1. < Hypertrophic Cardiomyopathy (HCM)
Moderator

HCM-ers: Introduce yourself or just say hi

Posted by Colleen Young, Connect Director @colleenyoung, Oct 25, 2016

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon image-f6386d0357e2 on the group landing page. 

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

hocmgirl | @hocmgirl | Mar 24 5:06am
In reply to @dnorberg "Yes, this is what I've done as well. I'm not close enough to a COE to..." + (show)
@dnorberg

Yes, this is what I've done as well. I'm not close enough to a COE to make using it practical, but the cardiologist I have been referred to is trained and quite knowledgeable about HOCM. I feel fortunate to have found him and his team. 🙂

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I have 2 cardiologists: one at Mayo who iI see annually and another who is local, incase of emergency.

My Mayo cardiologist is my primary cardiologist, who does all the testing and leads my plan of care.

6 months later I see my local cardiologist (on an annual basis) who reviews my chart from Mayo and asses my heart. This keeps them in the loop.

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1 reply
emo44 | @emo44 | Mar 24 8:01am
In reply to @hocmgirl "I have 2 cardiologists: one at Mayo who iI see annually and another who is local,..." + (show)
@hocmgirl

I have 2 cardiologists: one at Mayo who iI see annually and another who is local, incase of emergency.

My Mayo cardiologist is my primary cardiologist, who does all the testing and leads my plan of care.

6 months later I see my local cardiologist (on an annual basis) who reviews my chart from Mayo and asses my heart. This keeps them in the loop.

Jump to this post

I only see a cardiologist at Mayo. I have also seen an EP in the heart rhythm clinic at Mayo. My Mayo cardiologist has never suggested I see a local cardiologist. I see him once a year and message if I have any issues between appointments. I have also had a virtual appointments with my cardiologist when I first presented with Afib. So far, this has worked.

REPLY
1 reply
hocmgirl | @hocmgirl | Mar 24 9:34am
In reply to @emo44 "I only see a cardiologist at Mayo. I have also seen an EP in the heart..." + (show)
@emo44

I only see a cardiologist at Mayo. I have also seen an EP in the heart rhythm clinic at Mayo. My Mayo cardiologist has never suggested I see a local cardiologist. I see him once a year and message if I have any issues between appointments. I have also had a virtual appointments with my cardiologist when I first presented with Afib. So far, this has worked.

Jump to this post

I was advised to have someone local incase of an emergency as Mayo/St Mary's Hospital is 5 1/2 hours away. Both have the Epic My Chart so my local cardiologist is up to date with all that is being done at Mayo in that rare case I am too unstable to drive that distance. (Otherwise there is no direction for the local to follow and treatment plan may be different)

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