REPLY
gracie71 | @gracie71 | 5 hours ago
In reply to @bevie24 "I’m sorry to hear about your health journey. Researching, making appointments, going to appointments, having tests..." + (show)
@bevie24

I’m sorry to hear about your health journey. Researching, making appointments, going to appointments, having tests done and no answers over and over really wears you down. It’s a full time “job”

Jump to this post

Your comment about trying to research and get appointments is so sadly true. And it is indeed exhausting and provokes anxiety and feelings of great unease. The only thing l can offer you is compassion and to say that l experience the same things and can't seem to make it better no matter how I try.

REPLY
katreilly | @katreilly | 2 hours ago

I was told the same thing about appointments. ☹️

REPLY
View MoreView Less
Please sign in or register to post a reply.