Connect
← Return to I may have low grade lymphoma or it could be from inflammation
Discussion
I may have low grade lymphoma or it could be from inflammation
Blood Cancers & Disorders | Last Active: Mar 30 8:10am | Replies (60)Comment receiving replies
My wife chose the “ rip off the bandage” approach and we had a good talk. She’s still processing how much I kept from her. We went to the appointment together and she was a great help before, during and after.
The oncologist is positive that I have CLL/SLL and I need to do another blood test to ascertain speed with which it will develop. For now, she’s going with slow growth, so no treatment.
Meanwhile, she is referring me back to my primary for follow up on the nodule found on my lung and luminosity (I think) of pelvic and spine.
Given all this information, do you have group recommendation(s) for me? Thanks in advance.
Replies to "My wife chose the “ rip off the bandage” approach and we had a good talk...."
Connect
Hi @minglu. I had a feeling your wife might be the ‘rip off the bandaid’ type of person with the way you described how she’s more likely to be the problem solver. I’m the same way with wanting to just get things over with or have a plan and move forward.
CLL/SLL are forms of non Hodgkin’s lymphoma and generally take their sweet time in developing and often treatment can be delayed. It is possible to have both at the same time. CLL and SLL are virtually the same disease. They are defined by where the cancer cells are located. When the majority of the cancer cells are in the bloodstream and the bone marrow, the disease is referred to as CLL, although the lymph nodes and spleen are often involved. When the cancer cells are more localized in the lymph nodes, the disease is called SLL.
Here’s more of that explanation in this conversation with @tatayababa
Diagnosed with asymptomatic CLL 6 years ago: Starting to have symptoms
https://connect.mayoclinic.org/comment/815368/
There’s no shortage of discussions in the forum with CLL or SLL members. I did a quick scan but didn’t quite know which conversations to flag for you. So I chose a few that I thought might be helpful. These were replies I’d written a while ago but they’re still relevant for your situation.
Here are 4 of the posts:
~Non Hodgkin's Lymphoma- Watch & Wait Approach
https://connect.mayoclinic.org/comment/1042622/
~~
From another discussion: Just discovered I have leukemia:
https://connect.mayoclinic.org/comment/1043133/
~~
There are several discussions with @joeeduffy whose husband was diagnosed with CLL a few years go.
https://connect.mayoclinic.org/comment/1007740/
~~
Can CLL Change to SLL with @traillens47
https://connect.mayoclinic.org/comment/1123809/
Also, many more can be found by typing in CLL or SLL or CLL/SLL in the search bar above.
Here are my 2 searches.
For SLL:
https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=SLL#discussion-listview
For CLL: https://connect.mayoclinic.org/group/blood-cancers-disorders/?search=CLL#discussion-listview
I’ve given you a lot of reading material to get you started. Please feel free to jump into any conversation that sparks your interest. It can be helpful to tag someone with their full @name, including the @ sign. Or simply reply as you’ve been doing in the window that opens up when you click the blue reply button in the comment you’re reading.
Would your wife be interested in Lupus/autoimmune groups? They can be found with the similar search.