Burning Mouth Syndrome. I have it very severe.
I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate
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UPDATE: I recently had a small flareup, and since I was seeing a different acupuncturist at the time, I mentioned it to him. He said he has treated it in the past. After two treatments, I'm back to normal.
I used Tabasco sauce also and I haven't had Burning Mouth in sometime. I learned about it in this article from Brigham and Women's Hospital. You have to do it four times a day. I think I did it for 10 days. No longer have symptoms. On the rare occasion it returns I do the rinse. https://www.brighamandwomens.org/assets/BWH/surgery/oral-medicine-and-dentistry/pdfs/burning-mouth-syndrome-bwh.pdf
It’s been a gradual development for me, but got so I couldn’t stand it anymore. Was diagnosed by dentist who prescribed magic mouthwash. He knew nothing. Diagnosed by a second dentist who told me Gabapentin may help. Went to ENT, he had no clue what to do but did prescribe Gabapentin. I’ve only been on it for 2 days, but a lot of the black tongue calmed down, but still burning!
I can’t concentrate even on conversations. I’m so out of it, halfway thru the story I realize I have no idea what the other person is talking about!
The ENT also prescribed prednisone, but I’m not going to do that until I see if this gabapentin does anything.
I feel like I’m losing my mind. Next step is to travel to a teaching hospital to see mouth specialists, but I feel like I’m going to have the same outcome. I keep thinking I’ll get used to it but I don’t think so. The only thing that helps is drinking alcohol to help me forget about it!
This really sucks and I feel for you people
When my sinuses hurt I have so much pain, I feel like banging my head against a wall. I try so many different things but nothing helps as long as my sinuses are bad l I’m so tired of it all.
I am 77 and I have had BMS for 15yrs. I have been prescribed Prilosec, Dexilant,Alpha lopoic acid,magic mouth wash, Elavil,Neurontin,Carafate,Clonazepan.
I have also had Brovo PH, and acupuncture.
Lately I've read about low level laser therapy,but I haven't found any oral surgeon in my area that uses it for burning mouth syndrome.
Does anyone have symptoms along with their BMS that your mouth feels like there are thick strings in it, sometimes more prickly things that feel very sharp between your teeth and gums. You try to pull them out with your tongue but there is no end. Relief comes from magic mouthwash but is only temporary. I take gabapentin 900mg/ day, alpha lipoic acid, Lexapro with not much relief. I have been to an oral pathologist, neurologist and don’t know where else to go.
Wow, sounds like you have been through a lot. I recently started soaking my toothbrush head twice a week in hydrogen peroxide and swishing with a capful of hp and water. It seems to provide some relief. Dentist also suggested swishing with a capful of olive oil before bed. Hope this helps you.
I was diagnosed with BMS 2 1/2 years ago. Two oral surgeons were unable to do anything for me. Then I went to a neurologist who gave me a rx for Lyrica (pregabalin). That helps manage the paid a lot as long as I avoid any acidic or spicy foods.
I got some relief from a neurologist who prescribed Lyrica (pregabaling), Also avoiding any acidid or spicy food/drink.
I do oil pulling first thing in mornings when I expect it will be a bad day for my tongue and mouth. It definitely helps.