Anyone out there diagnosed with Pudendal Neuralgia?
I have not been on connect for quite a while since I have only recently received a diagnosis (one of many probably to come) I am looking for someone/anyone who has the pain from a surgical injury of sorts to this nerve to talk to. Is there anyone out there with Pudendal Neuralgia on connect? Thank you!
Interested in more discussions like this? Go to the Chronic Pain Support Group.
I just read up on the Elsberg syndrome. Wow! Never heard about that, but it should be looked at. After the sclerosis diagnosis that required clobetasol, I started breaking out with Herpes Simplex 1 on my glutes. That’s when the doctor put me on a small daily dose of an antiviral. She said this virus attacks where you are weakest.
Negative for Herpes Simplex 2.
The Gabapentin is hard on my weight. Put on 20 lbs. in no time. I have to really watch what I eat as I believe the extra weight is hard on my pelvic floor. It is also affecting my short term memory.
The only time I’m without pain is when I am sleeping.
Keeping my fingers crossed that the DRG implant will work.
I wonder if anyone has noticed that their pain really flares around the full moon.
Thanks for the info. I will call Abbot Labs Monday.
I hope you will continue to improve.
Thank you! I wish you the very best of luck. I will update and post my progress.
I feel for you,as I know what it feels like to be in pain everyday.
There are days when I just want to hang it up,like you,but I keep on trucking as they say.
Hope you get some better relief soon!
Dear Nicky,
I realize this is an older post so I don’t know if you will get this, but I just found your post and am so encouraged by it. I am wondering how all your treatment with Dr Hibner turned out? I live in Phoenix and know of him, but I have heard he is very expensive and doesn’t accept any insurance. I have been suffering from severe pudendal neuralgia for several years, and have tried multiple treatments to no avail. My last attempt was a pudendal nerve block at Mayo in June. Could you give me an estimate of what it cost you to see Dr Hibner? And also which pelvic PT he referred you to? I am about to give up ever finding help with this debilitating pain
I sure hope you have gotten relief,
Regards,
Mary Lynn
@pita444help My pain is in the very same area as yours and I feel it to be emanating from my episiotomy on the left side. Lyrica and Cymbalta help but I recently had a spinal cord stimulator which helped a lot with other pain. But I still get PN pain from sitting for a long time. Since it is hard to stand for most of the day I haven’t found relief. But I am working with the Nevro techs to address sitting pain specifically and will let you know if the SCS helps to significantly reduce it.