Has anyone had their GFR drop 20 points in less than year?

Hopefully, you can get treatment quickly. My treatment has improved the AL Almyloidosis but my gfr has not recovered at all yet. It is gfr 16. Where are you located?

I live in Central Florida.
What treatment do you have for Amyloidosis?
I'm waiting for the results of some blood test to determine what's is the cause of the Amyloidosis.

I am in Florida as well, Lakeland, and my treatment is in Tampa. The treatment plan is the the andromeda trail which is standard for Al Amyloidosis. Mine is Kappa restricted. Be your on advocate and get treatment asap.

Thank you for your recommendation,I feel that I don't have time to go from one doctor to other with out an answer and a treatment.Could you,please, give me the name of the doctor or the office address in Tampa. I am in Ocala,and here there isn't any doctor who treat Amyloidosis.

I went to Moffitt, Dr. Grajales Cruz. Oncolocy hemotology. They are in Tampa. Of course, there is Mayo which would be great but they are in Jacksonville. I tried there first but needed sooner. I do think Mayo has a clinical trail for a new promising drug. Who read your Kidney biopsy?

I have seen a nephrologist,Nicoleta,here in Ocala.Last week I went to an oncologist/hematologist,I had some blood test and waiting for the results.
I call my insurance,Humana Medicare asking for Mayo ,but they aren't in network.
The biggest issue is the number in my kidneys down fron19 to 8 in 3 months.

Did you ask Humana who they recommended you go to? What about Moffitt?

I'm going to call Humana to ask for Moffitt.
My nefrologist call to see me tomorrow.I have an appointment on Wednesday 9 to see the results of de blood test.

I checked Moffitt and they are approved providers for Humana. Good luck. The treatment works so try not to worry. Not a cure but slows or stops progression.

Thanks so much,today were checking Moffitt with the nefrologist ,just waiting for the results next week.I am begining the first step to prepare for dialysis.