Mesenteric Panniculitis: What happens now?

That is very disappointing to hear. I just left my gastroenterologist office and after five years he feels that I need a total colectomy. He wants to schedule me for consult in Minnesota. I was scheduled in 2021 in Boston but was terrified to do it. I might be ready now but no appointments for this year. Oh boy this is awful. Took me 5 years to decide. I’m so sorry for you.
Joanne

I have been sick with nausea for six years. The last year has been unbearable. I have gone to multiple drs and specialists and they can’t figure it out. I have a spinal cord injury and am disabled so being ill has just made me so weak and worse. I have tried to make an appointment at Mayo for years and this year I have tried multiple departments. I kept getting denied. I have finally got an appointment with neurology, which I’m not sure is the problem but maybe from there they can help me get into a different department if needed. It always lead back to Gastro with the nausea and no they are not taking appointments. For a organization that says they can help people, especially people that have unusual, undiagnosed illnesses you would think you should be able to get in there.

I have been sick with nausea for six years. The last year has been unbearable. I have gone to multiple drs and specialists and they can’t figure it out. I have a spinal cord injury and am disabled so being ill has just made me so weak and worse. I have tried to make an appointment at Mayo for years and this year I have tried multiple departments. I kept getting denied. I have finally got an appointment with neurology, which I’m not sure is the problem but maybe from there they can help me get into a different department if needed. It always lead back to Gastro with the nausea and no they are not taking appointments. For a organization that says they can help people, especially people that have unusual, undiagnosed illnesses you would think you should be able to get in there.

I have submitted the form to get an appointment at Mayo Clinic (3) times. I’m contacted by phone each time. We review my symptoms I’ve been suffering with for one year and multiple test results that diagnose Mesenteric Panniculitis, and then the Mayo Clinic representative tells me they are not scheduling any appointments for 2025 and there is no wait list.. Ughhh! Has anyone else been told this??

I have submitted the form to get an appointment at Mayo Clinic (3) times. I’m contacted by phone each time. We review my symptoms I’ve been suffering with for one year and multiple test results that diagnose Mesenteric Panniculitis, and then the Mayo Clinic representative tells me they are not scheduling any appointments for 2025 and there is no wait list.. Ughhh! Has anyone else been told this??

I’m sorry to hear about your health journey. Researching, making appointments, going to appointments, having tests done and no answers over and over really wears you down. It’s a full time “job”

I have submitted the form to get an appointment at Mayo Clinic (3) times. I’m contacted by phone each time. We review my symptoms I’ve been suffering with for one year and multiple test results that diagnose Mesenteric Panniculitis, and then the Mayo Clinic representative tells me they are not scheduling any appointments for 2025 and there is no wait list.. Ughhh! Has anyone else been told this??

I’m sorry to hear about your health journey. Researching, making appointments, going to appointments, having tests done and no answers over and over really wears you down. It’s a full time “job”

I have submitted the form to get an appointment at Mayo Clinic (3) times. I’m contacted by phone each time. We review my symptoms I’ve been suffering with for one year and multiple test results that diagnose Mesenteric Panniculitis, and then the Mayo Clinic representative tells me they are not scheduling any appointments for 2025 and there is no wait list.. Ughhh! Has anyone else been told this??

Erika here! In Alaska!I have been dealing with digestive issues since I was a little girl. I am 31 y/o now and am tired of getting no answers or hitting dead ends. I was diagnosed with stomach ulcers many years ago and more recently a hiatal hernia that no doctor wants to repair.Back tracking, I was born 2 months prematurely and doctors are considering that that has influence on the issues I have had since a young age. At 4, I vomited a bowel obstruction after not having a bowel movement for 30 days. Since then? Nothing but problems. Constipation my entire life, every medication? Tried it. I have finally decided to reach out to Mayo to attempt to have my questions answered and I look forward to hopefully getting scheduled.When I requested the appointment, they put me on a wait-list and told me the next 12 weeks are booked solid, and to continue checking my patient portal for offers. Did any of you do anything different? Did you call often to see if there were openings? Did you not call at all? I am trying to be proactive and wondering what everyone else is doing.Thanks in advance.