Lichen Sclerosus: Any other women dealing with this disease?

I had surgery for labial adhesion the first of January. I had become so occluded that I could barely pass urine. I can pee now but the area feels like I have a hundred paper cuts. The nurse said to use olive oil or coconut oil. I did the olive oil first and applied it using my fingers. That did not seem to work and I wondered if the actual touching was part of the problem. I realize that using only once was not a good indication of if it would help or not. I went to the coconut oil and it was in a solid form and I would put it on a pad and it seemed to help. My question to you is, when applying the olive oil did you use your fingers or put it on a pad?? Looking forward to your response. I don't see the surgeon until the end of May. Thanks.

@fdixon63 I’ve not had any experience with LS so I can’t really answer your question. But, from a nurse’s point of view, if you use your fingers to apply the oil to yourself or a pad, cleanliness is very important. Make sure you wash your hands well before and after! If using olive oil, have a bottle for your use only. Don’t use bottle for kitchen and yourself! You want the labia to heal, not get infected! If the urine burns the labia, there are OTC medicines that numb the area, making it easier to pee.
Overall, are you happy with the surgery?

Thanks for your post Becky. I do make sure to wash my hands before touching the area. I have enough to deal with without introducing infection. My primary (nurse practitioner) said that I could use antibacterial soap once in awhile. I've not done that as I'm afraid it would cause the tissue to flare as it is soooo sensitive. I'm wondering if any LS sufferers have used antibacterial soap. The surgeon (GU/GYN) said I need to use estrogen cream every day the rest of my life. It hit me a few days ago that Clobetasol was what I'd used for about 2 years, alternating with estrogen cream. So, two nights I used the Clobetasol (no estrogen cream) and the same again last night. I can see an improvement today. I've got to figure out what is going to work for me to get my LS stabilized and use the estrogen going forward--probably getting back on my former regime.
Now, am I happy with the surgery? The ability to pee again has been great and actually having an vaginal opening is something I've not had for a very long time. If I can get the pain under control, life would be good. What is the OTC med you talked about to numb the area?

@fdixon63 I’m so glad you’re doing better! It is mainly for UTI’s. I don’t know the name of it, but A Z O is in big letters on the box. It numbs the area inside of you and where the urine comes out. Really help you keep your cool when urinating. No hitting the ceiling!
I sure hope you can get over this disease soon!