← Return to Parkinson's plus Multiple System Atrophy (MSA)

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@mollymae18

Thank you for your kindness. I would recommend seeking out support for both you and your significant other. My husband was originally diagnosed with Parkinson’s and we ran all over the country for years trying to find out why his progression and symptoms did not follow typical PD. I wish we had the correct diagnosis sooner. We would have focused more on our bucket list and time together.
We eventually used our local hospice team for support and that was a true sense of support and compassion.
I am here for other caregivers and happy to offer support.

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Replies to "Thank you for your kindness. I would recommend seeking out support for both you and your..."

Hello @mollymae18,

I would like to join @lisalucier in welcoming you to Mayo Connect. As Lisa said in her post, your experience as a caregiver is invaluable to others facing this devastating disorder. I would also like to direct your attention to the Connect Caregiver's Support Group. Here are the links to those discussions,
https://connect.mayoclinic.org/group/caregivers/ and https://connect.mayoclinic.org/group/caregivers-dementia/

I can only imagine the frustration of dealing with an incorrect diagnosis. Could you share how you finally obtained the correct diagnosis of MSA?