Anyone out there diagnosed with Pudendal Neuralgia?

I was diagnosed with pudendal neuralgia 2 years ago. Right after my mesh sling surgery. My ob/GYN damaged the nerves on both sides in the alcock canal. I have been through so many test and different Drs to get my diagnosis. Tried Pudendal nerve blocks, had a nerve stimulator, pf PT. Nothing worked. Currently I see a pain management Dr. He gives me Ganglion nerve blocks every month. It does control my pain 80%.

If you have any more questions please ask me

This is a monster and I had it for 14 years. Sat on a donut. The only thing that finally ended it was an anti-seizure medicine for an unrelated matter. It was Topamax. My pelvic doctor told me she had heard of this but never mentioned it to me. Please.....ask your doctor.

I have just been diagnosed with what they think might be pudendal neuralgia.

Among everything I’ve had with my degenerative spine condition. I had pudendal Neurology. It was resolved when we tie it to the nerve roots, exiting the spine, and I could be given an epidural, a steroid epidural in that nerve root location. When our bio mechanics are off various nerves get pinched along our spines if we can trace our neural Neurology symptoms back to particular spine vertebrae and dislocations doctors can offer MFR, injections, ablations, fusions, and other things to alleviate the problem. Make sure you get in for an MRI or an ultrasound and x-rays to make sure there’s no cysts, growths, or impingements that can easily be attended to.

My rectal pain started after a colorectal surgeon did an unneeded surgery. A simply Botox in sphincter to allow a supposed fissure heal. It left me in antagonizing pain. 24/7no way for relief. He wrote lies about me and I could not get a doctor or emergency room to help. I had the tests to show I never took opiates. If I could I would have. My medication doctor does urine test often an all patients. I have seen him for 9 years. It was also written in my med file I am bipolar. I have a letter stating I have never had anything but depression and anxiety from my pain and I am Celiac and have MTHFR. all has ruined my insides. Now the scar tissue he left doing what to my anal canal is growing and my anal canal is only 1/4 inch. The pain gets worse when I have to go potty. It is a hot knife stabbing inside me. My body has gone out of normal brain messages, called functional neurological disorder. No help for that. The network of nerves in the brain is sending the wrong messages. When the pain starts the body goes into shaking inside, arms and legs have lost ability to hold me up without help, my memory is gone and my speech is like a drunk disabled person. Ny life has been hell for 2.5 years. Doctors cannot fix the scar tissue, it causes the pain and that causes my body to go anything but balanced. I look a pathetic old lady, instead of the weight work and Pilates for 35 years. The 2 autoimmune diseases have caused my body to not be nourished. I just found out at 73 years how many problems I have in my body. I don’t see any future. My husband is not happy with my needs. I can move around in pain and off balance. I cannot go do anything but doctors offices who just send me to someone else. I don’t think I can live much longer. The colorectal doctor I saw says there is no surgery, medicines to help. I have been to Specialist PT but it causes pain. Then the doctors pull the therapy. I might try a stimulators implant, but the closure will still be there. One angry surgeon has killed me because with no evidence started to slowly cause my deterioration. He never did any lab tests. I never saw him before I went seeking help for constipation and general pelvic pain.

I found 300mg of Lyrica to be very helpful for pudendal neuralgia